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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    I agree with @Russ H, and this is a very old rumor that used to be more common back when I was diagnosed. People used to claim that the heat from deep frying gluten would degrade the gluten and make it harmless, but modern gluten testing has put this rumor to rest--the harmful components of gluten do not degrade, unfortunately, when heated--not even in a...
  2. Scott Adams
    I did a quick Yelp search and found several options, but be sure to read the reviews carefully and speak to the staff before ordering to test their knowledge and responsiveness to their need to be gluten-free. https://www.yelp.com/search?find_desc=Gluten+Free+Restaurants&find_loc=Nantucket%2C+MA Others on this forum, including myself, take...
  3. Scott Adams
    More information about "Reversing Hashimoto's: How a Casein and Gluten-Free Diet Transforms Immune Health"
    Celiac.com 07/29/2024 - Hashimoto's thyroiditis (HT) is an autoimmune thyroid disorder characterized by inflammation and impaired function of the thyroid gland, leading to hypothyroidism. The disease involves a complex interplay of genetic...
  4. Scott Adams
    I tend to avoid situations where I might be perceived as rude for bringing my own food to a meal. One approach is to just eat beforehand and mention that your new gluten-free diet as the reason your being extra careful, and this might give you a chance to educate your friends and family about celiac disease, as it is important that they understand this now...
  5. Scott Adams
    I just want to mention that is well known that sourdough bread has far less gluten in it than regular bread. For a gluten challenge you should be eating regular bread. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread...
  6. Scott Adams
    Due to the formatting characters here I can't really tell what your results say. Can you re-type them so that we can read them easier?
  7. Scott Adams
    Welcome to the forum! I was around your age when I was diagnosed with celiac disease, and in the months leading up to my diagnosis I also ended up in the emergency room several times thinking I had heart issues. In my case vertigo symptoms that led to panic attacks were the culprit, and others here have reported very similar issues. It's good to hear...
  8. Scott Adams
    The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend...
  9. Scott Adams
    More information about "Eating Disorders, Body Image Dissatisfaction, and Gluten-Free Diet Adherence in Celiac Disease Patients"
    Celiac.com 07/25/2024 - Patients with celiac disease must follow a strict gluten-free diet to manage their condition. However, this dietary restriction can introduce psychological challenges, including eating disorders and body image issues...
  10. Scott Adams
    If you have celiac disease or non-celiac gluten sensitivity, the only treatment is a gluten-free diet. You've been told that your test results show that you don't have celiac disease, and I was curious about your blood test results because sometimes the results are in a grey area, rather than a black and white yes or no. For example, if the cut off for a...
  11. Scott Adams
    There is definitely a connection between celiac disease and liver issues, and we have a category of research summaries on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/liver-disease-and-celiac-disease/
  12. Scott Adams
    In all honesty that designation is fairly recent, and very confusing--what I really think it means is that for patients OR doctors who really don't like the concept of a lifelong gluten-free diet it provides a way for either to "copout" on making an official diagnosis. There isn't for example, a "strong-negative" designation, where you might score 1...
  13. Scott Adams
    There is no way to tell for sure, this would depend on the level of exposure and the time period, and it would be different for each person. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  14. Scott Adams
    This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.
  15. Scott Adams
    The FDA sets the guidelines for certain things that can appear on food labels, and they also do some random testing and enforcement. You can, for example, report a company if you get sick from a product due to gluten. Ultimately it comes down to funding--and like many federal agencies the FDA is underfunded in comparison with the task at hand--keeping the...
  16. Scott Adams
    Many of your symptoms do sound like they could be related to untreated celiac disease--feel free to share your blood test results here if you wish to. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal N...
  17. Scott Adams
    Not all people with DH react to iodine, and if you have a thyroid condition be sure to discuss any cuts in iodine with your doctor. Some people with DH may have an issue with iodine.
  18. Scott Adams
    More information about "Spicy Smoky Gluten-Free Chili con Carne"
    Celiac.com 07/24/2024 - Chili con carne, a beloved staple of Tex-Mex cuisine, has roots deeply embedded in the culinary traditions of the American Southwest. Originating in the 19th century, this hearty dish was first popularized by the...
  19. Scott Adams
    Can you also provide the reference range that should be with your test result? We've done some research summaries on MS and celiac disease that you may find interesting: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/multiple-sclerosis-and-celiac-disease/ This article might be helpful. It breaks down...
  20. Scott Adams
    As @RMJ mentioned, cystic lymphangiectasia in the small bowel can sometimes be associated with celiac disease, although it is relatively uncommon. Celiac disease is an autoimmune disorder where ingestion of gluten leads to damage in the small intestine. This damage can disrupt the lymphatic system within the intestinal walls, potentially leading to conditions...
  21. Scott Adams
    If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:
  22. Scott Adams
    I think the GFCO step down process is far too aggressive--it ends up where a company only needs to test a single gluten-free product per quarter? What if the company makes millions of boxes per week, for example a major cereal company? To me, the amount of testing done to retain certification must be consistent over time, done on every batch, and must be...
  23. Scott Adams
    I've sent an email to Dr. John Fagan, Chief Scientist at Health Research Institute, asking for his comments on that article, and I'll share any response. In his initial reply he doesn't say one way or the other whether or not he used blocking agents like non-fat dry milk (NFDM), bovine serum albumin (BSA), or casein, but since he's at an accredited lab I...
  24. Scott Adams
    Increasing the fat content in meals can help individuals with celiac disease feel less hungry by providing longer-lasting satiety, since fats digest more slowly than carbohydrates and proteins. Fats take longer to digest compared to carbohydrates and proteins, which helps in maintaining a feeling of fullness for a longer period. Fats play a crucial...
  25. Scott Adams
    More information about "Family Seeks Policy Change After Alleged Discrimination at Provo, Utah Water Park"
    Celiac.com 07/23/2024 - A mother from Utah County is advocating for changes after her teenage daughter, who has type one diabetes and celiac disease, experienced what the family claims was discrimination at a Provo water park. The mother...
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