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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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Conflicting results
Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
One study showed that up to 44% of first degree relatives also have celiac disease, so his odds of having it are quite high. Also, if he were not IgA deficient his celiac disease test scores would likely have been much higher because they were based on the IgA antibodies. -
Conflicting results
Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As the article mentions: EMA-IgA (endomysial antibodies IgA) Blood Test for Celiac Disease: tTG-IgA (tissue transglutaminase IgA) Blood Test for Celiac Disease: So the likelihood is very high he has celiac disease, and even if the biopsy results turn out negative, I would still consider a gluten-free diet. -
Conflicting results
Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
PS - I forgot to mention, was he eating a lot of gluten daily for 6-8 weeks leading up to all blood tests? If not, this can cause lower than normal antibody results. -
Conflicting results
Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It looks to me like he's IgA deficient, or borderline IgA deficient, which means that his TTg-IgA test results for celiac disease will be lower than they actually should be. His first celiac disease test was still highly positive, even though he is IgA deficient, and this is a strong indication that he has celiac disease. The fact that he's IgA deficient... -
Stagnating recovery
Scott Adams replied to Eric.C's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The... -
Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this...
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Conflicting results
Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree, is it possible that your child is IgA deficient, yet has positive results for their tTg-IgA result? -
Waiting on Blood test results…
Scott Adams replied to ChrisSeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Good news! Keep in mind that approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. -
Waiting on Blood test results…
Scott Adams replied to ChrisSeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It looks like they will now order the Tissue Transglutaminase IgA Antibody test, but verify this with your doctor. -
Waiting on Blood test results…
Scott Adams replied to ChrisSeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, this sounds right. Let us know when you find out your results. -
Celiac, Fructose and Lactose
Scott Adams replied to ALBANICKAP's topic in Related Issues & Disorders
Have you tried sheep's milk and goat's milk cheeses? After my diagnosis I could not tolerate cow's milk for ~2 years until my villi healed, but for some reason I did not have issues with sheep milk or goat milk cheeses. I also had temporary issues with chicken eggs, but could eat duck eggs. -
Waiting on Blood test results…
Scott Adams replied to ChrisSeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is not a test for celiac disease, but your total IgA levels. This test is usually done with other celiac disease blood tests to make sure the results are accurate. Did they do a tTg-IgA test as well? Were you eating lots of gluten in the 6-8 weeks leading up to your blood tests? This article might be helpful. It breaks down each type of test... -
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Waiting on Blood test results…
Scott Adams replied to ChrisSeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, your symptoms are certainly consistent with possible celiac disease. Were you eating lots of gluten daily in the 6-8 weeks before the test? If not it could lead to false negative results. When you post your results please also include the reference ranges, as each lab uses their own. Good luck! -
Waiting on camera test
Scott Adams replied to mariamccl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Were you eating lots of gluten in the 6-8 weeks before your blood test? If not, you can end up with false negative results. Feel free to share your blood test results--were your antibody levels elevated at all? Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms g... -
Enegy level extremely low
Scott Adams replied to Sicilygirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It's difficult to say exactly why, but it is worth discussing this with your doctor, as it can by a symptom of other things--especially if you're also losing weight. -
Enegy level extremely low
Scott Adams replied to Sicilygirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Are there any things that you enjoy eating that you can have gluten-free versions of? For example, pizza, mac & cheese, pasta, etc? If so, perhaps try to include those in your diet more until your appetite recovers. Of course cannabis is famous for improving appetites, but I would only go that direction if you have serious weight + appetite issues... -
Test result insight
Scott Adams replied to disneyfamilyfive's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the follow up, and at least you know the cause of your health issues and can now start working towards better health! This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): -
There is no such thing a "mild celiac disease," and your blood test results and biopsy results indicate that you indeed likely have an issues with gluten. It also would make no sense for you to go gluten-free for two months and get the blood test done again--I can predict the results for you--negative. The real question here is how much gluten were...
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Welcome to the forum. You have two positive blood tests for celiac disease, and have symptoms, so there is a high probability that you have it, or non-celiac gluten sensitivity, regardless of the biopsy results. Unfortunately studies have shown that biopsies often miss taking samples in the appropriate areas, or taking enough samples, or properly interpreting...
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food app
Scott Adams replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks for sharing. It look like a helpful app for celiacs. -
No need for you to be at a loss, what you've described here is classic celiac disease--minus the biopsy results. I believe that your blood test results, combined with you getting better whenever you eliminate gluten, should be enough for you to indicate to you that you need to go gluten-free. Approximately 10x more people have non-celiac gluten sensitivity...