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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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- celiac disease
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Welcome @LifeOfBryan, do you have celiac disease, and are you currently on a gluten-free diet? Currently this is still the only treatment, even though there are various medical treatment approaches in the works.
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There has always been a ZERO gluten down to the lowest possible level we can test minority, and currently there is a strong push for <10ppm as a standard. I fully understand why people might feel this way, but perhaps they need to be given a questionnaire where they also answer questions about how much they are willing to pay for a loaf of gluten-free...
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This isn't just about the cost of gluten-free testing, and it's more about the overall costs associated with everyone in the food an ingredient supply chain being able to maintain such low levels, which is quite expensive. Just look at the current cost of gluten-free foods--change the laws and cut the level in half--10 ppm--how can food manufacturers pass...
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Books about celiac
Scott Adams replied to Aya77's topic in Gluten-Free Foods, Products, Shopping & Medications
Shelley Case has written many books and has contributed articles here (but it's been a while, I think she retired years ago): https://www.celiac.com/profile/135164-shelley-case-b-sc-rd/ -
I agree, and have had a lot of high level contact over the years with companies that make gluten-free foods. While some consumers are clamoring for "ZERO detected gluten" to be labelled gluten-free, many companies are willing to stop putting this on their labels if it ever drops below 20ppm. To them, lowering levels just represents an increase in liability...
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Penzeys
Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
This is a thoughtful and careful way to approach a gray area that many of us run into with spices. What’s helpful here is that you took the time to clarify Penzeys’ internal practices rather than relying on assumptions or marketing language, and you laid out their labeling logic in a clear, transparent way so others can evaluate it for themselves. Fenugreek has... -
What you’re describing is actually very plausible, even if it isn’t talked about nearly enough. Celiac disease can have neurologic manifestations, and gluten exposure has been linked to tremor, ataxia, and other movement disorders in a subset of patients—sometimes referred to under the broader umbrella of gluten-related neurologic involvement. When glute...
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You’re not imagining this, and you’re not “overreacting.” Sensory sensitivity—especially to food odors—can intensify after menopause and in people with celiac disease, migraines, or neurologic involvement, and for some it can be a very real trigger. The problem isn’t that bakeries exist, but that public spaces like airports and medical facilities increasingly ...
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What you’re describing is, sadly, something many people with celiac disease recognize all too well—being questioned, dismissed, or mislabeled when you’re simply trying to understand and manage a condition that has real, lifelong consequences. Wanting documentation, clarity, and continuity of care isn’t “chasing” a diagnosis; it’s advocating for your own ...
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Happy birthday—and that’s a very reasonable question to ask. Yes, secondary hyperparathyroidism can absolutely be driven by malabsorption, especially in people with celiac disease, where low vitamin D and impaired calcium absorption keep parathyroid hormone elevated even after partial correction. Many find that PTH can lag behind vitamin D improvements for...
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Thank you for sharing this—your story is heartbreaking, powerful, and, unfortunately, far too familiar to many in the celiac community. Being dismissed, misdiagnosed, and blamed for symptoms for decades, only to later discover they were all connected to untreated celiac disease and malabsorption, represents a profound failure of the medical system. The p...
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Gluten-Free Chinese-Style Green Beans with Garlic and Peppers
Scott Adams posted an article in Chinese & Asian
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- asian
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You’re raising a very real and very well-documented problem, and you’re absolutely right to be frustrated. Medication labeling is a major blind spot for people with celiac disease, because unlike food, drug manufacturers are not required to clearly disclose the source of binders, fillers, or excipients—even when they may be derived from wheat. That puts ...
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- celiac disease
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nothing has changed
Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies c... -
Is it gluten?
Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.