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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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Testing for/diagnosing celiac
Scott Adams replied to pokey449's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your doctor seems to be very updated on this, I wish more doctors would follow suit. The biopsy as the gold standard for diagnosis is a very outdated model of diagnosis, and I hope that more doctors get up to date on recent research which shows that most people can be diagnosed without a biopsy. -
Many items that are naturally gluten-free don't have this on their label. This doesn't mean they contain any gluten. In general I agree that if given a choice, try to go for things that are marked "gluten-free," or even better, are certified gluten-free, however, there are just too many safe things that would be excluded from your diet if you took this approach...
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Pregnancy: Gluten Sensitivity and Your Child’s Brain Development
Scott Adams commented on Dr. Tom O'Bryan's article in Spring 2020 Issue
It's doubtful the doctor will reply, but if you have celiac disease it is never ok to cheat and eat gluten. If you have gluten sensitivity you should also not eat gluten.- 3 comments
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- celiac disease
- food sensitivities
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While there are other causes of villi blunting, the most common cause is probably still gluten, although there isn't a lot of research that compares the rates of villi blunting and their causes. We just did this article on this topic: One angle for you might be to go gluten-free for several months, and see if your doctor is willing to do another biopsy...
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Accidental gluten
Scott Adams replied to Kairos87's topic in Gluten-Free Foods, Products, Shopping & Medications
I think it works very well, but has limits, as it works on small amounts of gluten, like what you might get if your food were contaminated by accident. Here is a review I wrote of it, and I stand by it: -
I've not heard of this being related to going gluten-free, but have experienced this myself when I used to eat gluten and had reactions to it. Here is a search of our site where others discussed this as a symptom: https://www.celiac.com/search/?&q=pulse&search_and_or=and You may want to get screened for high blood pressure, and shift your...
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Accidental gluten
Scott Adams replied to Kairos87's topic in Gluten-Free Foods, Products, Shopping & Medications
It's hard to tell by your description, hopefully you didn't swallow any, but just in case: Also, I have GliadinX enzymes handy for such times. -
Is Quaker Oatmeal Gluten Free
Scott Adams replied to pokey449's topic in Gluten-Free Foods, Products, Shopping & Medications
This is interesting, but would not be enough to make me exclude quinoa in my diet, as I just don't eat it often enough to be concerned, plus I've never had a negative reaction to it. However, anyone who is eating lots of quinoa should take note. It would be interesting to find out how widespread the 2 toxic strains are in the food supply. -
What was your recovery like?
Scott Adams replied to Quen's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I will admin that it's hard to recall all the details, but at the time of my diagnosis I have flattened villi, major diarrhea, had lost weight, had helicobacter pryori, and had leaky gut. I had additional temporary food intolerance issues to diary, chicken eggs, tomatoes, garlic among other things. The lower right pain in my gut started feeling better... -
I will assume you've been on your diet for a few weeks, but normally you would add a food back and record any issues you have afterwards. A "gut test" like this isn't the most accurate way to figure out additional food sensitivities, and there are companies like Cell Science Systems and their ALCAT tests that do this more accurately, and I'm in the process...
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EZ Gluten by Elisa technologies
Scott Adams replied to Gloria L's topic in Coping with Celiac Disease
I've never tried them, but have tried a similar product. Many people favor the Nima Sensor for ease of use, and a faster test result. It looks like a bit of a science lab setup to run a test, so it may not be practical for doing in a restaurant, but would be better for home use. -
twinings herbal teas
Scott Adams replied to himelda's topic in Gluten-Free Foods, Products, Shopping & Medications
According to their FAQ page: https://twiningsusa.com/pages/faqs -
Things to do while in corona virus quarantine!
Scott Adams replied to GFinDC's topic in Introduce Yourself / Share Stuff
I just did the Sundance Film Festival Award Winners online. Many film festivals are now online, so you can enjoy them safely. -
The best one for accidental gluten ingestion is GliadinX, which is a sponsor here. Their AN-PEP enzyme has been shown to be effective in multiple studies. I'm not sure what your goal is for taking enzymes. My goal was being able to eat out but was worried about cross-contamination, even if the restaurant had a gluten-free menu.
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When you say your blood tests were negative, can you share your values, and the range? Sometimes people have high values that are just below the cut off, and combined with mild villi blunting, your ongoing symptoms, and the fact you were on PPI's for so many years, to me those exact levels would be important. At the very least you may have non-celiac gluten...
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The article is quite old, and is archived, but it is possible to process an ingredient, for example hydrolyzed wheat protein, to the point where it would test below 20ppm. That said, you would need to decide whether or not you would like to include this in your diet. It is likely gluten-free, but apparently does use barley to make that ingredient. It might...
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- captain crunch
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