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mushroom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mushroom

  1. Either one of those doctors can order the testing for you. It is possible your PCD does not know what to order; these are the tests: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA The first two tests can be safely omitted...
  2. Ain't dat da truth!! Takes all the fun out of it
  3. Bad Girls - Donna Summer
  4. You mention posters having similar problems and gluten free not helping, but I can't find which posters you are referring to. This must have come from the splitting of the topic, I guess. So perhaps you can remind us. Most people notice some difference when eating gluten free; very few have no changes unless they do not wait long enough for changes to...
  5. It is true that many who go gluten free in support of other family members to help keep them safe end up discovering that they have been reacting to gluten themselves. I would not go so far as to say that no one should eat gluten, however. Certainly, the gluten free diet is not at all harmful to anyone, so long as it is kept in mind that much of the glutenous...
  6. When you start reacting to more and more foods it is often a sign of leaky gut syndrome. This means that the membrane that lets digested food into the blood stream is not working properly and is letting partially digested food through. Your autoimmune system reacts to this partially digested food as being "non-self" and creates antibodies toward it, and...
  7. You forgot one of the previous gems -- they don't have the 'time' (read 'interest') to read stuff that patients bring in for them (especially if it won't help their golf game.)
  8. Withdrawal is unfortunately an all-too-common side effect of ceasing to eat gluten. Studies have shown that it can act as an opioid to the body and it's just like withdrawing from drugs, nicotine and alcohol for some people. Generally lasts for 2-3 weeks at most, so you just have to ride it out -- sory, no one has developed gluten patches Just warn people...
  9. Yes, I fried my kidneys on prescription diclofenac (they did come back although not all the way), and I do do the 'ATNF stuff, but.... funnily enough despite how far gone my hands were (I did my own PT on them) I only need them about one month out of every six now, when my hands start going wonky on me again. Oh, and I have to fly to the US every year for...
  10. Any chance of talking him into running the DGP, both IgA and IgG versions? Much more sensitive test and more specific to celiac to boot.
  11. Oh Lisa, it's a bit too soon for that Maybe one day, but we will have a lot of education to do So glad, nvsmom, that you finally found a listening ear. May it lead to something fruitful
  12. Have you ever been truly gluten free in 7 years? It doesn't take much to keep the autoantibody factory in production, and one lapse (like a regular -- non gluten-free - beer) can start up a new, more active production line. So before you say it is not gluten, you must be truly gluten free, OCD almost in being gluten free and avoiding cross-contamination...
  13. Actually, due to an overflow of applicants, there is a rather long waiting list for decoder rings. As with healing from celiac disease, one must be very patient.
  14. Some of us will feel for you at the loss of KFC (but only for the convenience ) Most of us know that you can make better tasting chicken at home. It's the loss of the spontaneity of eating some of this stuff out that is the real downbeat But don't let that deter either of you from creating the.most.delishus gluten free food for your friends at home...
  15. Wrong! It gives kinks to your hair and frizzy ends and makes your feets swell
  16. I love Arches - one of my faves!
  17. I hate chopping nutz!! Damned things shoot everywhere. I use my little mini processor now. Not only does it do a better job but the nutz stay where they're supposed to
  18. Mendocino coast in CA is pretty kewl. But I don't know anybody there
  19. Born To Run - Bruce Springsteen
  20. mushroom

    ARCHIVED Dental Horror

    I would always insist on your "good" dentist and avoid the other one like the plague. My dentist (a gizmo guy) has the latest gizmo which uses a little pump for the anesthesia so it just goes in in little measured doses so it doesn't hurt at all.
  21. The tTG is not the only celiac test, although one doctors love to use on its own as a screening test with the total IgA as a control, as your doctor did. I would ask him to also order the DGP, the newest and most specific and sensitive of the celiac tests, which will usually pick up celiac earlier than the tTG. I would do this test before thinking of...
  22. It's becoming pretty clear it's the gluten, regardless of what the test results say. That food you ate was contaminated, regardless of whether or not you actually ate the pastry, and who knows what was in the sauce??? The verdict looks likely to be either non-celiac gluten intolerant, or else still celiac despite the tests, since those with primarily...
  23. That is a pretty high tTG score. I would say the chances are pretty good. Don't forget that 97% of celiacs are undiagnosed, some for the simple reason that they have no acknowledged symptomatology Welcome to the board Ross, and do keep asking questions.
  24. Yes, it does get better. Give it time
  25. Many of us on this forum have come to believe that gluten intolerance is a spectrum of disorders that has not yet been fully classified (the medical profession less than 18 months ago finallly accepted that there was such a disease entity as non-celiac gluten intolerance), and that celiac disease is only part of that spectrum, which by definition causes damage...
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