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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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Your family’s story is both inspiring and ahead of its time! Making your home completely gluten-free in 1978—when awareness and labeling were so limited—was a radical act of love and protection for your son. The fact that your husband, a foodie, fully supported this decision speaks volumes about your family’s dedication. It’s remarkable how that choi...
- 4 comments
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- celiac disease
- cross-contamination
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Allergy Testing
Scott Adams replied to ARutherford's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Since gluten sensitivity or celiac disease could be a factor (alongside other potential allergens like dairy, eggs, or environmental triggers), getting proper testing is key. In Christchurch, you could start with a pediatrician or GP who can refer you to an allergist/immunologist or a pediatric gastroenterologist (if celiac is suspected). For allergy testing... -
Question about biopsy
Scott Adams replied to somethinglikeolivia's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your experience highlights a common frustration in celiac disease diagnosis—discrepancies between lab results, biopsy findings, and clinical symptoms. The "localized mild nodular mucosa" noted in your duodenal bulb could indeed be significant, even if the overall pathology was deemed negative. Nodularity in the duodenum is often associated with lymphocytic i... -
Probably the best Helminthic Therapy video I've seen
Scott Adams commented on dixonpete's blog entry in Pete Dixon
Except the topic of this site is celiac disease...how does the video relate to our topic here? -
Burning sensation when I wake up
Scott Adams replied to Zuma888's topic in Related Issues & Disorders
The burning sensation you describe—particularly upon waking or after exercise—could indeed be related to systemic inflammation, which is common in autoimmune conditions like Hashimoto's and celiac disease. Gluten exposure, even in small amounts, may trigger an immune response that exacerbates inflammation, leading to the achiness and burning you feel, es... -
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
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mystery gluten?
Scott Adams replied to AnneBSunflower's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance"... -
Gluten-Free Tres Leches Cake with Almond Flour or GF Flour Blend
Scott Adams posted an article in Mexican & Spanish
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- almond flour
- cake
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The Trader Joe's GF hamburger buns are the best!
- 13 replies
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- bread
- contaminated
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(and 4 more)
Tagged with:
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Your symptoms--all of them--are associated with untreated celiac disease and/or gluten sensitivity. I had many of them myself when I was diagnosed at ~25 years old--and it is interesting that you mentioned your eyesight improvement to 20/20, as I also had to wear corrective glasses at the time of my diagnosis, but after 2-3 years on a gluten-free diet I no...
- 9 comments
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- celiac disease
- celiac test
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This is an interesting case. A positive tissue transglutaminase (tTG) antibody with a negative endomysial antibody (EMA) and normal duodenal histology can present a diagnostic challenge, especially in an asymptomatic patient. While the absence of villous atrophy and negative EMA suggest that the likelihood of active celiac disease is low at this time, such...
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Old to diagnosis
Scott Adams replied to dominiqueccms's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Have you tried to start a gluten-free diet since your diagnosis in 2019? -
It’s great that you’re taking the time to research products carefully for your son with celiac disease—especially since accidental gluten exposure through skincare can be a real concern for sensitive individuals. Based on the ingredient lists you’ve shared, none of the products appear to contain obvious sources of gluten like wheat, barley, or rye derivat...
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While I don’t have a specific personal recommendation, there are several ways to find a skilled GI doctor in Tucson who specializes in celiac disease. Check the Celiac Disease Foundation’s Healthcare Practitioner Directory for listed providers in Arizona: https://celiac.org/about-celiac-disease/find-a-healthcare-practitioner/ Also, local healthcare sys...
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The white matter changes seen in celiac disease in the referenced study are likely multifactorial: Possibly linked to chronic inflammation, autoimmune activity, nutrient malabsorption, and brain hypoperfusion. Thiamine deficiency may contribute, especially in those with long-standing untreated celiac or poor dietary intake, but it's not the...
- 11 comments
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- brain damage
- brain fog
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Gluten-Free Churros: A Crispy Treat with a Celiac-Safe Twist
Scott Adams posted an article in Mexican & Spanish
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Newly Diagnosed
Scott Adams replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It's possible that your doctor wants you to do an endoscopy to confirm the diagnosis, and if that is the case that could be why they don't want you to go gluten-free before that procedure is done. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends... -
Yes, we've been tracking possible treatments for many years, and here is one of our more recent articles:
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Newly Diagnosed
Scott Adams replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): -
I'm not in any clinical trials, can I ask why you are so focused on this particular one? There are now several celiac disease potential treatment drugs undergoing clinical trials.