LuvMoosic4life

has anyone tried this new sweetner? I normally just buy stevia in liquid form, but I'm tempted to give this a try b/c it is a bit cheaper. I looked at the ingredients and it also has erythritol, which disapointed me, but from what I've heard it isnt bad??

Open Original Shared Link

You may be crazy. But the truth is that we just do not know.

how did you find out my secret?

It's a tough situation to be in.

If you go back to eating gluten, you may not do it long enough to get a positive test result, you'll end up being miserable for nothing, you'll still always wonder if you're Celiac, and on top of that no doctor will believe you because you'll have comfirmed their suspicions with a negative result. It may be better at this point just to stay gluten-free and be happy with your newfound health. I was fortunate to have found this forum before going gluten-free and thanks to the posters here I've stayed heavily glutened for my upcoming test. Even then, who knows if I will get a positive result?

LIS

You are completley right with this. I just wish my doc would be content with the fact that I'm in very good health now (minus an ovarian cyst w/some pms complications) He has only been my doctor for a few months and really doesnt know my background even though I told him and can look at records. It just makes me mad. I stressed to him that all of my symptoms are gone, even my constipation which is what I just got over this past month, so why still test me?? it makes absolutley no sense b/c after I gluten myself for 2 weeks I would just go back to being gluten-free anyways!!! regardless of the results!! it doesnt take a rocket scientist to understand if something bothers you, dont eat it. It's just a-shame b/c everytime i see him he is going to bring it up. I'm almost debating getting another doctor and not even mentioning the whole ordeal with gluten lol. I will still have the same G.I in case I have any probs anyways....

thanks. yeah It's definitly not worth it seeing that i am still recovering even after 5 months. If I eat gluten now it will just throw my body off even more. The only thing I can think to do is call the G.I doctor and maybe he can call my primary and it explain to him. I thought the G.I doc was very good (unlike my primary said), I don't see why he wouldnt call him for me. They even said to call about anythiing and even called me back with a list of gluten free "C" meds. I was very suprised.

I just dont want to start anything between the doctors but I feel more doctors need to be properly educated on this.

I've been gluten-free since may with OBVIOUS improvement. My primary sent me to a G.I to see about celiac even though I am gluten-free. The G.I said its not worth putting me through the testing for celiac since I've been gluten-free for so long....

I went back to my primary today for a follow-up and he got VERY upset that the G.I refused to test me. Now he wants me to find another G.I to get tested even after I told him the tests would most likely come back negative; he kept disagreeing with me. He told me all I need to do is go on gluten for 2 weeks and get the biopsy. He agrees that the blood work would still be negative, but he said the biopsy would definitly show damage after 2 weeks of gluten...I disagreed.

I know about the gene test so I asked him (acting as if I didnt know)if there is a gene test I could get done to at least rule it out first and he shook his said and said "NO" !!!!!!!! WT--!!!! Then he went on to say something like "you are so young (22) and I really dont think by the symptoms you told me you have celiac (which btw were C, D, anemia, fatigue, bloating, foul extreme gas to name a few)- you have your whole life ahead of you and there is nothing you can eat b/c gluten is in everything...blah blah blah...you shouldnt have to go through all that if you dont have to"

OMG I was fuming!!!!, but kept my cool.

EVEN IF I DONT HAVE CELIAC I AM STILL FOLLOWING THE DIET!!!!!! I love eating gluten-free. People dont understand that. I have never felt better!! I never thought there would be a day that I would find the cure to my problem and that I would live the rest of my life bloated and miserable. I would much rather go through the "burden" of eating gluten-free than go through the humiliation and discomfort I went through before!!!!!

I dont know what else my problem could be if it isnt gluten sensitiviity/celiac. I mean, what would they do?? give me a medicine??? I REFUSE to take medicine. I KNOW gluten bothers me so I DONT EAT IT!!! and unlike the doctor said there are lots of things I can eat!! GGGRRRR!!!!

also, my blood results from my last test showed my hemoglobin was 13.8- it hasnt been that high in years!!!! I was so happy. and my bp was 100/70. except my potassium was low.....but at least I'm not anemic anymore!!! you think that would tell the doc something..but nooooooo....

anyone have any suggestions??? I just got this doctor, and I like him b/c he actually does care, but grrr!!! celiac is not his specailty!!!! lol. Would it even be worth calling the G.I doc back and telling him what my primary told me?? I mean.. my primary told me "well, the g.i is probably busy and just didnt want to test you, he isnt a diligent doctor" I guess I could at least ask him about the gene test.....ughhhh!!!!!! I would like to know if I have celiac too, but at this point its not so easy to get tested and get true results...

sorry I just spent hours venting about this to my mom!!! and I could still vent forever!!! this seems to be endless.....I had to hold back tears in the doctors office. I mean, why would I even put myself though all of this if i know what the problem is. I would rather spend less money on food anyday and just go out and eat whatever and wherever I want, but i cant b/c it leads me to being bed riddena nd feeling like complete crap all the time!!!!!!!well, you all know what its like...

