Scott Adams
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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@DebD5 it sounds like you are in the super sensitive celiac disease zone--and if so your reactions are real, and not psychological, as your doctor implied. It's also possible you have other dietary triggers so be sure to look at that article in my last post in this thread.
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Celiac.com 05/29/2025 - Children with type 1 diabetes (T1D) face a higher risk of developing celiac disease (CD) compared to the general population. Diagnosing celiac disease in these children can be challenging because symptoms are often... -
Wishing you lots of luck--let us know how it turns out!
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Advice please
Scott Adams replied to Katiexox's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Parent-to-parent, I hear your exhaustion and worry loud and clear – what you’re describing goes far beyond typical toddler troubles. Your daughter’s screaming night pain, terrible bloating, stalled growth, and constant infections are textbook red flags for celiac disease or another serious gluten-related condition. While her blood test came back negative, ther... -
New painkiller, Journavx
Scott Adams replied to Lotte18's topic in Gluten-Free Foods, Products, Shopping & Medications
You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance"... -
Confused about my results
Scott Adams replied to AllyJR's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your situation is actually more common than many realize, and while confusing, there are logical explanations for your test results. The key points are that your biopsy showing villous blunting and increased lymphocytes does indicate intestinal damage typically seen in celiac disease, despite your negative blood tests. This phenomenon is known as seronegative... -
This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests...
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Let us know how things turn out.
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I give this advice to everyone who is considering quitting their job: always try to line up a new job before you quit. Why? Because it's easier to find a job when you have one--unemployment for a stretch of time can be hard to explain, especially if the period of unemployment is prolonged. Also, unless you're independently wealthy or have family support,...
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Celiac.com 05/28/2025 - Lumpiang Sariwa, or "fresh spring rolls," traces its origins to Chinese influence on Filipino cuisine during centuries of trade. Unlike its fried counterpart, this delicate version celebrates fresh, crisp vegetables... -
It’s great that you’ve scheduled a doctor’s appointment to address your symptoms, especially given your family history of autoimmune diseases, including celiac disease. Your symptoms—such as stomach pain, chronic diarrhea, nausea after gluten consumption, joint pain, and headaches—do align with common signs of celiac disease, so it’s definitely worth discu...
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CVS (Cyclic vomiting syndrome)
Scott Adams replied to Marky0320's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Cyclic Vomiting Syndrome (CVS) is not a common symptom of celiac disease, but there can be occasional overlap—particularly in children. Celiac disease typically presents with symptoms like chronic diarrhea, abdominal pain, fatigue, and nutrient deficiencies, while CVS is marked by repeated, intense vomiting episodes separated by periods of normal health. ... -
First, be sure to eat tons of gluten in the two weeks leading up to the endoscopy--like 4 slices of wheat bread a day. Talk to your doctor about when to go gluten-free, but normally you can do so after all tests are done.
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Celiac.com 05/27/2025 - For people with celiac disease or gluten sensitivity, finding safe breakfast options at popular coffee chains can be tricky. Cross-contamination is a major concern, and menu items frequently change. This guide compares...- 2 comments
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Top Brands of Gluten-Free Coconut Water
Scott Adams commented on Scott Adams's article in Gluten-Free Foods & Beverages
I understand your concern—gluten sensitivity and cross-contamination can be really tricky to navigate. Since coconut water is naturally gluten-free, the lack of a label might just mean Costco hasn’t gone through the certification process, not necessarily that it’s unsafe. However, if their facility also handles gluten-containing products, cross-contamination could... -
I totally get it—the mental back-and-forth is exhausting! After the letdown of 2017, it makes sense to brace for another "false alarm," but this time really is different. That pasta the night before? Unlikely to cause such high TTG-IGA/EMA results (those antibodies build up over weeks/months, not overnight), but it does mean your immune system is actively r...
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It’s completely understandable to feel anxious and doubtful, especially after previous negative results despite ongoing symptoms. Your current bloodwork—with a TTG-IGA of 152.6 (vs. <15) and a positive EMA (1:10)—is significantly more concerning for celiac disease than your 2017 results. While your EMA titer isn’t as high as some others report, it’s s...
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A look at the product page doesn't indication that it's "gluten-free," however it also doesn't show the ingredients either. Legally they would need to include wheat as a potential allergen if it contained any wheat. https://www.samsclub.com/p/members-mark-colombian-supremo-coffee-single-serve-cups-100-ct/prod19142711
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Gluten-Free Pancit Bihon (Filipino Rice Noodle Stir-Fry)
Scott Adams posted an article in Chinese & Asian
Celiac.com 05/24/2025 - Pancit Bihon is one of the Philippines' most beloved comfort foods—a noodle dish that's served at nearly every family celebration, from birthdays to fiestas. Its name comes from the Hokkien word pian i sit, meaning “... -
This varies a lot from person to person. I include foods that are not certified gluten-free but are labelled "gluten-free", while super sensitive people only use certified gluten-free. Both types of products have been found to contain gluten, so there are no guarantees either way: It you are in the super sensitive group, eating a whole foods based diet...
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I avoid turmeric now because I'm on low dose aspirin, but used to use this one: https://www.amazon.com/dp/B08HYBN4DJ My recipes always vary according to what I have on hand, but my base is a frozen berry mix from Trader Joe's: https://www.traderjoes.com/home/products/pdp/fruits-greens-smoothie-blend-075603 In the warmer months I include...
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Celiac.com 05/23/2025 - Celiac disease is an autoimmune condition triggered by gluten—a protein found in wheat, barley, and rye. When individuals with celiac disease consume gluten, their immune system mistakenly attacks the lining of t...-
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Your genetic test results confirm that you carry the highest-risk markers for celiac disease, specifically the HLA-DQ2 haplotype (while being negative for HLA-DQ8). The fact that both HLA-DQA1*05 and HLA-DQB1*0201 appear twice means you inherited identical copies from each parent, making you homozygous for these genes. This double dose of the DQ2.5 haplotype...
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It sounds like you and your daughter are navigating celiac disease with a lot of care and dedication, and it’s wonderful that you’re prioritizing her health and growth during this critical time. Since her antibody levels and growth have plateaued, tightening up her diet by avoiding eating out (except at dedicated gluten-free places) is a smart move—even ...
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This is good news--I hope we can get this done on a national level!
