LuvMoosic4life

jewles.....what may be happening is Celiacs have a tendency to have insufficient pancreatic function, which will make it very hard for you to completely digest meat.

Would this be why I get a nawing, aching pain just to the right of my stomach after I eat too much or too much of something high in fat???? I'm not diagnosed celiac, but I am convinced I have it....

thanks!!! Yeah, my mom is thinking that my reproductive problems have been causing all my digestive problems this whole time....either way, I'm still avoiding gluten given the amazing changes I've seen! the positive definitly outwieghs the negatives.

So I saw my primary doc. He referred me to a G.I and a gyno because I have probs in both those ares since going gluten-free. Now my gyno ran some hormone tests on me and referred me to another place to get a transvaginal ultrasound to see why I lost my "friend" and am in discomfort/ horrible mood swings, and constipation.

My G.I appt. is before the ultrasound. I am not diagnosed celiac and I really at this point dont want to go back to eating gluten to find out...I'm REALLLY hoping the G.I doc is understanding of me b/c I still have digestive problems, just nothing like before!!.... I get the sensation to go to the bathroom, but it wont come out!!! it feels like there is something blocking it, even when I take a laxative.....and get to the point of D. I feel it right there, but it gets stuck at one point...... SO I'm wondering if all my problems are linked from reproductive problems (maybe something like endometrieosis growth???) or just strictly digestive.

This all started since going gluten-free. I would rather have the problems I have now than what I had before. lol. BUT STILL, I'm just going crazy trying to figure out whats going on.

Anyone else experience something like this??

it isnt helping that my family is still obbessing over the fact that I wont be able to eat all the same foods at holidays and gatherings....I keep reassring them I can make a gluten-free alternative to everything and anything, but they say "yah, its just not the same" GRRRR!!!!! I wonder sometimes if I am dealing with this better than them. They support me in the fact that I found what m problem is, but they arent supportive of the change...so this makes me feel like they arent really supportive AT ALL!!!!! I started crying trying to explain this to my mom, so I'm hoping she mmust realize I'm not joking around, but she didnt react emotionally to me crying, which makes me just want to move far FAR away from family and just start a new life, which is exactly what I have in mind for after college......

rant over n' out!!

If Stevia ever comes down in price, I would perfer that over Splenda (well assuming it tastes good, not tried it yet) but at OVER three times the cost of Splenda, and phemonily more expensive then raw sugar I am not willing to consider it yet.

Xiotol (how ever its spelled) is not carried in any of my local stores, so dunno how tis priced.

if you buy a bottle of clear liquid stevia by "sweet leaf" (some other brands add othe things like alcohol so I stay away from them) it goes a lot father than a box of splenda its like $8 where I live. I would rather spend a couple extra bucks for something more natural....

thanks for the replies.

I may try them just ONE more time down the road when I know I'll be home and not doing anything. I didnt get sick for weeks, but had D for hours, just one day...I went back to my constipated self the day after its like my body instantly rejected them....

I was excited to buy bob's gluten-free oats. I got the steele cut oats.

The first time I tried them I got gassy and had some gurgling...wasnt dure if it was the oats or something else, so I waited a couple weeks and tried them again today, differant reaction : I got D for the first time in like 3 or 4 months!!! Not to be graphic, but it came out yellow and foamy!

I used to eat oatmeal every morning for so many years. Initailly when I went "gluten-free" and dint know that oats were a "no no" I was still eating them and noticed they didnt bother me as much as wheat, but once I took them out of my diet, thats when my symptoms REALLY disapeared. I guesss I just can't tolerate oats. I actually didnt mind the D too much since I've been dealing with constipation...(isnt that a horrible thought?) lol.... but I'm just glad I had off from work today- the cramps were not very friendly!!

thanks. well since I am not eating gluten I figured that any blood work is useless... or is there something I'm missing?

I'm also wondering if a biopsy would still show damage after being gluten-free for 4 months. I know intestines can heal fast, but judging by my symptoms, I find it hard to believe that villi damage would be completely healed after this long gluten-free.

thanks everyone

It takes a while for celiac intestinal damage to heal.

If this is true, does anyone think that damage would still show up in a biopsy after 4 months gluten-free? I know there is the factor that damage could be anywhere in the intestine, and not where they take the sample.....but I am also in the dilema to get tested. I am seeing a g.i doc in a few weeks, which I dunno if it is really worth it, but I do have other problems (probably related to celiac) that I think I should see a g.i for anyways, testing or no testing.. plus there is a history of digestive cancers in myf amily.

One suggestion, you could contact your local support group.

wishing you better heath...

I think I might do that. it's just such a drive to get to where they meet. I wasnt sure if I need an official diagnosis to be involved...

I just need to get some thoughts off my chest with people who understand....family just doesnt, especially with self diagnosis...

