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Helen Vajk

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Helen Vajk

  1. Reared a gluten-free kid who is now doing great in his 40s. Some stress in earlier childhood, but by mid-high school had it all figured out. I heard a comment back then that gave me hope. "By the time a celiac kid reaches college age, he or she has developed a hundred ways to say 'No, thank you' and make it stick." The celiac kids end up knowing that...
  2. I order gfJules all purpose gluten-free flour on line, find it excellent, makes a really good cornbread too, get asked to bring to pot-lucks (by non-gluten-free folks!) Freezing bread and taking out 1 slice at a time works. Also, there is Franz bread etc. on line, vacuum packed and shelf stable for a month. Best of luck, experiment and you will find a routine...
  3. Yes, gluten-free bread is harder to make and its flour are getting more expensive, and bread without gluten does not have the lasting power of regular bread. But bread is not the only staff of life! Reared a celiac kid from age 2 many years ago without bread. Discover corn tortillas. Hamburgers: do a lettuce wrap, tasty and healthier. Hot dogs - eat...
  4. I am celiac since age 50, but reared a celiac son diagnosed age 2 in 1978. There was no gluten-free bread then, and overall food labeling was incomplete. The upside was that all our kids ate only unprocessed foods, and my grocery bill was lower than it had been. Some good pointers: bread is not essential. There are healthy carbs with no extra gluten-free...
  5. My son was diagnosed as celiac at age 2 in 1978. They did not have blood tests then, did not want to do a biopsy because of his excellent improvement with the gluten-free diet, the increased risk of a general anesthetic in small children (back then, no sevoflurane, no pulse oximeters, etc.). So, at age 12, the pediatric gastroenterologist, when asked to...
  6. Celiacs should also have the right to complete labeling of gluten presence in medications, and all essential medications should be manufactured gluten free.
  7. Hard to believe, but unfortunately seems true. This kind of "mislabeling" is actually bodily assault for celiacs, consciously done for profit.
  8. I do trust the stores I use to be gluten-free. However,I have gotten diarrhea after buying grocery store gluten-free bread, eventually check it out and tested negative for gluten exposure. Thern I found out on-line that some people get g.i. symptoms from xanthan gum. I think that explains why I was fine with my home-baked bread bit not with some store-bought...
  9. Agree. Security is looking for possible plastique type explosives. Wouldn't be good for celiac PR if a destructive person got on board with a real or fake celiac letter.
  10. Emirates (2 long flights to India from California) had excellent gluten-free meals, but I still had a stash of Kind bars for return, just in case. Lufthansa had a single dinner meal that was correctly gluten-free and also low sodium and vegan and something else that I forget, and was unsurprisingly taste-free as well. The problem was that in the morning...
  11. Not a fun experience, my sympathies. FYI I've done over 30 short trips with medical missions to various destinations. Finding gluten-free food in such countries as India & Bangladesh was surprisingly easy. Latin America is the home of corn tortillas, lots of naturally gluten-free food. Even Ethiopia was good - they do have Italian cuisine/restaurants...
  12. Dreadful. The hotel could surely have done better with what they had on hand. They must have had eggs, scramble in a clean pan. Bake a potato, etc.
  13. It is preposterous that we PAY a pharmaceutical company for medications, while not knowing if it will make us sick. And it would not cost a fortune for them to fix this.
  14. The pharmaceutical industry makes a profit better than the food industry. So why is there any excuse for not knowing and testing whether the 8 main allergens are in the medications that we are PAYING FOR? Some years ago I had to get anti-malaria meds before a medical trip to West Africa. Several email conversations with GlaxoSmithKlein not helpful. Finally...
  15. Almost all See's are gluten-free, details on their website. Almost all Leonidas.
  16. The training is not once and done. All new staff have to be trained, and refresher training is also a must. As a celiac for many years, I would prefer to pay slightly higher prices than to go back to no options for eating out.
  17. Like anywhere else, you have to try them. Life is Sweet was started by a celiac family, does regular cafe meals and specialty baking, unreal though expensive birthday cakes. Flawless on the gluten-free front. Same for Mariposa. A local gluten-free group, especially if on-line, can be a big help. Also, the motivation for gluten-free diligence is created...
  18. The main Mariposa bakery in Oakland is basically the Shrine of gluten-free baking. Salmon sandwich on a fresh crispy baguette. . . but we live beyond the tunnel, so closer for us is Life is Sweet in Danville, also awesome.
  19. Just hosted our 50th anniversary cruise with Hornblower on San Francisco Bay. Salad (no rolls) and both entrees, chicken & veg, were completely gluten-free. They couldn't do a gluten-free dessert (NY cheesecake) but I brought 6 gluten-free cupcakes from a local completely gluten-free cafe. The food service expressed concern about cross-contamination...
  20. Our youngest son was diagnosed as celiac in 1978, age 2. He had to be so disciplined at school and at friends' houses, that I felt strongly he should be safe in his own home. My husband fully agreed, and the other kids didn't care as long as we had lots of potatoes, chili and ice-cream. And all processed food was out, a health benefit to them. So when...
  21. Depends where you travel. I've done well in Peru, Guatemala, Colombia - a lot of the cuisine is freshly made and mainly corn rather than wheat based. Bring your info card, and learn to ask in Spanish - usually very helpful people. Thailand, Bangladesh and India were also easy, and most of Europe is exceptionally well prepared, easier than in the US. China...
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