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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    In all honesty that designation is fairly recent, and very confusing--what I really think it means is that for patients OR doctors who really don't like the concept of a lifelong gluten-free diet it provides a way for either to "copout" on making an official diagnosis. There isn't for example, a "strong-negative" designation, where you might score 1...
  2. Scott Adams
    There is no way to tell for sure, this would depend on the level of exposure and the time period, and it would be different for each person. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  3. Scott Adams
    This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.
  4. Scott Adams
    The FDA sets the guidelines for certain things that can appear on food labels, and they also do some random testing and enforcement. You can, for example, report a company if you get sick from a product due to gluten. Ultimately it comes down to funding--and like many federal agencies the FDA is underfunded in comparison with the task at hand--keeping the...
  5. Scott Adams
    Many of your symptoms do sound like they could be related to untreated celiac disease--feel free to share your blood test results here if you wish to. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal N...
  6. Scott Adams
    Not all people with DH react to iodine, and if you have a thyroid condition be sure to discuss any cuts in iodine with your doctor. Some people with DH may have an issue with iodine.
  7. Scott Adams
    More information about "Spicy Smoky Gluten-Free Chili con Carne"
    Celiac.com 07/24/2024 - Chili con carne, a beloved staple of Tex-Mex cuisine, has roots deeply embedded in the culinary traditions of the American Southwest. Originating in the 19th century, this hearty dish was first popularized by the...
  8. Scott Adams
    Can you also provide the reference range that should be with your test result? We've done some research summaries on MS and celiac disease that you may find interesting: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/multiple-sclerosis-and-celiac-disease/ This article might be helpful. It breaks down...
  9. Scott Adams
    As @RMJ mentioned, cystic lymphangiectasia in the small bowel can sometimes be associated with celiac disease, although it is relatively uncommon. Celiac disease is an autoimmune disorder where ingestion of gluten leads to damage in the small intestine. This damage can disrupt the lymphatic system within the intestinal walls, potentially leading to conditions...
  10. Scott Adams
    If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:
  11. Scott Adams
    I think the GFCO step down process is far too aggressive--it ends up where a company only needs to test a single gluten-free product per quarter? What if the company makes millions of boxes per week, for example a major cereal company? To me, the amount of testing done to retain certification must be consistent over time, done on every batch, and must be...
  12. Scott Adams
    I've sent an email to Dr. John Fagan, Chief Scientist at Health Research Institute, asking for his comments on that article, and I'll share any response. In his initial reply he doesn't say one way or the other whether or not he used blocking agents like non-fat dry milk (NFDM), bovine serum albumin (BSA), or casein, but since he's at an accredited lab I...
  13. Scott Adams
    Increasing the fat content in meals can help individuals with celiac disease feel less hungry by providing longer-lasting satiety, since fats digest more slowly than carbohydrates and proteins. Fats take longer to digest compared to carbohydrates and proteins, which helps in maintaining a feeling of fullness for a longer period. Fats play a crucial...
  14. Scott Adams
    More information about "Family Seeks Policy Change After Alleged Discrimination at Provo, Utah Water Park"
    Celiac.com 07/23/2024 - A mother from Utah County is advocating for changes after her teenage daughter, who has type one diabetes and celiac disease, experienced what the family claims was discrimination at a Provo water park. The mother...
  15. Scott Adams
    From a marketing standpoint it wouldn't work because no brand would want a 1/5 star anything on their labels. I think losing certification needs to happen if a company fails enough times, but the main thing here seems to be ending the step down testing process which may be leading to gluten creeping into GFCO certified products. As far as I can tell, the...
  16. Scott Adams
    Many doctors mistakenly dismiss the possibility of celiac disease in those who are overweight, but there is a lot of evidence that shows that being overweight is fairly common in celiacs, and here is a category with our summaries of the studies on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/obesity...
  17. Scott Adams
    This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  18. Scott Adams
    I'm not sure if this was covered already, but be sure that his iron pill is gluten-free, as well as any other meds or supplements. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients...
  19. Scott Adams
    This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.
  20. Scott Adams
    It is not impossible to get neuropathy as a symptom from having non-celiac gluten sensitivity (NCGS). While celiac disease is more commonly associated with neurological complications such as neuropathy, there is evidence that non-celiac gluten sensitivity can also be linked to similar neurological symptoms. Studies have reported that some individuals...
  21. Scott Adams
    This article, and the comments below it, may be helpful:
  22. Scott Adams
    The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product...
  23. Scott Adams
    If you have celiac disease and go 100% gluten-free most damage can heal relatively quickly. According to this study: This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment...
  24. Scott Adams
    This article is a bit older, but probably still relevant. Be sure that any medications or supplements you take are gluten-free:
  25. Scott Adams
    That is correct--if you have celiac disease it takes longer for the antibodies to show up in your blood than it does for the damage villi damage to appear. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to...
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