I've been gluten-free since may with OBVIOUS improvement. My primary sent me to a G.I to see about celiac even though I am gluten-free. The G.I said its not worth putting me through the testing for celiac since I've been gluten-free for so long....

I went back to my primary today for a follow-up and he got VERY upset that the G.I refused to test me. Now he wants me to find another G.I to get tested even after I told him the tests would most likely come back negative; he kept disagreeing with me. He told me all I need to do is go on gluten for 2 weeks and get the biopsy. He agrees that the blood work would still be negative, but he said the biopsy would definitly show damage after 2 weeks of gluten...I disagreed.

I know about the gene test so I asked him (acting as if I didnt know)if there is a gene test I could get done to at least rule it out first and he shook his said and said "NO" !!!!!!!! WT--!!!! Then he went on to say something like "you are so young (22) and I really dont think by the symptoms you told me you have celiac (which btw were C, D, anemia, fatigue, bloating, foul extreme gas to name a few)- you have your whole life ahead of you and there is nothing you can eat b/c gluten is in everything...blah blah blah...you shouldnt have to go through all that if you dont have to"

OMG I was fuming!!!!, but kept my cool.

EVEN IF I DONT HAVE CELIAC I AM STILL FOLLOWING THE DIET!!!!!! I love eating gluten-free. People dont understand that. I have never felt better!! I never thought there would be a day that I would find the cure to my problem and that I would live the rest of my life bloated and miserable. I would much rather go through the "burden" of eating gluten-free than go through the humiliation and discomfort I went through before!!!!!

I dont know what else my problem could be if it isnt gluten sensitiviity/celiac. I mean, what would they do?? give me a medicine??? I REFUSE to take medicine. I KNOW gluten bothers me so I DONT EAT IT!!! and unlike the doctor said there are lots of things I can eat!! GGGRRRR!!!!

also, my blood results from my last test showed my hemoglobin was 13.8- it hasnt been that high in years!!!! I was so happy. and my bp was 100/70. except my potassium was low.....but at least I'm not anemic anymore!!! you think that would tell the doc something..but nooooooo....

anyone have any suggestions??? I just got this doctor, and I like him b/c he actually does care, but grrr!!! celiac is not his specailty!!!! lol. Would it even be worth calling the G.I doc back and telling him what my primary told me?? I mean.. my primary told me "well, the g.i is probably busy and just didnt want to test you, he isnt a diligent doctor" I guess I could at least ask him about the gene test.....ughhhh!!!!!! I would like to know if I have celiac too, but at this point its not so easy to get tested and get true results...

sorry I just spent hours venting about this to my mom!!! and I could still vent forever!!! this seems to be endless.....I had to hold back tears in the docs office

I'm liking the idea of butternut cashew also!!! *drools*

Has anyone ever made anything like this? I didnt find this on a gluten-free site, but it is definitly gluten free! and two of my fav food- sweet potatoes and peanut butter!

Peanut Butter Soup

This nutritious and delicious soup is made with sweet potatoes, peanut butter and chicken stock.

2 tablespoons olive oil

3 or 4 medium to large sweet potatoes/yams peeled and cut into 1 inch cubes

2 large chopped onions

2 crushed garlic cloves

1 tablespoon ground cumin

8 cups chicken stock

1 1/4 cups peanut butter

1 tablespoon chili sauce (optional)

1/4 cup dry roasted peanuts

1/4 cup chopped cilantro or chives

1. Heat oil and saute onions

2. Add cumin and garlic and stir-fry 30 seconds over medium heat

3. Add chopped sweet potatoes, cover and cook for 10 minutes over low heat, stir to prevent sticking

4. Add Chicken stock, bring to boil and simmer for 10 minutes

5. Add peanut butter and chili sauce, stir

6. Simmer uncovered for half an hour, stir occasionally

7. Puree with a hand held blender or regular blender

8. Add peanuts, cilantro or chives and serve hot

yeah. the less frequently shopped stores around here, or stores in less populated areas took a while to get the new ones too.

