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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Actually the issue is why isn't Gluten Free Watchdog playing it safe with their followers/members, and instead going after the lab? Are they working for Trader Joe's or celiacs?
  2. The most likely path for gluten contamination is eating outside your home, especially in restaurants. Certainly it is possible that contamination can creep into your diet from other places, but GFCO products are generally considered safe, and our article on their certification is aimed at improving their certification standards, rather than a call to stop...
  3. At this point all celiac disease markers haven't yet been discovered, so no genetic test could completely rule out celiac disease, although you might be 98%+ sure that you don't carry the genes if you tested negative. As for non-celiac gluten sensitivity, the research on this is just beginning, and as far as I know there may not yet be genetic markers identified...
  4. It looks like they are naturally gluten-free, but not labeled gluten-free, according to the ingredients on their site: https://www.dippindots.com/banana-split-bulk-bag/#nutrition
  5. If you eat out at restaurants you might be getting gluten in your diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  6. The first two foods that most people recommend eliminating after gluten would be milk/casein and oats. The AIP diet is also good to try out if you still have issues.
  7. Let us know how it turns out. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. If you should get negative results from your tests, it still by be a good idea to go gluten-free for a while to s...
  8. Celiac.com 08/09/2024 - In the heart of Mexico's culinary heritage lies a tradition of marinated grilled chicken that dates back centuries, influenced by indigenous cooking methods and Spanish culinary techniques. Known for its vibrant...
  9. An elimination diet would be the only way, and it seems like you already may have found your issue, since your symptoms stopped when you excluded milk.
  10. I'm sorry to hear about what you’re going through—it sounds incredibly challenging. It’s not common to have such severe villous atrophy without the typical celiac symptoms, especially after being strictly gluten-free. It’s good that you’re under the care of the Mayo Clinic, but I can understand how frustrating it must be that the treatments haven’t restore...
  11. It sounds like you’re going through a tough time with these lingering symptoms, but it's good to hear you’re starting to feel better. Digestive issues like gas and abdominal pain can sometimes persist even after cutting out gluten, especially if your gut is still healing. You’re doing great by avoiding milk and soda, as they can sometimes aggravate sympt...
  12. Thanks for sharing your experience! It sounds like you’re on the right track with managing your gastritis. Lymphocytic gastritis is indeed associated with celiac disease, and the presence of intraepithelial lymphocytes could be linked to that. Pantoprazole is great for reducing acid, but the burning sensation might also be related to ongoing inflammation o...
  13. Thank you for sharing your results! Based on what you’ve posted, it looks like you have some of the genetic markers that are associated with celiac disease, but the presence of these markers alone doesn’t confirm that you have the disease. Many people have these genes and never develop celiac. The next steps, like the gluten challenge and the biopsy, are...
  14. Here are a bunch of recipes: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-bread-recipes/
  15. In an email I received two days ago John Fagan, Ph.D., Chief Science Officer, Health Research Institute regarding the Trader Joe's Everything Gluten-Free Bagels: and from 8/2/2024:
  16. Currently they do not cook other items that contain gluten in their fryers--they do cook their breakfast hash browns in them, but they have in the recent past. I've spoken to many McDonald's and have been eating their fries for years.
  17. I agree, but it's unclear what is contained in their non-disclosure agreement--if it includes not disclosing their test results it could be another red flag. It would be interesting to get a copy of the agreement to see what's in it. In a perfect world a certification organization would: 1) Require the use of an independent lab for all testing; 2) Not...
  18. On page 26 of: https://gfco.org/wp-content/uploads/2024/05/GFCO-Manual.pdf So companies can perform the tests themselves, and not use any independent lab at all.
  19. I agree, and out of everyone I've contacted, and I've been in correspondence with most of the companies that failed tests in the MAA study, Health Research Institute (which ran the tests in the MMA study), as well as the GFCO, and the only reasonable replies I'm receiving have come from John Fagan, Ph.D., Chief Science Officer, Health Research Institute,...
  20. You are correct, and the companies who are certified by the GFCO contract their own "independent" labs to do all of the testing for certificaiton, and I don't believe that the GFCO does their own testing, monitoring, etc. Here is the info we could find on their program: https://gfco.org/wp-content/uploads/2024/05/GFCO-Manual.pdf It is unclear if there...
  21. I am sharing here the GFCO's official response to Celiac.com's request for comment (which evidently ended up in their spam folder):
  22. I am sharing here the GFCO's official response to Celiac.com's request for comment (which evidently ended up in their spam folder):
  23. I am sharing here the GFCO's official response to Celiac.com's request for comment (which evidently ended up in their spam folder):
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