LuvMoosic4life

I tried searching my school library- not one thing! Wegmans where my mom lives has a whole rack of books on the subject!!!! I love wegmans!

NOt sure where to post this.

I am writing an article for my school new paper on celiac and similar health issues in college students that require them to follow strict diets. I do not know anyone at my school with celiac and am looking just to ask a few questions from a couple people who are actually college studets dealing with this. If you would be interested let me know and we can talk through e-mail. When the article is published I will need to share just some information like your name and university for citation purposes.

If you have lived on campus with a meal plan while diagnosed, that would be awesome - I can write about how the school accomadated/or didnt accomodate you -LOL And if you live off campus, that would be fine also. I will be interviewing the dining services at my own school about students with special dietary needs. I really hope this helps to spread awareness. If I lived on campus with a meal plan at my school I would be screwed!!!. Although there are ways to make meals gluten-free, it would be impossible to avoid cross contamination...another thing people really dont understand. i worked for catering at my school and saw first hand how cutting boards and surface areas are used to cut bread, fruit , meat....everything. They are wiped down, but its not enough. i would love to purchase the fresh cut fruit at my school, but because of this I dont... I'm even leary of the salads.

thanks!

thanks for the advice, thats what I was planning on doing, just finding people to interview is the hard part. I think I may start by asking the food service at school to see if any students have adressed dietary issues to them...

Not sure where to post this....

So i e-mailed a suggestion to my college newspaper asking them to write something about about students who may have special dietary needs such as celiac, diabetes ect... I didnt expect an e-mail back asking me to write the article! I have no problem with it, but I really don't know anyone at my school who has celiac. I am gluten intolerant, but not diagnosed, and i rather not make my health problems that public and just talk about me lol

But anywatys, I'm excited because this gives me the opportunity to spread the word about celiacs, the proper way, so people dont think it is just some food trend ( which seems to be the case lately ) Does anyone think it would be o.k to just cite other sources instead of actually students at the school?? or should i just write an article explaining celiacs disease and how hard it can be for a college student to have it? God, there has to be someone at my school who is adiagnosed celiac...the article would be much more interesting if i could incorporate actual people....

Kay guys, what are your top grocery 'splurges' and why? $$$

Mine are: Virgin Coconut Oil (thank you Rice Guy for pointing this little jar of saturated love out to me) 10$ a jar here

why? it's tastes phenominal, is incredibly versatile, and since I have switched to using this exclusively I have been feeling better!

Organic Coconut Flour I need not explain why this is a little bit of mouthwatering muffin making heaven It's just over $7.oo a bag @ health food store but worth every penny. hehehe

Organic Almond Butter mmm melts in your mouth, I use it frequently in Thai dishes replacing standard peanut butter, rich and flavorful. $6.99 @ grocery but sooo worth it!

Fresh Pineapple I budget for one a week. It's so hard to not eat the whole thing when I am making a recipe with them. I love the way it drips all the way down to your armpit when your cutting it too! lol $1.29 a pound @ grocery

Organic Maple Syrup ON PUMPKIN PANCAKES... coming right up! $7.99 a bottle @ grocery and so worth it! (budget 1 a month for me)

Organic Frozen Sausages & Bacon I keep in freezer for adding to bean soups, very flavorful so a little goes a long way... I pay $5.99 for 8 slices of bacon and $7.99 for 4 sausages.

lovelove

OMG, pumpkin pancakes sound amazing. how do you make them?

thanks! I havent heard of that. I'm definitly going to look into it! I'll wait till after the G.I doc and see whats going on before I use anything else though.

My doc recommended t for me for my constipation until I get to the G.I doc. The first time I took it I got horrible cramps about 8 hours later..almost like the type I would get with "D" accept i didnt have D. He wanted me to take one in the morning after a meal and one in the evening and of course drink plenty of water. I tried it for about a few days and it didnt seem to bother me again, but then I started getting sharp pains and cramps to follow... and when it happened at work I thought I was going to die trying to keep a striaght face dealing with the public and having pain!

So I went off of it and the cramps dissapearred, tried it again and they came back...I can't take the pills anymore...not worth it, I'd rather be "C"....but I'm not always C, it just seems to happen whenever it wants. If I eat nothing but cooked veggies, fruit and fish, I am fine, but I would like to be able to have more variety, I cant go on like this forever....

I've tried stool softeners and other fiber products, same reaction.

I was just seeing if anyone else else a problem tolerating pills like these, or if there is an underlying reason I can't take them.... it will be interesting to see what the g.i doc says, I've had so many problems up until now that his head will probably be spinning

hahaha I'll have to look for that.

another thing, beside dreams, I havent had any cravingd for gluten what so ever, especially not bread, but it bothers me that lately I've been craving Grape Nuts- AHHH! And this was one of the products that bothered me big time....wierd

yup yup! And I sat there thinking how many other celiacs saw this...as we are probably the only ones to notice something like this, especially since its shown in a split second!!!

has anyone actually had a reaction to hershey kisses? I've been eating them with no prob...but now I'm mad b/c I read this after buying a whole bag..

I know a lot of people have posted about dreams where they are eating gluten.

For th past couple weeks it seems I started having theses dreams where i am eating pizza, toast, or whatever and doing it purposley knowing it is bad for me and then worrying that I will get sick. I know part of the reason may be because i am seeing a g.i doc next week and I am afraid he is going to want me to go back on gluten for the test, but I DONT WANT TO! And they cant make me!!. I've gone so long without being sick, I swear this is a record for me in 7 years: over a 1/2 a year without a cold or sinus infection!!!!

