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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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That is really interesting, especially because it points to how the gut microbiome may still stay altered in celiac disease even after going gluten-free. The idea that a fiber like inulin could help feed beneficial bacteria and reduce inflammation is encouraging, although I imagine some people with celiac disease or other gut issues might still need to introduce...
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@Irishgirl5, it does sound possible for those numbers to fluctuate a bit, especially when they are near the upper end of normal, but ongoing symptoms still make it understandable that you are concerned. The fact that his tissue transglutaminase immunoglobulin A is still technically in range does not always make the picture feel any clearer, especially with...
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@Stegosaurus, that is really interesting, and it sounds like you have done a lot of careful digging into what might be driving your symptoms. The connection between dysbiosis, food reactions, and specific additives or sugars is clearly complicated, but your point about hidden ingredients and individual tolerance makes a lot of sense. It is also encouraging...
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- common additive
- dysbiosis caused enzyme loss
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Dreams Macao Beach in Punta Cana DR
Scott Adams replied to JennMitchell79's topic in Traveling with Celiac Disease
I've not been there before, but it looks fabulous! In general, 5 star resorts like this are typically very good at handling gluten-free needs, so I believe you'll be in good hands. I would still pay close attention of the foods offered, and ask the staff questions if something looks off. -
That all sounds reasonable, especially with kidney concerns in the picture, and it makes sense that you would be cautious about increasing anything too aggressively. It is encouraging that the gluten-free diet seems to have helped with the microscopic blood in your urine, even if other kidney issues are still ongoing. Your meal pattern also stands out, because...
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PS - You may find this article interesting:
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That makes sense, especially since anemia is so common in people with celiac disease, particularly if there has been any malabsorption. Beef can be a very helpful source of iron, protein, and other nutrients, so it is understandable that you focus on it. A lot of people with celiac disease find they need to pay close attention to iron levels and overall nutrition...
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Terrible Neurological Symptoms
Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
That sounds really rough, and losing that much weight with ongoing duodenal inflammation and fatigue is a lot for your body to handle. It is encouraging that you have managed to gain a little back, because that at least suggests you are moving in the right direction. Many people with gut damage seem to end up juggling multiple food sensitivities while trying... -
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
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Coeliac And Cardio Vascular Disease
Scott Adams replied to Aileen Cregan's topic in Related Issues & Disorders
Yes, there does seem to be some evidence that people with celiac disease can have a higher risk of cardiovascular problems, especially if inflammation, nutrient deficiencies, or other autoimmune issues are involved, but it certainly does not mean everyone with celiac disease will develop heart disease. High blood pressure is also very common in the general... -
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- celiac disease
- gluten sensitivity
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Thanks for sharing this. The Nature article you linked confirms your key points: this 47-year-old woman’s situation was indeed desperate and life-threatening, requiring daily blood transfusions and failing nine prior treatments, making CAR-T therapy a true "last chance." You are right to note the article does not detail the therapy's downsides—such as the...
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Shaking/Tremors and Off Balance
Scott Adams replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
HLA-DQ2 POSITIVE it's nothing
Scott Adams replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Connecting with others who might be in the same boat is what this forum is all about! That seems like a positive approach. -
That is amazing support, and it is great to hear such a positive story!
- 6 comments
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- celiac disease
- cross-contamination
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It's too bad relationships end because of this disease, but I suppose that being healthy may be more important than being married or living with someone who isn't on board with the gluten-free diet.
- 6 comments
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- celiac disease
- cross-contamination
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When symptoms like fatigue, brain fog, or low energy change how we interact, others sometimes misinterpret that as disinterest, rudeness, or negativity—especially if they don’t understand the underlying condition. That doesn’t make their behavior okay, though. You don’t deserve to be treated poorly for something outside your control. Often, it reflects a lack ...