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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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TTG-IgA testing - any insight?
Scott Adams replied to sweeterin's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I can’t speak for other forums, but the info in this forum, which has outstanding long-term moderators, is very good, especially with regard to celiac disease testing. I actually hear far more horror stories coming from bad doctors, for example in this recent thread a poor lady had multiple strong positive celiac blood test results a year ago, yet h... -
gluten-free k cup coffee
Scott Adams replied to Barb morrello's topic in Gluten-Free Foods, Products, Shopping & Medications
Folgers isn’t labeled “gluten-free” but on their site: https://www.folgerscoffee.com/coffees/k-cup-pods/lively-colombian-decaf-k-cup-pods it states: This product does not contain milk, peanut, egg, fish, crustacean shellfish, soy, tree nut or wheat allergens. So it is likely naturally gluten-free. -
Free gluten-free "playdough"
Scott Adams replied to Barrie's topic in Gluten-Free Foods, Products, Shopping & Medications
Here is a list of support groups that is pretty dated: -
Calcium disodium edta
Scott Adams replied to Bonnie M's topic in Gluten-Free Foods, Products, Shopping & Medications
EDTA has been on our safe list for over 15 years: -
gluten free wheat starch
Scott Adams replied to Mary A's topic in Gluten-Free Foods, Products, Shopping & Medications
In Europe Codex Wheat Starch is considered safe for those with celiac disease because it contains less than 20ppm gliadin/gluten. It is not considered safe under USA labeling regulations which state that anything made using wheat as an ingredient, even if the detectable amount of gluten is zero, is not gluten-free. Our articles about Codex wheat... -
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Different celiac disease Allergy And Alcohol Reactions?
Scott Adams replied to David's topic in Coping with Celiac Disease
If your diet has been 100% gluten-free it is possible that your lactose and alcohol intolerance issues may go away after a couple of years. I had several things I could not tolerate when I was diagnosed, lactose included, but after a few years I was able to eat them again without issues. -
I am not 100% sure how up to date this site's list is, but if you look here: http://glutenfreedrugs.com/newlist.htm Xarelto is listed as "manufacturer doesn’t knowingly add gluten however since they don’t do any final testing they won’t guarantee it to be GF but it is very unlikely that it is contaminated with gluten".
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I've heard that they can be tough to get rid of, but what does this have to do with celiac disease? This is a celiac disease based forum.
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Soda make it hurt
Scott Adams replied to HanoraRich's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Consuming too much sugar, like there is in Coke of other sodas, can lead to SIBO (small bowel bacterial overgrowth) as well as a host of other health issues like diabetes and obesity. That said, most are gluten-free and won’t trigger celiac disease. -
Late gluten sensitivity
Scott Adams replied to Chris Simmons's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Peripheral nephropathy is a symptom of untreated celiac disease, as is high fecal fat content, and both can be caused by other things. It would be worth getting a blood test, and in or to do this you need to keep eating gluten daily until all testing is completed. There are also home test kits now available if you can't get this through your doctor presently... -
Hello @Cindy1955, for sponsorship info please see: https://www.celiac.com/ads/ You can personal message me directly with any questions.
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TTG-IgA testing - any insight?
Scott Adams replied to sweeterin's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If the celiac blood panel was negative then you likely don't have celiac disease. It is possible you have non-celiac gluten sensitivity, but this condition generally shows elevated antibodies in testing. Certainly trying a gluten-free diet won't hurt you, just make sure you are getting proper nutrients and fiber. It might be worth a try for a few weeks... -
If you use the standard ingredients it does appear to be gluten-free, although each ingredient may not list "gluten-free" on its label: Pear Brandy Rose's lime juice ice cubes (or ice) Sprite (soda)
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It was totally irresponsible of your doctor not to share your positive celiac disease tests with you last year, and certainly this is even more concerning because you're now pregnant, and having celiac disease and continuing to eat gluten could lead to nutrient deficiencies, something that is critical during pregnancy. Here are some articles we've done on...
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watermelons
Scott Adams replied to Lisa Crawley's topic in Gluten-Free Foods, Products, Shopping & Medications
You can certainly have an allergy to watermelons, however they are gluten-free of course, and are considered low acid: https://www.chicagotribune.com/lifestyles/health/sc-health-0316-high-acid-food-20120613-story.html -
Ideally you would not use it that long because you would have been on a gluten-free diet to treat your DH, which is the most effective treatment. If you still need to use dapsone then I suspect your diet might not be 100% gluten-free.
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Definitely not ok, and this should really be a forum thread, instead of a personal blog post. Consider starting a thread on this topic here: https://www.celiac.com/forums/