LuvMoosic4life

So I htink it is finally starting to sink in the that I really cant trust to eat out at other peoples houses. From now on i am bringing my own food...as "insulting" as it may be to the people's homes I go to .

I got glutened on x-mas. My brother made deep fried turkey, string beans/with carrots and olive oil/oinions and mashes potatoes. All I ate was the turkey and veggies. Woke up feeling naucios that night (thought it was because of my sinus infection), went back to sleep and ate left overs the next day....I once again woke up naucious that night, this time dry heaving and puking mucous with a horrible burning pain just below my stomach...I had D all the next day....

A few days after new years i visited my mom and wen to my grandmas house. I purposely ate before i went there (my grandma is itailian) I survived without having to eat anything, but I'm pretty sure I got glutened by the cup I drank tea out of > I washed it out with my hand and warm water and soap before hand, but noooooo. I felt gassy for like 10 hours right after I drank it.

The day after my grandma's I visited my friend. I wasnt planning on eating there, but then they went into the questions of "can you it this, that? etc..etc...." They ended up making pork chops for me, they were just fried in a pan with olive oil and we had canned yams on the side (hah, we are poor) but anyways....she has two kids and her apt. is pretty much a gluten trap. If I didnt end up having a few drinks, I probably wouldve made the smarter desicion not to eat (even though I was starving to death after hours being there) The 2 year old was walking around with a donut and the crumbs were getting everywhere, then there were spagettios on the kitchen table, he went to eat them and they were spilling everywhere....and just the thought of gluten all over a kid who touches everything in the house...including me...ahh!! After my friend gave me my pork chop she got out a bag of flour to make a gravy sauce for everyone else....at this point I was thinking "I'm done".....It's usless trying to explain CC to people.

Anyways. I visted them 4 dyas ago and I havent been feeling well since. I cant tell if it is because maybe my sinus infection hasnt fully gone away, or in fact, gluten is really starting to bother me that much. I have just been extremely fatigued and can see my sinuses looking inflamed on my face..I dont have congestion anymore though... I've been more bloated than usual and wake up in the middle of the night with cold sweats....I was saturated two nights in a row, its the most disgusting feeling ever....and i just feel like I'm retaining water...its like PMS but my period is done. I went to the gym the past two days and can barely make it a half an hour on the treadmill....which is normally nothing for me. Yesterday i got scarred because when I stopped running and slowed to a walk, I felt like I was going to pass out and felt very "light"....I kept taking huge breaths....scary.

So I dunno if i should see the doc, maybe I still have an infection...or maybe its just really gluten. I've pretty much been eating detox foods since then....fruits veggies, very very little grains no soy no dairy, egg whites and no more than a tablespoon of peanut butter, detox tea, chicken broth..etc.but this is normally how I eat LOL I'm also worried that maybe my ovarian cyst hasnt gone away....or that maybe I got another one? b/c my other ovary hurts now and I've felt like this from that before...If I had the money I would go get an ultra sound right now, but I have to wait about month or so...grrr

sorry this is so long agian!!! I just want to move far away, build my own house and never worry about CC again..better yet, move to a planet where gluten doesnt exsist!!!!

I was a vegetarian for many years. I feel better when I don't eat any meat, but I tend to get anemia so now I eat some sometimes but most of my meals are still vegetarian. Tonight's dinner, Ener-G rice pizza shell with olive oil, tomato sauce, Italian seasoning, rice cheese and a side of black eyed peas for more protein.

Beans and rice, beans and gluten-free pasta, beans on corn tortillas are all excellent meals provided you aren't on a low carb diet. I'm diabetic so I do have to be careful with the carbs.

Can you eat eggs? I can't, but they're a good source of protein.

You may also consider taking a B12 supplement because vegetarian and vegan diets can be deficient in it.

Yea i thought about just eating meat once and a while. Eggs are ok for me. Usually just eating egg whites are good, but I notice if I eat too many whole eggs they bother me a bit...nothing horrible though. Plus I usualy just eat the whites for health reasons anyways...too much heart disease in my family!

yes, i think excercise does trigger the symptoms of celiac to come forth. Excercise is obviously really good for the body, but depending on the intensity and impact on the body, it can also be a stress. Research shows that people can be born with the celiac genes, but never have it "activated" or triggered until later in life. Stress and traumatic events can effect the body and trigger the deteriorating symptoms of celiac to come on. (sorry if this all isn't completley "on key" I'm just going by what I've read heard! I'm not a doctor! LOL)

I never started having really bad digestive problems until around age 17. I started running when I was 16. When I was 17 my dad died from suicide, a obvious stress on my body....but I also started running more and doing distance running after the event. It was one of my ways of coping... after I intoduced more distance running I started getting D and cramping during the runs. It got to a point where a few years later it would disrupt almost every run. I was so happy when I had days where I went running D FREE!!!

