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GFinDC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GFinDC

  1. GFinDC
    Hi Natasha, Certainly lots of people with celiac disease have problems with dairy, especially lactose. But, people who don't have celiac also can have problems with dairy. It's not super unusual that they do. The nice thing is you can get Lactaid pills at the grocery store and try them. if they help then lactose intolerance may be the problem...
  2. GFinDC
    Hi Janet, We have had a few people post about having refractory celiac disease. I am not sure any of them are active forum members though. Are there questions we might be able to help with about it? We may not be experts on it. But we are cheap.
  3. GFinDC
    That's great that you are gaining weight already Jack. It can be simpler/easier to mainly eat a whole foods diet at first. Avoiding processed foods means you don't have to sift through long lists of ingredients on food labels to determine if they are gluten-free. Instead you can eat whole foods like meats, veggies, eggs, nuts, and fruit. Often people...
  4. GFinDC
    OK, total villous atrophy is pretty definitive. I say! I say! You done got celiac boy! Props to foghorn leghorn. Sometimes people with celiac will have no GI symptoms. They call that silent celiac. No symptoms doesn't mean there isn't damage going on though. Some people have symptoms in other parts of the body. They may have skin rash, joint...
  5. GFinDC
    Sure, some of us like Scott, the board owner are even older than that! Sometimes you can hear the forum creaking when he types a response. Really! Joking. Yes, you can certainly recover at 49. For the endoscopy they want at least 2 weeks of eating gluten before it. That's enough time to show the type of gut damage that celiac can cause. During...
  6. GFinDC
    Hi, We might be able to help you interpret the test results. Can you post the test name, test result and reference ranges? The reference ranges vary by lab. The celiac disease tests should be something like ttg IgA, DGP IgA, DGP IgG, EMA, serum IgA. Also, you may have been tested for vitamin and mineral levels. Vitamin D and B vitamins...
  7. GFinDC
    Hi K, The first 6 months or so of the gluten-free diet are the hardest IMHO. After that people generally learn the basics and have made enough mistakes to learn to eat less riskily, if that's a wurd. The holidays are a bit disturbing to some people who are gluten-free because of all the holiday foods they can't eat. Other people may have reason...
  8. GFinDC
    Hi Ivana, Some vitamin deficiencies can cause mental affects. Our brains are organic and need certain nutrients to function well. Some of the common ones to watch out for are all the B vitamins and Vitamin D. B vitamins like B-12 are important for nerve function. Our brains are made of lots of fat and lots of nerves. So we can get a double problem...
  9. GFinDC
    Hi Ivana, Hopefully your numbers will be lower. Please do ask any questions you might have. We are glad to help as we all have been through this ourselves. You may recover faster if you stop all dairy and oats for a few months. They can be problems from some of us.
  10. GFinDC
    Feeling better is great! Your body must be having some kind of reaction to gluten if you feel different after stopping eating gluten. There are multiple antibody tests that they do for a complete celiac test panel. DGP IgA, DGP IgG, EMA, total serum IgA, ttg IgA, All these different antibody types are relevant and a positive on any of them can indicate...
  11. GFinDC
    Hi Kmorley, the HLA tests are the gene tests. They don't require you to be on a gluten-free diet. Anybody can take the gene tests at any time. The antibody tests do depend on eating gluten for a while before them. But if your doctor is trying to verify the antibodies have declined since starting the gluten-free diet, then you don't need or want...
  12. GFinDC
    Hi Bob, I hope you do try being totally dairy free again. It may make quite a difference. But don't be surprised if it takes several weeks to see improvement. Being dairy free after starting gluten-free is different than going dairy free while eating gluten. I know you have cut down on dairy recently but if it is a dairy protein problem then a total...
  13. GFinDC
    Hi Kate, I take calcium supplements. One is Lifetime Calcium, magnesium, potassium Vitamin D and Boron. it doesn't contain large amounts of calcium but has other things in it that I like to get. I also take a calcium citrate + D3 pill from CVS. I am sure there are better calcium pills around but CVS was cheap. So I don't depend on foods for my calcium...
  14. GFinDC
    That were me! Lactaid has lactase in it, and helps digest dairy sugar, lactose. Lactase does not do anything helpful towards digesting dairy proteins, like casein and whey. So if Lactaid doesn't help your dairy issue, it is probably a dairy protein problem. I have seen casein as an ingredient in some foods that are labeled dairy-free. Foods should...
  15. GFinDC
    Hi, If she is doing better on the gluten-free diet that's very good. Exact antibody numbers are not super important, but that her gliaden antibody levels and symptoms decrease over time is important. I'd say yes, it is very likely she has celiac based on her elevated antibody levels and symptom improvement on the gluten-free diet. Something to...
  16. GFinDC
    Hi Bob, It's not typical for a celiac patient to be put on an immune suppressor for GI symptoms. The exception would be refractory celiac disease. But a diagnosis of refractory celiac disease is not considered until all other possible issues are eliminated. Things like cheating on the gluten-free diet, or unknown cross contamination etc. And continued...
  17. GFinDC
    That's a sweet idea... But, not necessary really. I live with my brothers who are not gluten-free and do ok. We do live on a farm but it's not a totally gluten-free farm. So you can get better without living in the country IMHO. But why would you want to? OK, maybe some simple changes can help. When you cook make large batches of food and...
  18. GFinDC
    I am still waiting to find that out personally.
  19. GFinDC
    Hi Bob, Are your antibody levels lower than when you were first tested? If they are trending downward then you are doing something right. If they are going up then it's a problem. As Trents said, many of the items in your suspect list are naturally gluten-free. Things like veggies could pick up contamination on their surface but it is easy to...
  20. GFinDC
    You are welcome CG. It seems like people new to the gluten-free diet often have a sort of a rough time the first 6 months. The immune system can flare up with a very small amount of contamination. Plus with a damaged gut things aren't great in the digestion realm anyway. As the immune system calms down the villi lining the gut can grow back. That new...
  21. GFinDC
    Not me. But you can try to find an Aldi's and get some of their gluten-free wraps. Or Mission brand corn tortillas. Udi bread is ok although kind of variable in quality. Rudi's bread is same issue. Schar bread sucks IMHO. But I haven't tried it in years. Kinickkinick bread is ok IMHO. If you canoe canoe. Or you can make your own. There is a...
  22. GFinDC
    Dead animals, dead fish, veggies grown in the dirt or above the dirt, some nuts from trees and bushes and some fruit. Some eggs too for good measure.
  23. GFinDC
    @Trents, That will teach you to pilfer her biscuits! @canadiangeek, Hi CG, Welcome to the forum! It sounds like you figured out your health issue. But you may not be aware of the testing process for celiac disease. If you want to be diagnosed by a doctor you need to be eating gluten for 2 weeks before the endoscopy or 12 weeks before...
  24. GFinDC
    Hi Alexinferno, IMHO with positive antibodies and symptom improvement on the gluten-free diet. I think you probably do have celiac disease. Not eating gluten shouldn't make a difference for people without celiac disease. They should feel the same. Another thing that new gluten-free dieters often have problems with is dairy and oats. They are...
  25. GFinDC
    Hi Allison, Did the doctor check your vitamin/mineral levels? They should do that if they haven't already. Nerves are affected by some of the B vitamins. So you may be low on some of those.
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