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itchygirl

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by itchygirl

  1. itchygirl
    Man, if I'd have tried to eat sprouted seeds back when I was recovering I would've been stuck to the toliet like that woman in the news If you'd like to avoid the soy in Ensure (although I've never had any problems with minimal amouts of isolated soy protein) try Boost or Boost Plus. Have you tried baby food?The Baby food rice cereal with formula in...
  2. itchygirl
    keratosis pilaris was one of my many, many incorrect rash diagnoses, along with lichen planus and shingles.
  3. itchygirl
    The ones you have to avoid are the wasibi flavored (wheat containing soy sauce, clearly labeled) Have you tried the blue diamond nut thins yet? Those things are delicious Open Original Shared Link
  4. itchygirl
    Maybe the phone guy was trying to uh, "digest" this... Open Original Shared Link
  5. itchygirl
    Diarrhea can cause a falsely low fecal elastase-the stool should be formed for the test to be really accurate. I hope you find a GI you can work with, I went through eight before I found one with a brain. Here is hoping you have some answers soon!
  6. itchygirl
    I get the shots. Much easier than trying to take it orally. I do have a kind of "rust" spot on my rear end where I get the iron shots, though. That seems to be the only drawback that I have noticed.
  7. itchygirl
    My Mom has glomerular nephritis. This is associated with celiac Open Original Shared Link (link from this site) https://www.celiac.com/articles/1171/1/Celi...ease/Page1.html If you contact the National Kidney Foundation, they will send you a ton of helpful material. 1-800-622-9010
  8. itchygirl
    You can drink 5-6 ensures a day. The only vitamin you have to worry about the upper limit on in Ensure in A and my dietician said I'd have to drink 8 a day, long term for that to be a problem. If you're drinking over 5 a day just skip the centrum. Pancreatic digestive enzymes come in a handy powder you can also mix with applesauce. Little kids with cystic...
  9. itchygirl
    At any rate, a trial of a the gluten free diet can't hurt her any. Its perfectly nutritious. I had failure to thrive, was developmentally delayed-and now have chronic long term issues (osteo, vision problems, liver and pancreas issues, peripherial and autonomic neuropathy...) Prior to getting a proper celiac dx, I've been diagnosed with everything but the...
  10. itchygirl
    There are many.many neurological complications associated with celiac disease. The symptoms can be so bad in some individuals that celiac has been mistaken for mad cow diesease, for example. Open Original Shared Link You can have both RA and celiac. I have Sjogren's and celiac. Hopefully, if that is the case, a gluten free diet will reduce your symptoms...
  11. itchygirl
    What size chocolate bunny are we talking here-four ounce? Two pound? Do you still have your gallbladder? If you do that should be enough fat to trigger a nice gallbladder attack. Can you see your doc tommorow if this continues? Celiac and gallbladder disease...and big huge chocolate bunnies... From this very site https://www.celiac.com/articles...
  12. itchygirl
    Sorry, I misread your first post and thought you'd been working with this doc for two years already. One of my dear friends is a naturopath and she generally has folks sorted out inside of six weeks . Coconut water is an excellent choice. Squash, water chestnuts, artichoke, pumpkin, pumpkin seeds, hydrolized amino drinks (hypoallergenic sources of protein...
  13. itchygirl
    How are your Vit. D levels? When my D is really low I get the worst leg pains, cramping.... also, has your doc checked you for other causes of leg pain (blood flow issues, arthritis, autoimmune disease...)
  14. itchygirl
    As usual, I totally agree with Ursa. Your daughter could be misdiagnosed. The blood work can have false negatives. Have you considered a nice family gene test?
  15. itchygirl
    The mental effects of celiac can be so bad they have been mistaken for the fatal brain disorder Creutzfeldt-Jakob (your DH should accept this, its from the Mayo Clinic ) Open Original Shared Link as everybody said, lots of info online. Oh yeah...and here is a link on Creutzfeldt-Jakob (mad cow disease) Open Original Shared Link
  16. itchygirl
    If you can't digest fat, why don't they have you on digestive enzymes-naturopaths are usually better about prescribing digestive enzymes than the mainstream morons, I mean doctors If you literally can't metabolize fat, then a good alternative practioner should have discussed MCT oil, which does not require digestion to be absorbed. This comes in both...
  17. itchygirl
    Considering the enormous variety of neurologic complications linked to celiac, nightmares might be expected http://www.csaceliacs.org/library/neurocomp.php
  18. itchygirl
    I don't eat oats but.... Open Original Shared Link
  19. itchygirl
    Don't give up yet.... I just used Pamela's bread mix, altered the sweet bread recipie to use honey in place of the sugar (reduce liquid by 2 T), steeped saffron in the milk and added another egg yolk....Baruch atah adonai, eloheinu melech ha'olam, hamotzi lechem min ha'aretz-I'd swear it was Challah....I can't tell you how it is after a while out of the...
  20. itchygirl
    Hope you have a great trip. I really enjoy reading your posts
  21. itchygirl
    I'm 87 lbs-the doc looks at me and goes-"you need to stop losing weight" YOU THINK! Then there was the gastro who told me it was OK to live on enteral formula for the rest of my life....
  22. itchygirl
    I have a good friend who has Phenylketonuria Open Original Shared Link watching her deal with her diet (and drink that nasty stuff she has to drink) really helps put my dietary issues into perspective. Plus, if people started "poor thinging" me I could push her to the front Not that that's ever happened. People are usually so excited to actually meet...
  23. itchygirl
    What does your doctor say about the leg swelling? And the thirst? Stuff with those symptoms (diabetes, kidney failure, congestive heart failure) are nothing to mess around with....
  24. itchygirl
    I dunno. That formula depends on Protease to denature the gluten protein. I take 120,000 IU of Protease with each meal, and its never helped with gluten symptoms.
  25. itchygirl
    Hormel shelf stable dinners are quite zap able Open Original Shared Link You'll generally just find me with my face in a bag of their pepperoni, however.
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