I always notieced my other symptoms like gas and bloating were much better on the days I took off from running or did shorter distances...but they never completely went away until I went gluten/dairy/soy free...which of course took me a long time to figure out!!

So yeah, i think it definitly agrevates the symptoms!

I wasn't sure where to post this, but since I am a runner and do other various excercises everyday, I am always concious of how much protien I take in. I notice I feel a lot better when I DONT eat meat and was considering trying a vegitarian diet for a while.

Is anyone here gluten free and vegitarian?

My main concern though is that i cannot tolerate Soy and Dairy in larger forms.....For example, if there is soy letchin in the ingredients I am O.K. but If there is Soy Protien Isolate or any larger form of it I get constant gas, bloating, sometimes C or D and just feel very similar to a glutening. Dairy I can only have small amounts like coffee creamer, cheese on mac and cheese etc......but as soon as I drink milk or eat cheese, yogurt (oh god ) in its whole form, its pretty much similar to the Soy reaction...plus I just stay away from dairy for many other reasons...

I assume I would be mostly limited to nuts, beans and quinou for protien? I know there are other things out there like hemp, teff...but I'm not sure what is the best source of protien. Nuts sometimes bother me also, but I notice if I dont eat rice or grains, I am O.K with the nuts....that probably seems crazy....and people would probably think I'm crazy for being gluten/soy/dairy/meat free, but I seriously feel amazing when I really avoid all that bothers me. I just feel like meat slows me down, makes me feel tired... I've also noticed I've performed better running when I eat smaller amounts of meat.

I'm wondering if limiting myself to fish as my only form of meat would make a differance also?

hmmm......I've been diet experimenting for so long...this seems endless!!! haha but I somehow enjoy it at the same time....

I was glutened this x-mas by CC...it was just a turkey my brother had made and he placed on top of a baking sheet for carving (which of couse I didnt realize till after the fact) But I woke up really naucious in the middle of the night...I had a sinus infection, so I thought maybe it was from that... The next day I seemed ok...(I still didnt know that the turkey was CC) and I had the leftovers, which happened to be more of the meat from the bottom of the turkey...I woke up again, this time at like 5am with horrible nausea. I went the bathroom and started dry heaving....then I felt a big wad move from my stomach and down to my intestines. I was still dry heaving, but everytime I felt more and more like it was going to be D. I was so confused I was sitting on the toilet feeling like I was about to V and D at the same time. I ended up vomiting, but it was a bunch of green mucous, sry for the visual....then I started getting a horrible burning feeling just below my stomach...I sware it felt like a swallowed a turkey bone and it had torn my insides, making my intestines inflamed....that was my only thought...I was freakin out b/c I was home alone in the middle of no where. I continued to V mucous and was cold and sweating uncontrollable. I passed out on my bed wrapped in nothing but a blanket and then woke up nacious again. I just sipped water until it went away...then it was an entire day full of disgusting D....I didnt get over the nausea feeling for about 3 days after, but the D was only for one day (thank god)...But that was my worse glutening yet....I'm sure part of the reason it was so bad is a had an infection to begin with, but still. NO FUN!!! I was suprised b/c it was just a small amount, but I can only imagine eating whole wheat pizza

didnt mean to ramble, just thought I'd share....

On Corn Pasta: The quinou corn past is actually pretty good (I think) Open Original Shared Link

I havent tried too many bad products actually. BUT I wanted to buy something this week b/c I happened to have a few extra dollars. I bought what is called "HOL GRAIN CRACKERS" in a brown box. They almost look like triscuits on the cover. I spent nearly $4.00 on it. They werent un-edible, but DEFINITLY not worth 4 dollars!!!! I couldve got pamelas cookies instead!!!!!!!!!! The rice in these crackers gets stuck into my teeth. I had to eat an apple afterwards to clean them out

definitly can never be too cautious

I live in an APT. where i go to school. Since going gluten free, I havent used my oven. I've been using a toaster oven to make all my stuff.....anyways.....a couple weeks ago I decided to make some chicken drumsticks in the regular oven. I had them on a a clean tray covered in tinfoil. SOmehow a few hours later and all the next day i was experiencing the symptoms I have when being glutened. I hadn't ate anything differant, so it had to be the oven...it was the only differant thing I did....I couldnt believe it.

