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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Your genetic test results confirm that you carry the highest-risk markers for celiac disease, specifically the HLA-DQ2 haplotype (while being negative for HLA-DQ8). The fact that both HLA-DQA1*05 and HLA-DQB1*0201 appear twice means you inherited identical copies from each parent, making you homozygous for these genes. This double dose of the DQ2.5 haplotype...
  2. It sounds like you and your daughter are navigating celiac disease with a lot of care and dedication, and it’s wonderful that you’re prioritizing her health and growth during this critical time. Since her antibody levels and growth have plateaued, tightening up her diet by avoiding eating out (except at dedicated gluten-free places) is a smart move—even ...
  3. This is good news--I hope we can get this done on a national level!
  4. Sylvania, Ohio (May 15, 2025) Element 112, LLC dba Madeline’s Pâtisserie is issuing a voluntary recall of a specific batch of our ready-to-eat croissants, due to a labeling error. The ingredient statement on the exterior of the box was labeled as “flour” and does not accurately reflect the contained allergen of “wheat” These products are sold fully baked, fro...
  5. I use a blender and have made various juice recipes over the years.
  6. Restaurant had a ‘GF’ pizza option… then whispered, ‘But we use the same oven.’ 🍕⚰️ Share your worst ‘gluten-free, but not really’ moments!
  7. After many years of running Celiac.com, one thing I've noticed is that I rarely hear about support groups that organize gluten-free picnics. It seem like this would be a great way to get celiacs together. I've attended various conferences, meetings, and events over the years, but strangely, no gluten-free picnics.
  8. I would be surprised if anyone could taste the difference--salted dry roasted almonds should not be hard to find. As mentioned in my last post, nuts.com may not be for you if you are avoiding peanuts.
  9. Welcome back! It sounds like you’ve been navigating a lot, but it’s encouraging to hear that your last IVIg cycle brought some improvement in vision and ataxia—fingers crossed that continued treatment helps even more over time. The phlebitis must be frustrating, though; hopefully, your care team can find a solution (maybe a different IV site, slower infus...
  10. It sounds like you’ve been through an incredibly difficult journey with your health, and it’s understandable to want clarity about whether you have celiac disease. While your doctor hasn’t officially diagnosed you with celiac (due to avoiding the gluten challenge), her decision to label it as a "severe gluten allergy" in your chart strongly suggests she b...
  11. It is getting harder to conceal such things, as most job applications now ask if you have celiac disease in their list of disabilities. If you answer "yes" they will know up front, and may just toss your application aside, if you say "no" are you lying and violating their hiring policy? If they hire you and know this up front, then there is no way to hide...
  12. It's great to hear that you have a handle on things now, and a combination of allergies and DH makes sense.
  13. It is interesting that ketoconazole seemed to work for dermatitis herpetiformis symptoms, as it seems to be an anti-fungal medication. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to...
  14. I looked at the pumpkin seeds on nuts.com and see this warning--so there are many more allergens to worry about!
  15. Did your rosacea improve when you went gluten-free?
  16. Celiac.com 05/21/2025 - When it comes to dietary restrictions, most of us assume that sharing helpful information is an act of kindness. But what happens when that good intention steps into the realm of personal privacy? A recent office...
  17. I just want to post this new study here--it seems that for those who don't recover on a gluten-free diet may be in this group: https://www.science.org/doi/10.1126/scitranslmed.adp6812
  18. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
  19. It does seem like brushing would be needed, and like anything else, a little daily exposure can lead to serious issues for celiacs.
  20. Good to know! Thanks for sharing this.
  21. Finding a doctor who truly understands celiac disease can be challenging—many still rely on outdated info or dismiss lingering symptoms. Here's what's worked for me and others in the celiac community: 1. Start with a Gastroenterologist (GI) Specializing in Celiac Look for GIs affiliated with celiac research centers (e.g., Columbia University, ...
  22. For those of us with celiac disease, fueling workouts safely can be tricky—especially when many sports gels, bars, and supplements are gluten landmines. I’ve been experimenting with gluten-free options that don’t sacrifice performance or digestion. A few favorites: Pre-Workout: Banana with almond butter + a dash of sea salt (electrolytes!) or homem...
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