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Helen Vajk

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Helen Vajk last won the day on August 5 2024

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  1. icon KelleyJo reacted to a comment: FDA's Inaction on Gluten Labeling Fails to Protect Celiac Patients (+Video)
  2. icon t1mccar reacted to a comment: FDA's Inaction on Gluten Labeling Fails to Protect Celiac Patients (+Video)
  3. icon Scott Adams reacted to a comment: FDA's Inaction on Gluten Labeling Fails to Protect Celiac Patients (+Video)
  4. Helen Vajk started following What Parents Need to Know About Raising a Child with Celiac Disease (+Video) and FDA's Inaction on Gluten Labeling Fails to Protect Celiac Patients (+Video)
  5. Helen Vajk
    Amen. Even worse than the food labeling is the near-complete absence of medication labeling.
  6. icon Scott Adams reacted to a comment: What Parents Need to Know About Raising a Child with Celiac Disease (+Video)
  7. Helen Vajk
    Reared a gluten-free kid who is now doing great in his 40s. Some stress in earlier childhood, but by mid-high school had it all figured out. I heard a comment back then that gave me hope. "By the time a celiac kid reaches college age, he or she has developed a hundred ways to say 'No, thank you' and make it stick." The celiac kids end up knowing that...
  8. icon Scott Adams reacted to a post in a topic: Questions about Celiac
  9. Helen Vajk started following Questions about Celiac
  10. Helen Vajk
    I order gfJules all purpose gluten-free flour on line, find it excellent, makes a really good cornbread too, get asked to bring to pot-lucks (by non-gluten-free folks!) Freezing bread and taking out 1 slice at a time works. Also, there is Franz bread etc. on line, vacuum packed and shelf stable for a month. Best of luck, experiment and you will find a routine...
  11. icon Scott Adams reacted to a comment: Forced to Choose: A Father’s Battle Between Gluten-Free and Feeding His Family
  12. Helen Vajk
    Yes, gluten-free bread is harder to make and its flour are getting more expensive, and bread without gluten does not have the lasting power of regular bread. But bread is not the only staff of life! Reared a celiac kid from age 2 many years ago without bread. Discover corn tortillas. Hamburgers: do a lettuce wrap, tasty and healthier. Hot dogs - eat...
  13. icon Scott Adams reacted to a comment: Forced to Choose: A Father’s Battle Between Gluten-Free and Feeding His Family
  14. Helen Vajk started following Illinois Bill Moves to Protect Celiacs from Hidden Gluten in Drugs , Forced to Choose: A Father’s Battle Between Gluten-Free and Feeding His Family , No More Biopsies to Diagnose Celiac Disease in Children! and 4 others
  15. Helen Vajk
    I am celiac since age 50, but reared a celiac son diagnosed age 2 in 1978. There was no gluten-free bread then, and overall food labeling was incomplete. The upside was that all our kids ate only unprocessed foods, and my grocery bill was lower than it had been. Some good pointers: bread is not essential. There are healthy carbs with no extra gluten-free...
  16. Helen Vajk
    My son was diagnosed as celiac at age 2 in 1978. They did not have blood tests then, did not want to do a biopsy because of his excellent improvement with the gluten-free diet, the increased risk of a general anesthetic in small children (back then, no sevoflurane, no pulse oximeters, etc.). So, at age 12, the pediatric gastroenterologist, when asked to...
  17. icon Grlybrainiac reacted to a comment: Ensuring Medical Rights: A Recent Court Ruling in Phoenix v Amonette Sheds Light on Prisoners' Access to Gluten-Free Diets
  18. icon sc'Que? reacted to a comment: Ensuring Medical Rights: A Recent Court Ruling in Phoenix v Amonette Sheds Light on Prisoners' Access to Gluten-Free Diets
  19. icon Scott Adams reacted to a comment: Ensuring Medical Rights: A Recent Court Ruling in Phoenix v Amonette Sheds Light on Prisoners' Access to Gluten-Free Diets
  20. Helen Vajk
    Celiacs should also have the right to complete labeling of gluten presence in medications, and all essential medications should be manufactured gluten free.
  21. Helen Vajk
    Hard to believe, but unfortunately seems true. This kind of "mislabeling" is actually bodily assault for celiacs, consciously done for profit.
  22. Helen Vajk
    I do trust the stores I use to be gluten-free. However,I have gotten diarrhea after buying grocery store gluten-free bread, eventually check it out and tested negative for gluten exposure. Thern I found out on-line that some people get g.i. symptoms from xanthan gum. I think that explains why I was fine with my home-baked bread bit not with some store-bought...
  23. Helen Vajk
    Agree. Security is looking for possible plastique type explosives. Wouldn't be good for celiac PR if a destructive person got on board with a real or fake celiac letter.
  24. Helen Vajk
    Emirates (2 long flights to India from California) had excellent gluten-free meals, but I still had a stash of Kind bars for return, just in case. Lufthansa had a single dinner meal that was correctly gluten-free and also low sodium and vegan and something else that I forget, and was unsurprisingly taste-free as well. The problem was that in the morning...
  25. Helen Vajk
    Not a fun experience, my sympathies. FYI I've done over 30 short trips with medical missions to various destinations. Finding gluten-free food in such countries as India & Bangladesh was surprisingly easy. Latin America is the home of corn tortillas, lots of naturally gluten-free food. Even Ethiopia was good - they do have Italian cuisine/restaurants...
  26. Helen Vajk
    Dreadful. The hotel could surely have done better with what they had on hand. They must have had eggs, scramble in a clean pan. Bake a potato, etc.
  27. Helen Vajk
    It is preposterous that we PAY a pharmaceutical company for medications, while not knowing if it will make us sick. And it would not cost a fortune for them to fix this.
  28. Helen Vajk
    The pharmaceutical industry makes a profit better than the food industry. So why is there any excuse for not knowing and testing whether the 8 main allergens are in the medications that we are PAYING FOR? Some years ago I had to get anti-malaria meds before a medical trip to West Africa. Several email conversations with GlaxoSmithKlein not helpful. Finally...
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