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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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Exciting gluten-free restaurant find in Central Florida!!
Scott Adams replied to Kwinkle's topic in Gluten-Free Restaurants
Thanks for sharing--I hope it thrives and they open up more locations! -
This is a great topic, so thank you @Lotte18 for bringing it up, and it is a Celiac.com article-worthy topic for sure. CRISPR research related to celiac disease is still in very early stages, and most current work is focused on understanding the immune pathways involved rather than directly editing human DNA to prevent the disease. To date, there is...
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Besides my deep dislike of their site's paywall model, they have NEVER responded to their early claims of Cheerios not being safe or gluten-free due to a post they made with their "hot spots" theory. Millions of boxes of these are sold weekly, so what happened that that big concern of theirs? They promised follow up on it, but never delivered. If their goal...
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I may have already been mentioned here, but it may make sense to ask to have her thyroid levels checked, as thyroid issues are common with celiac disease: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/
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I don't think we need so many references--I doubt anyone will be going through them all. Please curtail these in future posts! PS - 2-3 should be fine.
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Does Nutritional Yeast Contain Gluten? (+Video)
Scott Adams posted an article in Gluten-Free Foods & Beverages
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- cross contamination
- gluten
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Dreams I've had since I got Celiac.
Scott Adams replied to Ping22's topic in Related Issues & Disorders
Can I ask how long you've been gluten-free? Many people with celiac disease report having very vivid dreams or anxiety-related dreams about accidentally eating gluten, especially after they’ve been diagnosed and are working hard to avoid it. Because gluten exposure can make people feel so sick, it can create a lot of underlying stress about accidentally b... -
Terrible Neurological Symptoms
Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
Severe nerve pain and symptoms like barely urinating for many hours, dry mouth, and sudden swelling are definitely things a doctor should know about as soon as possible, especially if they’re new or getting worse. Neuroplastic pain can be very real and intense even when tests don’t show clear structural problems, but it’s still important that your doctors keep ... -
Vitamin B9 (Folate): The UL for Folic Acid is set at 1,000 mcg (1 mg) per day for adults. This limit primarily applies to synthetic folic acid found in supplements and fortified foods, not naturally occurring folate in food. High intake of folic acid can mask the symptoms of Vitamin B12 deficiency, which can lead to neurological damage if left untreated....
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Genetic testing for celiac disease (the HLA-DQ2 and HLA-DQ8 genes) usually takes about 3–10 days to come back, depending on the lab your doctor uses, though some places may take up to two weeks. The test itself doesn’t diagnose celiac disease—it only shows whether you carry the genes that make celiac possible. About 30–40% of people have one of these genes, ...
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I think a key thing here would be to ensure that the prescription(s) she started taking are actually gluten-free, as some contain wheat starch. In the USA we have a site you can check, not sure about the UK, but possibly. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one...
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Test interpretations
Scott Adams replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also h... -
I understand why that feels frustrating, because the labeling can definitely seem confusing. In the case of products like King Arthur’s gluten-free bread flour that contain gluten-free wheat starch, the wheat starch has been specially processed to remove the gluten proteins that trigger celiac disease. Because it originates from wheat, U.S. labeling laws s...
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I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should...
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Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojda...
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Terrible Neurological Symptoms
Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s help... -
By the way, a few years back Nestle launched gluten-free DiGiorno pizza which also used Codex quality wheat starch, but due to backlash from the celiac community quickly reformulated and it is now wheat-free. Personally I think it's not a good direction to go, considering the many alternatives available now.
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I just want to mention that a colonoscopy would not be the test for celiac disease damage, was it an endoscopy? It is not unusual to do either or both tests as a long-term follow up, especially if you're having issues. I fully understand you not wanting to go through a gluten challenge, and would be curious why they would request that part of your follow...
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Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free g...