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Scott Adams

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Everything posted by Scott Adams

  1. Welcome back! It sounds like you’ve been navigating a lot, but it’s encouraging to hear that your last IVIg cycle brought some improvement in vision and ataxia—fingers crossed that continued treatment helps even more over time. The phlebitis must be frustrating, though; hopefully, your care team can find a solution (maybe a different IV site, slower infus...
  2. It sounds like you’ve been through an incredibly difficult journey with your health, and it’s understandable to want clarity about whether you have celiac disease. While your doctor hasn’t officially diagnosed you with celiac (due to avoiding the gluten challenge), her decision to label it as a "severe gluten allergy" in your chart strongly suggests she b...
  3. It is getting harder to conceal such things, as most job applications now ask if you have celiac disease in their list of disabilities. If you answer "yes" they will know up front, and may just toss your application aside, if you say "no" are you lying and violating their hiring policy? If they hire you and know this up front, then there is no way to hide...
  4. It's great to hear that you have a handle on things now, and a combination of allergies and DH makes sense.
  5. It is interesting that ketoconazole seemed to work for dermatitis herpetiformis symptoms, as it seems to be an anti-fungal medication. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to...
  6. I looked at the pumpkin seeds on nuts.com and see this warning--so there are many more allergens to worry about!
  7. Did your rosacea improve when you went gluten-free?
  8. Celiac.com 05/21/2025 - When it comes to dietary restrictions, most of us assume that sharing helpful information is an act of kindness. But what happens when that good intention steps into the realm of personal privacy? A recent office...
  9. I just want to post this new study here--it seems that for those who don't recover on a gluten-free diet may be in this group: https://www.science.org/doi/10.1126/scitranslmed.adp6812
  10. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
  11. It does seem like brushing would be needed, and like anything else, a little daily exposure can lead to serious issues for celiacs.
  12. Finding a doctor who truly understands celiac disease can be challenging—many still rely on outdated info or dismiss lingering symptoms. Here's what's worked for me and others in the celiac community: 1. Start with a Gastroenterologist (GI) Specializing in Celiac Look for GIs affiliated with celiac research centers (e.g., Columbia University, ...
  13. For those of us with celiac disease, fueling workouts safely can be tricky—especially when many sports gels, bars, and supplements are gluten landmines. I’ve been experimenting with gluten-free options that don’t sacrifice performance or digestion. A few favorites: Pre-Workout: Banana with almond butter + a dash of sea salt (electrolytes!) or homem...
  14. Did you get any further tests done? Just curious if you know more now.
  15. Hopefully you're supplementing to treat your osteoporosis. Let us know how you're doing.
  16. By the way, when I did a Google search for "Gluten-free restaurants in Gadsden, AL" I see this, however, this doesn't mean you can't get contamination at these places:
  17. Just a reminder that we've got ~30 years of shared recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/ https://www.celiac.com/forums/forum/27-gluten-free-recipes-cooking-tips/
  18. Just be sure that the chocolate milk is gluten-free, as some contain barley malt.
  19. My daughter and I have had them many times without any issues, however, they were indeed labeled "Gluten-Free" on the package, otherwise we would not have tried them. We like them, but they don't have as much breading as the picture on the package shows.
  20. It's worth reading the many studies done on AN-PEP enzymes, which are used in GliadinX, and all are posted on their website. The best policy for celiacs is to avoid eating out, but if you're like me, that is a bridge too far--I enjoy eating out too much, as well as traveling.
  21. There are test kits available (urine test) that can tell you if you consumed gluten in the last ~24 hours, but without that, there is no way to be certain. Eating out in restaurants in the primary source of contamination for most celiacs. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional...
  22. I've not tried them, but making your own anti-inflammatory juice shots at home can be a great way to support gut health while ensuring ingredients are fresh, cost-effective, and tailored to your needs. Many store-bought options (like Thistle’s) are convenient, but DIY versions allow you to control ingredients and avoid additives. Some powerful anti-inflammatory i...
  23. It sounds like an exciting plan, and there is a lot of great naturally gluten-free foods in the Caribbean islands, Mexico, Central America, etc.
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