I stopped using the stuff altogether and buy wegmans light mayo now, which is labeled gluten-free. Helmans mayo's also list gluten-free but thier light versions contain phosporic acid, stuff I stay away from. Light miricle whip also has sucralose- gross!!

I know this is probably answered on here somewhere, but I couldnt find anything.

IS there any possiblilty that any type of cranberry juice would have gluten?? I'm just so sick of ordering 7-up and seagrams at bars-haha and its hard to ask the bartender to see ingredients when they are extremely busy, so i just stick to what i know is safe. I really don'y see ho cranberry jiuce could have gluten, but then its in everything, so who knows!!

My whole life I have had rather large tonsils....it was debated to have them removed. Everytime i went to the dentist he would ask me if I was sick.

Well, I've been gluten-free for a few months. I looked down my throat the other day and was suprised to see they are almost not even visible!!!! one is still a little larger than the other, but nothing like on gluten. I'm amazed which would also explain why it is is easier for me to sing now!

Has anyone related? is it something to do with the antibodies?......kinda like the tonsils swell when fighting off infection, so it would make sense for them to swell if the body is fighting off an intruder (gluten)

i almost thought they were really old boxes they had pulled from some dark corner of their warehouse.

sometimes I think they are out to get us ( I know theyre not, but we've all thought this way). Maybe they have monkey's in those dark corners that go around openeing boxes, pouring gluten inside of them, laughing, and then sealing them back up

What about Mission tortilla chips?

They dont sell them anywhere where I am

I have a tendency to overdo things. I can tell you that running 6-7 days per week is too much. You need rest days. I get antsy if I don't do anything at all 7 days a week, so I go for walks on rest days. You need to alternate muscle groups at the very least. Some trainers will tell you that the rest days are just as important. I hate when they tell me that, but it does make a difference.

As for water retention- I've had trouble with that too, so I'm not sure.

thanks. yeah, its just so hard to take days off b/c running makes me feel so good (mentally) and it is like morning coffee for me. I just have to make sure I am busy on my off days otherwise I'll go insane!!! I also do crunches and light wieghts after running....

I'll have to try just going for a walk a couple days a week instead maybe...I get antsy also, always need to be doing something..

I saw the new rice chex box as well and got all upset cause it didn't say Gluten Free. However, upon further perusal I noticed it does say Gluten Free, its just on the side now instead of the front. So its still good

I don't know about the other stuff, as I've moved to Organic Products and Products without Laurel Sulfates.

hmmm...I'll have to looked harder. I didnt see it on the side, but then there were people wanting to get to where I was standing in the isle which distracted my search I always hated reading the side of the box b/c then people think I'm a health freak or something, and it doesnt help that I'm thin, so they probabbly think I'm counting calories...but, eh, I dont care anymore...

I'm not sure if this is gluten related, but it started a couple months after going gluten-free back in may...

I cut my running back a lot and have been focusing on more intense workouts rather than long distance. I find I have more energy and feel better. When I was eating gluten it seemed no matter what I did it was a battlle to control my wieght...not that I was overwieght, it was just hard to keep it steady no matter how little I ate, how much I ate or how far I ran. I'm eating twice as much now since being gluten-free and running much much less and my wieght stays very steady, right around 140 give or take 3-7 pounds depending on the time of month -blah-haha

I've been having some problems with bloating/water retention. I always thought that exercizing was suppose to allieviate these symptoms, especially when they are realted to pms. Well, it seems that when I take a day off from running, my symptoms are much better. This really makes me wonder b/c it's not like I am overworking myself, I admit I was when I was on gluten, but not now at all. Maybe i need to take more days off??? I run 6 days a week...7 if the weather is really nice, I alternate days of "hard" workouts and easy...

Does anyone know anything about excerize and how it is related to water retention/bloating? I heard that muscle retains more water than fat...

So I went to the store yesterday and went down the cereal isle to check the pricing on rice chex. I noticed the box is differant again and doesnt say gluten free. The ingredients also don't list barley malt, but now it has Tocopheryl....hmmm...

also, I contacted sauve b/c I have been using thier products, shine mist and hairspray and noticed Tocopheryl acetate on the ingredients. here is thier response to my question....which doesnt really clarify anything for me b/c I asked where the Vitamine E is derived from in the tocopheryl this was thier response:

they sent me 2 e-mails...

----------------------------------------

Hi Melissa,

Thanks for writing!

We apologize for any confusion, however, Tocopheryl Acetate is a Vitamin E derivative.

We hope this helps!

