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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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Seeking proper diagnosis
Scott Adams replied to Julianne101's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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It sounds like celiac
Scott Adams replied to Debstaats's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you are doing great on a gluten-free diet and see no reason to get a formal diagnosis of celiac disease, then it's perfectly fine for you to just stay gluten-free. In the Europe the current protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level... -
Low Carnitine?
Scott Adams replied to Deborah123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, low carnitine levels can sometimes be associated with celiac disease, especially in children. Celiac disease can lead to malabsorption issues, which might affect the absorption of various nutrients, including carnitine. Carnitine is important for energy production, and deficiencies can occur if the gut is damaged from undiagnosed or untreated celiac... -
Shaking/Tremors and Off Balance
Scott Adams replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's always best to get any chest pains checked out by your doctor, but as @cristiana mentioned, the other symptoms do sound like they could be related to the gluten, and the chest pains may be as well, but it's always a good idea to mention this to your doctor. -
While I understand wanting a formal diagnosis, it sounds like you will likely remain gluten-free either way, even if you should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal N...
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Newly dignosed Celiac
Scott Adams replied to Rubii's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The... -
Gluten-Free on a Budget: Affordable Options for Every Meal
Scott Adams commented on Scott Adams's article in Additional Concerns
We added "gluten-free soy sauce" to make this more clear.- 3 comments
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Histology results
Scott Adams replied to awright24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your biopsy results indicate several key findings that are consistent with celiac disease: Partial Villous Atrophy: This means that the villi (small finger-like projections in the small intestine that help absorb nutrients) are partially flattened. This is a common feature of celiac disease. Increased Intraepithelial Lymphocytes: This indicates... -
Test results
Scott Adams replied to Nicole boling's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It looks like the test specific for celiac disease is negative, but your immunoglobulin A is high. Did they do a total IgA test? This is usually done in case you are naturally low in IgA, which can cause a false negative result with your TTg-IgA test. An immunoglobulin A (IgA) test measures the level of IgA antibodies in your blood, but it isn't specific... -
Dry Heaving (Gluten Reaction)
Scott Adams replied to Jordan Carlson's topic in Related Issues & Disorders
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Top Brands of Gluten-Free Coconut Water
Scott Adams commented on Scott Adams's article in Gluten-Free Foods & Beverages
This is naturally gluten-free, even though it isn't labeled that way.- 3 comments
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3 month retest
Scott Adams replied to glucel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If your goal is to get a baseline reading without any outside supplementation in your system, then you could do this, however, I get my levels checked while I am actually supplementing to see where things are. You can have higher B12 levels, as this will nut hurt you, only if the levels are too low will this cause issues. -
Standardizing Celiac Disease Diagnostics
Scott Adams commented on Jefferson Adams's article in Diagnosis, Testing & Treatment
I believe that IgA deficiency is genetic and won't change over a person's lifetime, so if you are IgA deficient you'll always be that way.- 5 comments
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If your husband is 100% gluten-free going forward, any fertility affects caused by untreated celiac disease should disappear, it's very important that his diet is gluten-free. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
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Test results???
Scott Adams replied to Kkbug's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with @trents and your low total IgA means that your tTG-IgA would have been higher--and you already mentioned that it was a "weak positive." A weak positive is still a positive test result, so the likely next test would be an endoscopy to confirm celiac disease. This article might be helpful. It breaks down each type of test, and what a positive... -
3 month retest
Scott Adams replied to glucel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I believe you meant that your tTg-IgA levels went up even though you've been on a gluten-free diet, is that correct. If so, are you sure you understand the gluten-free diet fully? This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): -
High IgA Normal TT IGA
Scott Adams replied to haley630's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's too bad they didn't do a full celiac disease panel that included DGP-IgA and DGP-IgG (Deamidated Gliadin Peptide) tests. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. Approximately 10x more people have non-celiac gluten... -
Is Butter Gluten-Free?
Scott Adams commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
Oh I see, I guess only 2x reading glasses or a magnifying glass would help with that.- 4 comments
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