I find myself thinking about gluten intolerance way too much, and my mind goes in circles. Sometimes I wonder if maybe it is all in my head. I read the symptoms of celiacs on here and although I've been through my share of being sick, I havent had it half as bad as some people. I'm the type of person that will keep pushing themselves and put a mask on pain. I've become very good at taking pain since I was younger. The past few years have been a roller coaster ride for me. As i sit here I often wonder if I have taken the gluten thing too far, if maybe I have become OCD because it seems my friends have all backed away from me ( but then this could all be in my head, a tendancy I have in all parts of life).

I started out just by avoiding bread, pasta and obvuios gluten things, I even found that white bread didnt bother me as much as wheat....but that was before I knew about gluten. I did feel a great amount better gluten-light, but I was still getting gas problems and bloating, just not as bad. When I learned more about what gluten actually is, I decided to just drop it altogether, read every label, and strictly go gluten-free, avoid CC and all......the results were amazing, and since then I dont want to even touch the evil substance.

I keep wondering when I am going to get sick again, but then realize (knock on wood) that it has been a record for me, that since going gluten-free I havent gotten sick in 4 months. back in my gluten days, before I started the whole gluten-free thing, it just expected to crash and burn every couple of months (usually with a sinus infection or some other viral or bacterial infection that left me bed ridden, along with horrible D and gas). I almost at times wanted to get sick because I felt so run down, and being sick would mean I would have an excuse to lay around and do nothing, relax, and eat nothing but chicken soup, gingerale and applesauce. isnt this horrible? I mean there were times where I would be puking and going D at the same time!!!! but its true... I would get sick, recover, get better and then the cycle would start all over again, only my getting sick seemed to start happening more frequently, like down to once a month and more intense each time.

My main accute problem on gluten is just REALLY bad gas and bloating, to the point of sometimes having to lay down in pain, not wanting to go out anywhere.....then D, which has been a common occurance for me my whole life. I thought having D 2 or 3 times a week was normal.....then I got to college and realized my thoughts and daily activities were all revolved around my digestive system and my gas problem. I would make plans ahead of time according to when I knew I would be really bloated with gas ( a lot of my problems were 10 times worse befoe my period). I would avoid eating before going out or certain events, only to have my symptoms sneak up on me after having a beer or eating at a resturant with friends, I wondered how every other person could just go out and not have to worry about gas, bloating,D, C and cramps, it made me so angry, and it wasnt something I could just openly talk about b/c it is commonly an embarrassing topic.........and then I wondered if maybe everyone is like this and is just hiding it really well like me?? it couldnt be....

It took me 7 years of this constant battle to have it sink into my head that what I was going through was not normal. When I learned about celiac disease I wanted to get tested, but my current stautus with my insurance and not having a doc at the time didnt allow me, so I started the gluten-free diet alone. I felt as if it was the greatest thing ever to come my way, like by eating gluten-free foods I was curing myself, clensing my body with positive and light, I just felt so great, it had to be too good to be true....and then I found out the down side : people not being supportive, the lack of awareness about celiac. I also felt that in a way, I was meant to find out about this disease so that I could spread awareness to people ......but then I think WHY ME? my life always seems to be 10 times harder than everyone else, and then this came along.

A few months later, today. I am not feeling so great again. My digestive system feels out of wack and C is not my friend....but I'm still not anywhere near my old self..... I've had ups and downs since going gluten-free. I know it is the best thing for me, but then there are days where I wonder. Even though I had some pretty bad days when I was on gluten, there were days were I had no sypmtoms at all. There are also times where I challenged myself with gluten since going gluten-free and didn feel effects, but then there were times I got really sick....I just wish I knew people in person that have gone what I went through....the interent and this web site are great, but it would be nice to at least have a friend in real life to talk to and go out, do normal things without constant questions about what i can and cannot eat....this is really hard to go through when you are alone in the sense of the people surrounding you . I know I'm not alone inthe world with this.....but yeah....you get my point.....if you read this far

If it is debilitating you to the point where you cant perorm daily activities, I would just stay gluten-free and cancel the biopsy, you know whats best for you. If you think you can stick it out (depending on how bad you want the biopsy and official diagnosis) I would say go through with it....but there is always the risk of a negative. I will be in youir shoes soon since I am going to a G.I doc for the first time. I know how frustrating this is, knowing that gluten makes you sick, but yet everyone around you seems not to be believing and supportive unless it is confirmed by a doctor...at least this is what I am going through. I'm tempted to go back on gluten and get tested out of anger, but then that isnt healthy either It would almost be like slitting my wrists...

I menioned this in another thread, but not sure if anyone saw it.

I am not on gluten and told my doctor my symptoms. He understands I need to be on gluten to get positive results but still ordered a test for celiac when he took my blood, the sheet he gave me says the test is "celiac disease w/o gliadin" ......I'm confused. I thought the whole purpose of the test is to check for antiobody to gliadin. I'm thinking this is just a gene test?

does anyone know what this is, or does he not know what he's doing? LOL

I KNOW!!!!

I stopped in. The chickens do not contain any gluten ingredients, although if you are extremely sensitive dont eat them, there is an allergen warning on the bottom stating that CC may be possible b/c of shared preparation areas, so there is even a chance of soy CC or other allergens ( I cant rememebr exactly what it said). I bought the chicken anyways because I was STARVING. I didnt have any horrible problem, although I did feel a bit gassy....it may have been something I ate that day also...but it wasnt anything like a glutening...