You shouldn't put off applying for the stamps, do it as soon as you can. I can't say for sure that it is still done but they used to be able to expedite food stamps. They do have a long wait for monetary assistance but if you are only applying for food stamps those can sometimes be approved faster if there is a need. Also be sure to ask them about any local food banks. You most likely won't be able to find a lot that you can eat but they should have rice and canned goods that would be safe.

I know how you feel about just wanting to be able to eat something that we didn't have to cook ourselves. Just once it would be nice to be the one being served rather than the one doing the serving.

thanks , yeah I'm definitly going next week.

Before going gluten-free I always used to cook for everyone too, but it really makes you appreciate things more when the opportunity to sit down and enjoy something someone else made for you is taken away...Not to mention it gets a little emotional especially with family, when they want to do things for you and can't.

Hello

You are correct that you will be cooking yourself to be sure you are safe. Just a fact of the gluten-free world . I have been doing this a long time now & I always ask that same question! When can I trust someone to cook for me!. And I have four to cook for that are gluten-free....It never changes its always me cooking & baking.

I have been married a long time & I don't see my husband cooking or baking anything gluten-free, in fact that is down right scary! Well he does do breakfast eggs & bacon & steak on the grill with steamed veggies.... but that is his limit!

I hope your dreams of finding a gluten-free man that likes to cook comes true~

Did you find anyhting you liked in the care pkg?

blessings

mamaw

thanks

yes I liked alot of stuff in the package . Larabars are now my new favorite food!!!!! I also liked the glutino bars alot, I'm just not so sure how much they agreed with me...I dunno why...but nothing horrible..I'm still slowly re-introducing processed foods too. Bt i seriously dont know what I wouldve done without help from you and some other people here! I am looking into applying for food stamps. I think I have to wait 45 days before I get them though- BOO !!

yeah come visit me too and we can have cooking parties! do you happen to live in WAY upstate NY??

seriously though, i know what you mean. Thanksgiving was nothing short of a pain in my butt. cook an entire meal the night before just for me on a very limited budget...not exactly my idea of a good time. (plus, i think i glutened myself somehow - go figure!) i'll have to do the same thing when we go to my BF's parents house on Christmas Eve. Thankfully my mom is on board with the whole gluten free thing so she's cooking with me in mind when we go there for Christmas...but still, it's so annoying to never be able to relax and enjoy a meal. i have no words of wisdom or advice but i sympathize with you!!

I live in western NY! where upstate do you live? I have gone to the adirondacks on occasion. haha you know how much I would die to have a cooking party!!!

I was at a friends house tonight. they made me some plain old tea.....somehow my stomach is gurgling and I'm bloated with a slight migrane coming on and heart burn!!!! I cant even trust someone to make tea!!!!!!! ahhh!

the only thing I can truly say I miss is beer and pretzles. gluten-free beer doesnt do it for me.....but...ugh....a bud light and some preztles would be amazing....besides that.....GLUTEN can kiss my #%$

I feel like I post in here way too much. (sorry)

I'm really REAALLLLLY missing being able to sit down and eat an entire meal entirely cooked by someone other than ME!!! It really has been almost a year now....Its getting abut monotonous, especially being in college.

I know everyone with celiac deals with this or has dealt with it even if they live in a home where everyone eats and cooks gluten-free :bringing your own food everywhere and constantly cooking for yourself just gets so old. I have no problem with eating gluten free,its just this aspect of it that brings me down too often!! even though I try to make it not.....

So many times I have had offers from family to make me gluten-free stuff, but my whole family is BIG on gluten. The ods of CC are probably a good 90% chance. I get glutened just by staying at my moms for a couple days, no matter how much I wash my hands and even though I make and bring all my own food....forks, bowls etc.....it still happens....

so how can I trust her, or anyone else to prepare me something unless they go out and buy new pans, silverware, etc...and reallly take precautions??. I mean, my mom was talking about what types of x-mas cookies she was going to make this year and I had to remind her that I wont be able to eat any of them. There was a huge silience on the phone...... then she said "well I'll make a special batch of gluten-free cookies for you." I responded "how?" more silience as she probably recalled cooking with me in the kitchen at thanksgiving and how I kept telling her to wash her hands after touching gluten and then going for things i would be touching....

I even get glutened everytime I eat out it seems....even in the celiac friendly places. I think i got a broiled fish ONCE with veggy's and olive oil ( at an itailan place, go figure) and didnt get glutened....I thought that would be for sure...