Your friends at Suave

MM

does anyone know if this is still true about the labeling? I really want tortilla chips and wegmans is so far away while I'm in school

eeek! I've been having something similar.....small white globs in my stool, but there usually are only a few.....hmmm.....

I've been gluten-free since may...I'd say 99% gluten-free due to some CC that I cant always avoid. but I check EVERYTHIG and stick mostly to naked foods. I didnt have this problem when I first started out on the diet, it seem to gradually get worse as my Gluten symtoms went away ( which were extreme foul gas and diarrhea)

I'll try the magnesium. is it hard on the body to take magnesium??

Where does it all go : my mom joked that maybe I get up in the middle of the night and "sleep poop" not knowing it....

Once my pms starts ( 24 days before my period believe it or not!) I get C. I havent gone normal in days. its like rabit terds. But what really bugs me is where does all my food go??? I've laughed about it, but at the same time it is scary considering the amount of fruits and veggies I eat. In the past 3 days, aside from chicken, rice a lots of quinou (I'm addicted) I have eaten:

1 frozen bag of broccoli and cauliflower

2 cups of brussel sprouts

1/2 cup of peas

3 zuccini

3 apples

1 peach

2 sweet potatoes

I think I had some kiwi too

I havent gone! (minus the straining that resulted in terds and it refused to come out!!!) I've gone to every doctor and all my tests came back nomal. This C happens everytime my pms starts up....my pms that starts WAAAYYYY too soon!!!!!! I'm seriously going insane. There are literally only 7 days a months where I feel reallly good

I've been trying miralax which my G.i gave me, it is the only thing that hasnt bothered me, but I hate taking medicine...

SO I'm overly excited that I may have the chance in the near future to go on the road and play music. At the same time I'm freaking out b/c the last thing I want is to get sick. There is a fridge and freezer on the bus so I suppose I could pre-make myself some meals, but the fridge is only so big and I'm not the only person who would be using it. I'm sure there will be a lot of eating out going on, but I try to stay away from that for obvious reasons. I'm sure I could find stores along the way when I need more food. I cant rely on processed foods and need to eat a lot of veggies otherwise....C! God, this disease sucks sometimes!-lol...

Has anyone ever traveled on a bus or went on the road for a long time?? I have no idea how long i'll be gone, I probably shouldnt even worry about it right now until I find out......but all these things go through my mind since I always think way ahead...sometimes it's a good and bad thing-lol and then theres the issue of being able to work-out. I need to go running at least 5 times a week otherwise I turn miserable! and nobody else that I'll be traveling with is athletic...they are quite the oppositte-lol

wow, I cant believe my thread is still going. After reading everyone's posts, I really hope that there is research being done on this and that in the future more people will be aware.

What if, for all those people out there who don't have celiacs but are diagnosed with depression or some other illness are really suffering b/c of what they are eating? ACTUALLY, I strongly believe in the idea that what you eat effects every aspect of your being, from physical, all the way to spiritual.

There were times in the past couple years (this is when I started getting really depressed and sick more often) that I just didnt want to go on. I would cry eveyday and just lay around feeling bad about myself (althought I didnt want to. The goals I had were in my head, but my physical self couldnt work with my mental self.....it was like a constant battle!! I failed way too many classes in college and now I am paying for it. BUt I am sooo much better now that I am gluten-free.

I wrote this post back in may when I was still experimenting with the diet. I was somewhat gluten-free, but I realize the thoughts I was having and the way I was feeling was my body adjusting. Gluten is like a drug. hell, it's like crack. I can't even imagine eating gluten out of depression now....EVER!

I do notice that there are other food groups (gluten-free) that make me feel like I ate gluten. Dairy is # 1 and tomatoes are a close second....so annoying b/c I love sauce.

But .... My problem right now is my craving for processed food. I have to tell myself NOT to buy it, b/c if I do , I eat it all at once and then I feel horrible the next day, it's almost like a gluten reaction, but not all the physical results are there, the mental ones are. It's like when you eat too many processed foods, it reminds you of gluten, the texture, feel,taste.....your brain may see it as gluten, but then your body is crying out afterwards b/c it didnt get gluten, so then you keep eating the processed foods b/c the initial feeling is good.

My goal is to get myself away from this....I hope it is a common thing in recovery for other celiacs.

did you buy the regular ones or the steele cut? I havent had the regular ones yet, but I had a bad reaction to the steel cut oats so I doubt I'll buy the normal ones. I made them they had this gooey clear protien like stuff that formed around it. It was almost slimy to eat. I even cooked them for close to an hour, figuring it would helpmake them better, but it didn't. They werent horrible, but my reaction was...D for a day straight.