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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    So to be clear, you were never diagnosed with celiac disease, and your blood test for celiac disease was negative. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. Also, feel free to share y...
  2. Scott Adams
    This is probably the crux of GFCO's problems. Ingredients supplied to food vendors can be contaminated at any time, so batch testing every single batch should be required. This may cost more, but could prevent embarrassing issues like this from happening--10% of GFCO certified products failed their certification standards in this random test.
  3. Scott Adams
    The findings from a study conducted by Moms Across America found gluten exceeding 20ppm in products made by Simple Mills and Made Good Foods. Celiac.com has reached out to both companies about the study, but so far has not received a response. To date, a formal recall for these products has NOT been issued. Key Findings - Gluten in "Gluten-Free" Products...
  4. Scott Adams
    I contacted Moms Across America and found out that the lab used in this study was Health Research Institute Labs - https://hrilabs.org, and they used the Romer Agrastrip Gluten G12 test, which is highly accurate at detecting the 33-mer peptide of gliadin down to 4ppm. The scientists at HRI carried out the tests in duplicate to ensure accuracy and reproducibility...
  5. Scott Adams
    I have successfully used the Trip Advisor, Yelp and Booking.com apps to find gluten-friendly hotels, grocery stores and restaurants, so you may want to download them to see if you find some options.
  6. Scott Adams
    In your initial post here you said: "I’ve been eating wheat and gluten again for three days and been fine. I was diagnosed wrong has this happen to anyone else?!", and the subject of your post is "Not Celiac." Were you diagnosed with celiac disease? It sounds like you were, but it's not very clear.
  7. Scott Adams
    Definitely, I also had many of the symptoms you mentioned, including panic attacks and gluten ataxia--most of my symptoms improved after 2-3 years gluten-free. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and...
  8. Scott Adams
    Can you tell us more about the blood screening they did for wheat and gluten? Were these allergy tests, or was this a celiac disease blood screening? I ask this because if it was an allergy test then it would not detect celiac disease.
  9. Scott Adams
    Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
  10. Scott Adams
    Thanks for the warning. What brand of coffee beans...Delicious Orchards, or is there a specific brand for this product?
  11. Scott Adams
    Have you considered increasing the fat content of your meals? Increasing the fat content in meals can help individuals with celiac disease feel less hungry by providing longer-lasting satiety, since fats digest more slowly than carbohydrates and proteins. Here are five healthy ways to incorporate more fats into a gluten-free diet: Include sliced...
  12. Scott Adams
    Yes, and clearly this has led to the issues discovered by this study.
  13. Scott Adams
    I agree that gluten should be declared in the ingredients just like wheat and other allergens, it would make life much easier for us. While there have been some instances of non-compliance, the FDA monitors and enforces regulations to ensure that gluten-free products meet the required standards. Non-compliance can result in enforcement actions, including...
  14. Scott Adams
    I can't speak for that brand specifically...there are many such products on the market, but I would only consider ones that contained AN-PEP enzymes, as there have been many studies done on AN-PEP which show that it can break down small amounts of gluten in the stomach, before it reaches your intestines. One of our sponsors here, GliadinX includes AN-PEP...
  15. Scott Adams
    More information about "The Prevalence of Obesity and Celiac Disease and the Role of the Microbiome: Digestive Disease Week (DDW) Annual Meeting"
    Celiac.com 06/12/2024 - A recent study presented at the Digestive Disease Week (DDW) Annual Meeting 2024 has sparked a significant conversation around the relationship between celiac disease and obesity. Traditionally, celiac disease was...
  16. Scott Adams
    It looks like yes, it says gluten-free on the package:
  17. Scott Adams
    Good questions, and we're trying to find out more about what lab did the testing for the study, and we've also reached out to the GFCO for comment.
  18. Scott Adams
    I think you might mean this article: and it looks like there is already one lawsuit, an older one, regarding glyphosate level in gluten-free foods, but these findings could certainly lead to more, especially considering "The highest level of glyphosate - 2,963 ppb found in Banza Chickpea Pasta - is the highest amount ever measured in human food by the...
  19. Scott Adams
    Good questions, there is already one lawsuit that we reported on regarding glyphosate:
  20. Scott Adams
    You would likely need to contact them directly to find out. If you do, let us know what you find out.
  21. Scott Adams
    The results of a recent study indicate that not all products labelled gluten-free are safe, and perhaps the biggest surprise were the issues with products that were GFCO certified.
  22. Scott Adams
    More information about "Toxic Levels of Glyphosate, Pesticides, Low Mineral Content, and Even Gluten Found in Gluten-Free Products"
    Celiac.com 06/11/2024 - The findings from a study conducted by Moms Across America shed light on concerning levels of glyphosate, pesticides, low mineral content, and even gluten in gluten-free products. This is particularly relevant to...
  23. Scott Adams
    Flax Seed: This seed has many health benefits such as high-quality protein, fiber, B and C vitamins, iron, and zinc, anti-cancer properties, omega-3 fatty acids, and many other benefits. To use as an egg substitute grind 2 tablespoons flaxseed and add 6 tablespoons boiling water, let set for 15 minutes then whisk with a fork—this mixture will replace 2 e...
  24. Scott Adams
    It looks like it is naturally gluten-free, and the only ingredients are decaffeinated green tea leaves.
  25. Scott Adams
    You can still have celiac disease with negative blood test results: Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/ Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc...
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