I dunno

I guess I will just have to stick to it....maybey some day I'll meet an awesome guy who also has celiac and will cook something for me once and a while *dreams* (thats what it seems like at this point)

I found the best thing to do is just get rid of anything with sugar in your house. Have plenty of fesh fruit around. I always grab an apple when I want something sweet. Stick to juices that are not from concentrate. I also found that sweet potatoes help control sugar cravings. It does get easier. After a while you wont even want sugar. once you go back to eating it, you want to keep eating it.....at least that is how it is with me. I am also sometimes an emotional eater though too, I eat when under stress-eek!

Hey, so how've you been doing? Have things gotten any better or have you been able to pick up a few hours work somewhere?

I havent heard back from any jobs i applied for yet ( I wouldnt have the time with 18 credits right now and finals!!! maybe once break starts!) But I did get a few gigs coming up, which will help me out greatly! they dont pay a ton, considering I have to put gas in my tank to get to them, but they will at least give me enough cash to get home for the holidays and get a few gifts for my family!!! It sucks too b/c the places i';ll be playing at offer us food...i always decline the offer in fear of CC. I ate at a gig once and got sick for 3 days after..no fun!

now's the time to eat as smart as possible. I know it's hard - I had to eat on a max of $20/week the summer I worked on campus after freshman year (no meal plan or dining hall during the summer). (That was 10 years ago, it'd have to be a bit more than $20/week now, I'd think.) Cheap, but nutritionally dense foods are the way to go - only buy what's on sale. Until there's more money, don't bother with juice; it's not worth the money. Stick with water. Eggs are a good protein source, if you can have them, and you can use them for many, many things. Rice is good, beans are good - buy dried and rehydrate yourself. It takes longer, but that's what you're trading - time for money. Whatever frozen veggies are on sale, or fresh veggies that are on sale, that's what you eat that week. If it doesn't make a difference nutritionally, and can't be had cheaper, don't do it. (Like the turkey burgers - beef is cheaper, if you're going ground. Whole chicken is cheaper still.) It takes time and planning, but you can do it!

Sounds like me right now. $20 a week is about what I've been on- my good weeks!!! but I cant thank enough the people who have helped me in this forum, I really dont want to think about where I would be without recieving that help! I was actually thinking about having to give up running/working out just b/c I was getting low on the proper food to refuel from my workouts everyday. So glad i am still running, it is my biggest stress reliever, I dunno what I would do without it.

PS. Maybe we should start a "sponsor a student" program? It's a difficult time for anyone, healthy or not.

you know, after all the help I recieved from this forum, I think I just might look into somehow creating a "sponser a student" program...seriously!!!!!......it could be a thing accross the country.....I know so many people that are dropping out of school b/c they just can't sfford it!!! its really sad. I'm really going to look into this now!

I'll definitly post back after my appt..... hopefully the dentist gives me a better explanation than the school health center (they just said, "oh, thats wierd")

you know. everytime I eat nuts I start feeling like crap and noticed these pop up! It sucks b/c I love nutts.....I'm going off of them for a week or so to see if I feel better.

I've posted about this before but couldnt find the thread.

I've ben getting little red dots in my mouth off and on. They arent painful, but not very pretty looking. The last time I posted about this I really didn't know what they were (and still dont) but it seems I get them when I am stressed or introducing new foods. They are ussually on the inside of my cheeks and I will only get one or rwo at a time....ysterday I opened my mouth and there was one right near my lip on the inside of my cheek. I've never had one this close to my lips before.....this morning when I woke up I tasted blood and noticed that the little red dot had burst.....its almost like it is a collection of blood that forms......this would explain why I sometimes taste blood for no reason in my mouth.....now I am wondering if these things are forming down my throat b/c I specifically have tasted blood a few times after singing ( I hope they are not on m vocal chords)

but anyways. I take good care of my teeth, floss rinse and brush 2-3 times a day. I havent been able to afford a dentist visit in over year, but decided to make one, I'm going next week. I've also noticed the gums receeding on two of my teeth (the same ones on both sides of my mouth) and it is very snesitive to cold and sugary stuff.... other than that my mouth is healthy....so I dunno

has anyone experienced this? is it a reaction to something I'm doing? or a gum disease? I would find it hard to believe I have a gum disease...but then who knows.....I never knew my whole life that I was gluten intolerant!! I really hope it isnt something more serious....

Colleges are actually really good wih this. I go to a small college where there are only 2 celiacs (that they know of) living on campus. They order gluten-free foods and supply a seperate fridge and toaster for the dorm and food prep areas. Most colleges require a doctors note stating your condition first though.

