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GLUTEN FREE CUSTOM SETTING:

To set the Gluten-free setting, make sure

that it is on the Homemade Cycle. Put the mixture into the baking pan.

Step 1: Press the CYCLE key, it should say PREHEAT. Then hit the TIME key

until it shows :15 on the display.

Then press the CYCLE key twice to proceed

to the next cycle. It should be KNEAD, press the TIME key until it is shows

:30 on the display, then CYCLE key twice to proceed to the next cycle.

Step 2. The next cycle should be RISE 1, make sure that it is off, then

press the CYCLE key once to the next cycle. Make sure Rise 2 should also be

off, then press the CYCLE key once to proceed to the next cycle.

Step 3. When on the RISE 3 cycle, press the TIME key until it is shows :55

on the display, then press CYCLE key twice proceed to the next cycle.

Step 4: Then in the BAKE cycle, press the TIME key until it is shows :55 on

the display, then press the CYCLE key once.

Step 5: Press the START/RESET button, make sure that it only says 2:35 on

the screen. Then press the start button until red light is on and you're

set.

I have not had gluten-free bread for about 6 months. I fail almost every time I make it and do not like store bought. Yesterday, I had such a craving for bread I went to the store and bought Bobs Red Mill Bread mix.

Do you hand make it or put it in the bread machine? My grandma uses her bread machine to get it all mixed and finishes baking it in the oven

There doesn't seem to be one single flour that will yield a decent bread. They should be used in combination. I use millet flour as one of many. IMO it is much more preferable than rice flour for both texture and taste.

As for a "medicine-like" taste, I'm not sure what you mean. It may be one or more other ingredients you are using, and not the flour. However, gluten-free breads simply aren't going to taste exactly like those made with wheat. I wouldn't say they taste bad, just different. Personally I like the heartier, whole grain breads. Even when I was easting gluten, I didn't like "white bread". So I may not be able to help you if that's what you're looking for.

I like the heartier breads too. Do you a favorite whole grain/hearty bread recipe?

I read in a gluten-free book that Rice Krispies and Corn Flakes are ok for Celiacs. But the ingredient list says Malt Flavoring, which is listed under the "foods to avoid list." Anyone know?

Also, I might be getting anal and a little overboard, but are canned vegetables that list spice ok? i bought crushed tomatoes to make pasta sauce and it has spices listed. It's tomatoes with garlic, and basil I think. Thanks

I am having some troublel finding millet (not the flour) and whole kasha (roasted). Our local health food stores carry both, but they are in bulk bins, which I was told can cross-contaminte. Do you know of any good websites that carry millet and kasha? Thanks!

((HUGS))

What was the basis for her FTT diagnosis?

Have you noticed whether any specific foods seem to worsen her symptoms? What are her favorite foods/drinks? What foods/drinks does she dislike?

You mention duodenal ulcers, so I assume there is something awry. But what does your mommy instinct tell you? Is she a sick kid, or just a little/skinny one? How is her development (speech, motor)? What about her overall demeanor? Cheerful, active, playful? Tired, quiet, moody? Kids can be a handful when they're between 1 and 2, because their desires are bigger than their abilities, but there's also a point at which you can say, "Okay, this just isn't normal." (Oops, I see you've answered some of this in a post a few up. I'm curious to know how/if allergies have been evaluated as a possible cause...have you seen a pediatric allergist?)

When she had her biopsy, was she also evaluated for eosinophilic disorders? More info on those here: Open Original Shared Link

Has she been tested for food and environmental allergies? If so, which types of tests? (IgE, IgG, skin testing)

Good luck and many hugs to you and your daughter!

Her FTT diagnosis cam at 12 months, she had fallen off the growth charts. She has been on enzymes since then and she's 21 months and weighs 21 pounds, whiich isn't bad. She was 18 pounds up until January.

Her demeanor goes from one mood swing to the next.

She has an allergist she sees. She has seasonal allergies and a severe egg allergy.

I don't know if she was tested for the esoinophilic disorders, I will call and ask.

Her poops range from 2 one day, to 7 the next. Some times hard, sometimes runny, sometimes normal.

Her skin has round patches like excema and she bruises easily, but her CBC's are always fine.

I think that's about it.

Speaking as a scientist rather than as a mom, there's simply not enough information in this thread to form any opinion as to whether or not this child has celiac disease or gluten intolerance.

The symptoms described (behavior, belly distension, skin issues, FTT, frequent stooling, low muscle tone) fit pretty darn well with celiac, but they also fit with other possibilities too.

And believe it or not, there are other conditions that mimic the damage celiac dz can cause microscopically, and many of them are not uncommon in young children with a FTT presentation. Here's a link to an article that has a brief mention of this subject: Open Original Shared Link. Read the section at the end titled "Differential Diagnosis."

If her blood screen was positive and biopsy inconclusive, that would probably be enough for me as a parent, and quite possibly enough for me as a scientist. But the original poster said the initial celiac screen was negative. That's not at all surprising, given her age, but it leaves a lot of room for doubt.

The comment from her gastroenterologist that the biopsy was not quite normal, that there was some damage, is not enough to conclude that she should be on a gluten-free diet. In this situation, I'd want to go over the pathology report point-by-point, ideally with the gastroenterologist. I'd want to know the details and Marsh scores of each slide evaluated. Was there an increase in intraepithelial enterocytes? If yes, has H. pylori been ruled out as a possible cause? Is there increased cellularity in the lamina propia? Is there any degree of villous atrophy and/or crypt hyperplasia? If I wasn't satisfied with that conversation, I'd ask for a second pathologist to look at the slides and provide a second opinion.

Now before any of you get upset, let me make it clear that I certainly wouldn't discourage this parent from putting her child on a gluten-free diet. Heck, I recently put my own two year old on a gluten-free diet, and didn't bother to pursue diagnostics first.