I went to the doc finally! I decribed to him everything I've been going through, but didnt bring up celiac (purposely) to see if he would understand or have knowledge on the matter. Luckily he DID and ordered a celiac panel (even though I told him I am not eating gluten) the test he ordered said "celiac disease w/o gliadin" does anyone know if that is just a gene test?? or does the test he ordered mean nothing since I'm not eating gluten?? I'd really like to know...

anyways, he said my symptoms are a cross between IBS and Celiac ( which i figured he would say) and reffered me to a good G.I doctor. The only thing that made me mad is he said all I have to do is eat one piece of bread before a biopsy and it will wipe the villi out ....YEAH RIGHT!!!!!! if only it were that easy!!!! but at least he brought up celiac, unlike all the doctors in the past I've had just said I'm too young for the problems I have....we shall see what the G.I doc says... I am definitly in a dilema, whether or not I should go back on gluten to get tested.....ugh.....I really dont want to, but it is so temting to just try again...

he also told me to take fibercon for the C, so far it has been helping, minus the horrible cramps I got the first time I took it....

I'm finally seeing a doc tomarrow and am going to tell him all my symptoms I've had and what i am going through. but I'm starting to wonder....

Eliminating gluten as definitlly eliminated tremendously my bloating/discomfort and D. But lately my C has been acting up (nothing works for it. and stuff like flax meal causes me more irritation!!!) The bloating is coming back also but it may be from menstrual probs.. I have had symptoms of endometreosis ( I think) although I havent been to a Gyno yet.. I used to have very heavy periods, but now I havent had one in 3 months, just occasional spotting accompanied with the worst PMS you could imagine for three months striaght!! (mood swings/water retention/lower stomach bloating/lower back pain/cramps)

In the past, it was always hard for me to distinguish my digestive problems from menstrual. I knew they always went hand in hand since I would get C and then bouts of D just before my period started and gas would alway be worse around that time. I read somewhere that people with endometreosis should avoid wheat/dairy and that the lower colon can be effected from the endometreosis as well, causing pressure. SO I'm starting to wonder if this has been my problem the whole time? maybe this is the reason I'm gluten sensitive??? but then it wouldn explain why my gas still isnt anywhere near as bad off gluten... I dont even know what the doc is going to think tomarrow, I have so many things going on and things I've been through....

we shall see.....ugh!

thanks. I'm stopping there tomarrow. IF the ingredients are safe I'll try it out and see how it goes.

Has anyone that shops at Wegmans ever bought one of the pre-made whole rotisserri chickens? I was just wondering if they are gluten-free because I know most stores add a lot "stuff" to them. I keep meaning to check when I stop there but forget, and the list online doesnt say anything. I wanted to pick one up this week...but I'm thinking it would be too good to be true if they were gluten-free...

I know people with allergies to chocolate or other things and they KNOW they are allergic without having a blood test to verify it. You know your body. No one in their right mind would put themselves on a gluten-free diet for the fun of it, ya know?

this is a very good point!

BTW I feel exactly the way you do since I'm self diagnosed. I only ate out once since going gluten-free and was afraid to even mention "no croutons" on my salad....now I'm realizing just being up front will make people more believing. Don't look at it as a burden or something to be ashamed or afraid to talk about, it's who you are, it's a lifestyle. WHen the gluten topic is brought up in everyday life I dont make a big deal about it, I just casually say I'm allergic to wheat and people for the most part are understanding, minus the few that rub it in and say "what? that sucks! " and then ask detailed questions about it and criticize me like I'm some sort of freak... they make me a bit angry sometimes, but I know what is best for me. generally most people are understanding, even if they dont understand what exactly gluten is....

Hi

try Pamela's cookies in the box.The chocolate ones are amazing, even my gluten eating mom said they are the best cookies she ever had.

Because corn is becoming a fuel, the price has gone up, so many companies have gone back to using wheat starch. Even brands we have trusted for a while now are now showing up with wheat starch. Always read the labels, even your old favorites.

My sister is a dietician and the powdered sugar she had been buying from Gordon's Food Service, had been gluten free for some time, it now contains wheat starch!

ugh!!! so annoying!!

I forgot to add that I used quinou flakes and parmesean for the meatballs instead of bread crumbs, they held together really well!

thans. yeah, I heard that alll McCormick products are gluten-free, unless labeled otherwise....

This recipe can easily be made gluten free. I made it yesterday (with gluten-free pasta and with turkey instead of veal) and my gluten eating mom loved it. I also used "Pacific" brand free range organic chicken broth and vegatable broth....

Open Original Shared Link

Are most brands of powdered sugar safe? and what about baking powder and baking soda?? Most of the ones I see dont have any suspect ingredients or warnings about the factories so I figure they are safe? I havent actually baked anything gluten-free yet. I asume to stick to pure vanilla extract also, over the imitation brown stuff?

thanks!