I wrote an article on this for my school newspaper. E-mail me @ Meljunk4u@yahoo.com if ya wanna read it. I'll e-mail it to ya

I know this probably has been posted a million times....but for those of you who had tried redbridge and Bard's Tale beers, are they both similar tasting? if not, what is the differance? I have tried redbridge and did not like it. It smells good and tastes good on first sip, but has a metallic aftertaste (to me anyways) unless i got an expired batch, but I tried it at a bar also...same taste. I havent tried bards tale.

I noticed Wegmans near where my mom lives sells Green's imported beer. Has anyone tried this? and if so what flavors are best?

I really dont drink often at all, but I really miss having a beer once and a while. I used to love EBC Blueberry wheat beer...but obviously thats out of the question now!!!! I liked pretty much all beers, except the heavy ones like guiness. Anything from Bud light to killians I would drink....so I'm not fussy, but redbridge did not cut it!

I figure if I can ever save up some money for anything this holiday, I'm buying myself a beer (gluten-free)LOL.

It's very frustrating when people are constantly asking me "can you it this? can you eat that?" But it is more frustrating when they are asking it while I am eating. I understand it is the time when these questions would pop up, obviously, but I just feel like I need to end my explaining this to people while I am trying to eat and say "I would be happy to explain this after I am done eating" - would this be rude or wrong?? Its such a complex topic to explain to people who dont know anything about it....and the last thing I need is a nervous stomach while eating.

When I went home for thanksgiving, I pretty much made the entire meal. Just when I finally got to sit down and eat... and put one bite of food in my mouth.... my brother asks about my gluten intolerance and what happens when I eat gluten. This completely made me not want to eat anymore. I've been wanting to explain to him what I've been going through so he understands it, but the dinner table was NOT the place I wanted to exaplain it....especially symptoms. Basically i just said "it makes me sick and run to the bathroom, even from a little bit" but I was upset b/c this isnt completely true, there are SOOOO many other symptoms I go through, they just arent a very nice thing to talk about while eating....I was kinda on the spot when he asked this and it made me nervous...now i just wish I would have thought about asking to explain it to him after eating..... He went into question like "is it heredity" and questons that require quite a bit of explaining....which I would be happy to do WHILE NOT EATING. Especially since I looked so forward to eating an actual meal for the first time in FOREVER. It just ruined the whole thing.......

I am still usig the same toaster oven, but I only use it for cooking chicken breast and sweet potatoes. I scrubbed all the parts really good and always wrap my food in tin-foil and put it on top of the tray, which is double wrapped in tinfoil.. I havent had a problem, but if you can afford a new one I would DEFINITLY go with the new one!

when I build a house someday its going to be 100% gluten-free....no gluten allowed!!!

I went home for thanksgiving, excited to have food, only to get glutened even though I made it clear to my mom what to do to avoid CC....its nearly impossible!! I took food back to school with me.....only to realize I have been continuously glutening myself Luckily my roomate is never here, so my apt is fairly clean of gluten, i have no problems here. but definitly choosing wherever I live after this to be completley gluten-free!

If there are no ingredients in the product that contain gluten and it does not cause me any problems I will eat it. Normally I stay away from products produced on the same lines as wheat products, unless the company says they are tested, but there are some products that do not cause me problems.

For ex. Frito lay does not test thier products but has a gluten-free list, though stating that the production lines are shared. I do not have a reaction to thier santitas chips, so I occasionally buy them. There are actually some procts labeled gluten-free by other companies and produced on the same lines that have caused me problems......I guess it all depends on how sensitive you are. If you are a person who doesnt have any reaction to gluten, but has celiac I would play it safe and make sure everything is 100% gluten-free. I have obvious reactions even to small amounts....

The best thing for me is to stay as active as possible and away from home as much as possible. I get depressed when i am stuck in one place too long, add gluten and its thoughts of not wanting to live.

When I was on gluten I was so depressed at times that I often didnt recognize that underneath it all I am a happy person with many goals. If I fall into depression now, what keeps me going is knowing that there will be a tomarrow, a chance to get better, start over,build my spirit up ...before I saw it as there will never be a better and I suck at life and feel miserable. I rememeber so many times I would literally lock myself in a secluded place and just cry, bashing myself for sucking at life, feeling ugly, bloated, miserable, brain fogged,ect......

I look back at it now and just can't believe I was in that state of mind. The hardest part is nobody really knew it was that bad for me....maybe they got the clue when I constantly turned down offers to go out and do things...but people still dont get it that gluten really caused me hell.

I think the gradual reintroduction does work. I know that soy and dairy are a problem for me, along with nightshades, but I didnt completely give them up. Small qauntities seem to be O.K. Corn was one thing that really bothered me just after going gluten-free but now I dont have a problem. Soy seems to be much better with me also...its just concentrated amounts of dairy, like in cheese that get me..