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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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I've not heard of this being related to going gluten-free, but have experienced this myself when I used to eat gluten and had reactions to it. Here is a search of our site where others discussed this as a symptom: https://www.celiac.com/search/?&q=pulse&search_and_or=and You may want to get screened for high blood pressure, and shift your...
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Accidental gluten
Scott Adams replied to Kairos87's topic in Gluten-Free Foods, Products, Shopping & Medications
It's hard to tell by your description, hopefully you didn't swallow any, but just in case: Also, I have GliadinX enzymes handy for such times. -
Is Quaker Oatmeal Gluten Free
Scott Adams replied to pokey449's topic in Gluten-Free Foods, Products, Shopping & Medications
This is interesting, but would not be enough to make me exclude quinoa in my diet, as I just don't eat it often enough to be concerned, plus I've never had a negative reaction to it. However, anyone who is eating lots of quinoa should take note. It would be interesting to find out how widespread the 2 toxic strains are in the food supply. -
What was your recovery like?
Scott Adams replied to Quen's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I will admin that it's hard to recall all the details, but at the time of my diagnosis I have flattened villi, major diarrhea, had lost weight, had helicobacter pryori, and had leaky gut. I had additional temporary food intolerance issues to diary, chicken eggs, tomatoes, garlic among other things. The lower right pain in my gut started feeling better... -
I will assume you've been on your diet for a few weeks, but normally you would add a food back and record any issues you have afterwards. A "gut test" like this isn't the most accurate way to figure out additional food sensitivities, and there are companies like Cell Science Systems and their ALCAT tests that do this more accurately, and I'm in the process...
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EZ Gluten by Elisa technologies
Scott Adams replied to Gloria L's topic in Coping with Celiac Disease
I've never tried them, but have tried a similar product. Many people favor the Nima Sensor for ease of use, and a faster test result. It looks like a bit of a science lab setup to run a test, so it may not be practical for doing in a restaurant, but would be better for home use. -
twinings herbal teas
Scott Adams replied to himelda's topic in Gluten-Free Foods, Products, Shopping & Medications
According to their FAQ page: https://twiningsusa.com/pages/faqs -
Things to do while in corona virus quarantine!
Scott Adams replied to GFinDC's topic in Introduce Yourself / Share Stuff
I just did the Sundance Film Festival Award Winners online. Many film festivals are now online, so you can enjoy them safely. -
The best one for accidental gluten ingestion is GliadinX, which is a sponsor here. Their AN-PEP enzyme has been shown to be effective in multiple studies. I'm not sure what your goal is for taking enzymes. My goal was being able to eat out but was worried about cross-contamination, even if the restaurant had a gluten-free menu.
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When you say your blood tests were negative, can you share your values, and the range? Sometimes people have high values that are just below the cut off, and combined with mild villi blunting, your ongoing symptoms, and the fact you were on PPI's for so many years, to me those exact levels would be important. At the very least you may have non-celiac gluten...
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The article is quite old, and is archived, but it is possible to process an ingredient, for example hydrolyzed wheat protein, to the point where it would test below 20ppm. That said, you would need to decide whether or not you would like to include this in your diet. It is likely gluten-free, but apparently does use barley to make that ingredient. It might...
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Gluten Challenge Challenge
Scott Adams replied to Neko1216's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Since you had a positive blood test (and feel free if you'd like to share those results with us), AND your long-standing symptoms went away on a gluten-free diet, AND have come back with a vengeance on your current gluten challenge, all of this together would be enough for me, but I'm not your doctor. Most people need the formal diagnosis to stay on... -
It's in everything
Scott Adams replied to Ilivewithittoo's topic in Parents, Friends and Loved Ones of Celiacs
Although I've not seen any verification of this, I've heard others complain about this: https://www.celiac.com/search/?q=sheetrock&quick=1 Gluten is used to make many commercial glues, so it would not surprise me if it were used to gluten the paper to the rock. -
A long time ago I used to get Jamba Juice with a wheat grass shot, which at the time they claimed was gluten-free. It is gluten-free it if is always 100% grass, however, when I watched them cut the grass in front of me I noticed that some unsprouted kernels/seeds had been pushed up by the growing grass, and were just sitting there mixed into the grass. The...
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It's in everything
Scott Adams replied to Ilivewithittoo's topic in Parents, Friends and Loved Ones of Celiacs
This is interesting, do you wear an N95 dust mask when handling it? It seems like wearing a mask, and perhaps goggles, might help. Many who are very sensitive do report issues with only skin contact, and this would likely be hard for you to avoid. -
The normal procedure is to recheck your diet and make sure it is 100% gluten-free, as even tiny amounts of gluten can trigger the DH rash. Do you eat outside your home? In restaurants? If so this could be the culprit. Other common issues are with oats or other grains that might be contaminated.
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Help with Test Results
Scott Adams replied to DaisyK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If the positive cutoff for this test result is 14.9, and you are at 81.6, I think that’s very high and would be pretty definitive: TISSUE TRANSGLUTAMINASE IGA (U/ML) Your value 81.6 U/mL Standard range<=14.9 U/mL Definitely discuss this with your doctor. -
Is Quaker Oatmeal Gluten Free
Scott Adams replied to pokey449's topic in Gluten-Free Foods, Products, Shopping & Medications
Do you have a link to this research, as quinoa is considered gluten-free and safe for celiacs. Of course celiacs may have other food intolerances.