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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    Untreated celiac disease is associated with arthritis and other autoimmune diseases which can cause such pain. These categories have research articles on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fibromyalgia-and-celiac-disease/ https://www.celiac.com/celiac-disease/celiac-disease-amp-related...
  2. Scott Adams
    Understood, and with any positive blood test the usual next step is a biopsy to confirm celiac disease, and this would be true even if the tTg-IgA is negative.
  3. Scott Adams
    For someone with celiac disease who might have extreme villi damage the term "cross-reactivity" gets thrown around a lot. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an...
  4. Scott Adams
    This test was positive according to the original post, so the next normal step would be a biopsy: TTG IGG - 9 U/mL (0-5 range) @Brown42186 Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
  5. Scott Adams
    Do you eat outside your home, especially in restaurants, as this can be a source of cross-contamination. If you need to take dapsone still your diet may not be 100% gluten-free. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  6. Scott Adams
    In Europe I believe they also do not use the beef stock flavoring which contains hydrolyzed wheat in their French fry cooking oil.
  7. Scott Adams
    Here are some countries where gluten-free options have been introduced: Sweden: McDonald's in Sweden was one of the first to offer gluten-free buns. Norway: Gluten-free buns are available in Norway. Finland: McDonald's in Finland also provides gluten-free options. Denmark: Gluten-free buns are available in Denmark. Spain: Some...
  8. Scott Adams
    More information about "Hard Rock Cafe Customer Feels Mocked Over Celiac Disease"
    Celiac.com 03/12/2025 - A Hard Rock Cafe customer has claimed a server made fun of him for having celiac disease after he refused to pay for a meal containing gluten. TikTok user @youngparislive captured part of his uncomfortable...
  9. Scott Adams
    At the very least this seems like it could be non-celiac gluten sensitivity. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. If you want a formal diagnosis the next step would likely be an endoscopy, ...
  10. Scott Adams
    Your recent test results show an interesting pattern that may warrant further investigation. While your deamidated gliadin Abs, IgA result is within the normal range (0.9, labeled as "not detected"), your deamidated gliadin Abs, IgG is significantly elevated at 26.6, which is above the normal threshold of <15.0. This discrepancy could suggest a few possibilities...
  11. Scott Adams
    I'm sorry to hear you got glutened, and for many people who have been gluten-free for a long time it seems that they do get more sensitive and have worse reactions. Everyone is different in this regard, however. This article, and the comments below it, may be helpful:
  12. Scott Adams
    It looks like your tTG-IgA (tissue transglutaminase IgA) Blood Test for Celiac Disease was high, which could mean that you have celiac disease. Your doctor may want to schedule an endoscopy to confirm the results, and for this you would need to continue eating lots of gluten daily until that that is finished. Do you have any symptoms which led you to be tested...
  13. Scott Adams
    They do that in several countries in northern Europe as well, and they could do it here--I'm not sure why they don't.
  14. Scott Adams
    Welcome to the forum, could you please include the reference ranges for each test, as they vary from lab to lab...thank you!
  15. Scott Adams
    More information about "Gluten-Free Matcha Mochi"
    Celiac.com 03/11/2025 - Mochi is a beloved traditional Japanese treat with a history stretching back over a thousand years. Originally prepared for ceremonial purposes, mochi has since become a year-round favorite and a staple of Japanese...
  16. Scott Adams
    Most inactive ingredients in toothpastes in the USA do not include gluten. If you have concerns I recommend that you contact the manufacturer directly, or find a toothpaste that has "gluten-free" on the label, for example: https://sprinjene.com
  17. Scott Adams
    Most toothpastes are naturally gluten-free, but this article may be helpful:
  18. Scott Adams
    This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  19. Scott Adams
    Since nearly 40% of the population have the genes for celiac disease, but only ~1% end up getting it, a genetic test will only tell you that it is possible that you could one day get celiac disease, it would not be able to tell whether you currently have it or not.
  20. Scott Adams
    With NCGS there isn't villi damage, so it would not be detected via an endoscopy/biopsy. There also may not be high levels of tTG-IgA or tTG-IgG (sometimes they can be elevated, but in the normal range), but these blood tests may be slightly elevated or even high in people with NCGS: DGP-IgA and DGP-IgG (Deamidated Gliadin Peptide), but, you can still have...
  21. Scott Adams
    Do you happen to have the reference ranges for those blood tests, as they vary from lab to lab? Just the results don't mean much without those ranges. A gluten challenge would be the only way to get a formal diagnosis of celiac disease, and if the idea of eating lots of gluten for weeks sounds horrible to you, then you likely have either celiac disease...
  22. Scott Adams
    More information about "Is McDonald's Gluten-Free? A Complete Guide to Safe Menu Options (+Video)"
    Celiac.com 03/07/2025 - For individuals with celiac disease or gluten sensitivity, dining out can be a daunting experience. Fast food restaurants, in particular, pose unique challenges due to the high risk of cross-contamination and limited...
  23. Scott Adams
    I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t sh...
  24. Scott Adams
    Sorry but I don't have specific recommendations for doctors, however, starting out with good multivitamins/minerals would make sense. You may want to get your doctor to screen you for where you different levels are now to help identify any that are low, but since you're newly diagnosed within the past year, supplementation is usually essential for most celiacs...
  25. Scott Adams
    More information about "New Study Reveals High Risk of Digestive Cancers in Patients with Celiac Disease"
    Celiac.com 03/06/2025 - Celiac disease, a chronic autoimmune condition triggered by gluten ingestion, is widely recognized for its impact on the digestive system. Beyond its more common symptoms, the disease has been linked to an elevated...
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