But as this child is already being seen by specialists, going gluten-free without trying to get more answers first might cause friction with her caregivers. It is worth a phone conversation with the GI, at least. No one needs permission to go gluten-free, and I certainly wouldn't let a caregiver prevent me from doing what I as a parent feel is best. But in the spirit of working cooperatively with my child's medical specialists, I'd want to give them a head's up in case they would prefer to order additional testing before a dietary change is implemented.

The possibility of an eosinophilic disorder should be discussed specifically, as they are much less rare than previously thought. There's a whole subforum on eosinophilic disorders over on Open Original Shared Link, and the small annual fee to access the forums is well worth it just for the recipe database. If she hasn't yet been tested for food allergies and/or intolerances, that's another major oversight. A trip to a pediatric allergist would be another reasonable course of action, and again, Kids with Food Allergies is a great resource for information on testing and treatment.

WOW. LOL I have no idea what you are talking about. Alot of that was over my head, but I will tell you the limited info I know. First let me say thank you everyone for trying to helo me. I'm so confused!

She had an endoscopy due to bloody stool. They found ulcers and also decided to do the celiac biopsy while they werre in there. i would assume they checked for H. Pylori. let me describe what the 2nd GI said about her biopsy. this is verry layman's terms so forgive me. Apparently a normal biopsy should have nice rounded peaks. the positive biopsy looks like squared off peaks with dots around them. does this make sense? anyway, faith's biopsy was a combination of rounded peaks with squared off peaks.

So, yes her sympoms fit other things. She was already tested for CF numerous times and we are awaitng Shwachman-Diamond Syndrome tests. She was diagnosed with Pancreatic Insufficiency last year after a fecal elastase test was very abnormal. Well, last week her latest elastase was normal!!! I'm like what???? So now I took her off the enzymes she ws on, becasue I don't like medicating if not necessary. I jjust feel so confused. I've had to fight her GI just to get where we are. that's why we went to the new GI yesterday, so he was actually our second opioion about the biopsy.

oh, one more thing. she has a severe egg allergy. they did the skin test for wheat too. it was neg. does that mean anything?

My daughter had her biopsy at about age 2. It came back "inconclusive". The only positive is that she had a gene for Celiacs. The short version is that someone finally said the right words to me "a pregnancy test is not inconclusive. You are either pregnant or not." Same with Celiacs. The "inconclusive" or "inbetween" result means they could not rule out Celiacs. That is usually the goal of testing. Rule it in or out. Since they could do neither, consider doing the gluten-free/CF diet for a few months. My daughter was close to 2.5 yr old when she finally did a gluten challenge. Within a week there were small changes. Then the starvation hunger went away and the poops became controlable. Finnaly an accidental glutneing and wham everything came right back with a vengance. She is a Celiac. That is all the testing I needed. She is growing, gaining weight, behavior is back to normal ranges, etc.

So I would say that you have done everything you can for a true medical diagnosis and you couldn't get one. Now try the gluten-free/CF diet for a few months. You will probably see drastic differences pretty fast if she is a Celiac. Be sure to be 100% gluten-free/CF for the challenge.

Good luck! Normally you don't hope for a disease, but I hope Celiacs is the solution to her problems. It is livable, doable, and no daily meds or side-effects.

Also, let me know if you need some food ideas or help getting started on this diet for a toddler.

Thanks. I understand about the hoping part. We've been at this since June of last year. Being told that she could possibly have serious, life threatening disorders and getting nowhere with the testing has been too much. It got to where I just wanted an answer, a name to what is wrong with her. She's so skinny and has an ethiopan belly, that she looks odd. Her skin gets yucky sometimes. She poops a lot, she won't grow. She has no appetitite. She has low muscle tone. And she is the meanest little thing sometimes. I have never seen such a strong-spirited, tantrum throwing, biting chunks of skin child! I just want to know so I can take care of her.

Not exactly sure what the doctor means, but she either has celiac or she doesn't. So if it's "in-between" I'm guessing there might have been slight damage in one spot or not enough damage that the doctor wanted to diagnose her. Many doctors feel that the gluten free diet is just too hard, there's no way they want to "sentence" you to a life of not eating gluten! [Even though I would argue that sentencing someone to a life without gluten is the humane thing to do.] I would go gluten free right now since it seems highly likely this is the problem. It's certainly worth a try with the health problems you've had.

You should be able to go into the doctor and get the films/slides from her biopsy and have another doctor read them if you're looking for a better explanation from a doctor on what "in-between" means. But if it were me, getting her slides re-read is a far as I'd go in pursuing a diagnosis. I wouldn't bother with an additional biopsy - you'll know if gluten free is right once you do it. Good luck.

He said she has damage, just not as much as you normally see in a celiac biopsy. what do you mak of that? i'm really confused, because he was our second opinion.

Hi. I'm new here. I am at my wits end and exhausted. My daughter Faith is 20 months old. Last year on her 12 month check-up, they labeled her Failure To Thrive. Since then we have been on a roller coaster of specialists and diagnostic testing. We did the whole Cystic Fibrosis thing. Negative thank God. For the last several months we have been on the Shwachman-Diamond Syndrome ride, which is very scary. We went to a new GI today who dropped a bomb: Faith's biopsy from last year was not normal as her old GI said. It is "in-betwee" and inconclusive. What does that mean? She had the biopsy at a time when she had zero appetite and went days without eating due to duodenal ulcers. Also, she had a Transglutamase antibody IgA test at 13 months old, which was negative. What are the chances it has been Celiac this whole time? Should I just go ahead and start a gluten-free diet? I'm very confused and hate to put Faith through another biopsy, as she's been through so so much testing already. Thank you