For anyone else who has had dreams like this, when did you start having them? I never had them when first going gluten-free, but now, a few months in, it seems to be every other night almost!

if you were diagnosed with celiac disease, you have it, there is no false positive result. Even if you do not feel symptoms eating gluten, you are doing damage to your body, it will hit you hard in the long run.

So I've been staying away from nightshades as much as I can b/c I have found they make me feel icky. I ate a tomato the other day because a friend brought some over from his garden, it wasnt even appealing to me!!! and now just thinking of tomatoes make me feel naucious!

I read that sweet potatoes arent nightshades??? I never really ate them much before, but I've been having them quite regularly now. I cut them in strips, put them on a tray with olive oil and pepper and stick em in the toaster oven on broil untill they get crispy on the edges...mmm....

on the other hand, regular potaoes : the thought makes my stomach churn now! I dunno why, I used to love them, but sweet potatoes are way better. I hope they arent a nightshade...

I know what you mean about organic and gluten free being confused with each other. When my daughter was first dx, my mom called me to tell me she found organic oatmeal at stater bros. Don't get me started on how many people here gluten and then think she has to watch her sugar.

So I agree, the more people hear about it the better.

haha. I hear ya. I told people at work that I cant have gluten b/c they kept giving me snacks and homemade brownies ect...which I turned down of course......they all thought I was diabeic well, actually a couple understood completley, but still.....glucose....gluten.....hmmm

you know, I was going to post about this also! I've been having allergy like symptoms much more lately since going gluten-free. I always get symptoms this time of year, but this is differant than usuaal...I almost thought I was getting a cold at first! itchy eyes, runny nose, itchy throat! normally I get sinus infections this time of year, but i guess I'd rather have this....

Just 3 ideas:

Bragg's apple cider vinegar(has the "mother" in it)- straight shots or in juice, or drink it with a straw at the back of the throat to avoid the taste. It helps my sister who only "goes" about 1 or 2 times a week for years until she got started on it. Good for lots of things!

www.bragg.com

Berries with seeds, extra benefit if you chew the seeds

Popcorn if you can tolerate it (never microwaved)- pop in coconut oil, use plenty and you don't need butter

wow, I will try that!

as far as the seeds and popcorn, those actually dont do much for me, but then I always buy smart balance microwave, so maybe I'll try what you said. It just seems that anything fiberous does exactly the opposite of what its suppose to do for most people, its almost like my body doesnt properly draw water into the intestinal tract.....but then I could stil;l be healing because most of the time my foods never seem to get digested or broken down, and then this causes them to just sit in my colon....

I was excited when I saw this! although it does bother me a bit that people combine the idea of Organic and healthy foods with allergies and Gluten free. The last thing I need is more people thinking that gluten free means organic or healthy.... its not neccesarrily a health CHOICE. it is, but it isnt depending on how much you care about yourself....

but still, at least gluten free is getting heard a bit more...

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I am not ingesting gluten, although it is possible I may be getting VERY tiny amounts though CC in my environment. Unltil I get out of college and on my own, I will have to live with someone else. I wash my hands and do everything I can to avoid CC. I only got constipated when I was eating gluten when I would take in large amounts, especially the whole grain type,whole wheat breads, bran cerals ect.. ect.. but it was a differant type of constipation, more irritating and itchy.

Gas and bloating are my immedtiate reactions to gluten, then D will follow if i am continuing to consume it.. Even when I stick to nothing but fruits and veggies i still have this C. I will have to try eliminating meat, but then I dont know where to get my protien since nuts and dairy bother me, beans arent so great for me either.....this sucks sometimes!

About a month after going gluten free I started getting c. It would be off and on, but now a few months later it seems to be all the time. I get the urge to go, but it just does not want to come out. Sometimes I'm straining so hard my head starts pounding! the doc recommended "fiber con"...it gives me horrible cramps that just come whenever they please. I've tried stol softners, but i get gassy and bloated. I've tried elimiating differant things nad find find that nuts and corn make it worse, but not always..... If I eat an insane amount of veggies I go somewhat normal, but the initial "getting it to come out" is still a bit straining. The stool will be softer with certain foods, but it lately has been nothing but dry. I hate to say it but I've actually had to use my finger to get it out!!! It makes me want to vomit!!! (SORRY, but maybe someone else has gone through this???)

The only thing differant that I can think of in my dietis the probiotic I stared a month after going gluten-free. I am taking Schiff- acidophilus it is gluten free. I take it twice a day and maybe 3 if I know I eat something that will bother me a bit (non-gluten of course) and it definitly has helped my heart burn problem. I've been reading that probiotics help with C, but is it possible for them to make it worse? Or should I try a differant type of bacteria?

I'm seeing the G.I doc next week. At this point I definitly dont even want to be tested for celiac, I just want to go to the bathroom!!!! I'm thinking I may have colitis....but the thought crossed my mind about the probiotics....

any feedback?

Could you put your dirty gluten-free dishes in a bag in your own dish pan/storage container, to protect them until you get back home to wash them after classes? My dd moved to an apt. and lives with a slob. She can't even make something b/c all the pans are in the sink and the dishes in the dish washer...dirty. I cook food for her and freeze it, then get it to her (over an hour drive) so all she has to do is microwave it. Its fun cooking for her but its not fair b/c I bought all the kitchen stuff and she can't use it. When her lease is up she WILL have a new roommate! 8 months to go

you know, I never though of that!!! thanks! so far my roomie is pretty clean with dishes, but I will definitly be doing that if there are dishes in the sink. She already took one of my spoons I brought with me here but oh well, it's just a spoon, I'll make sure to put it them away next time immediatly after washing......grr

I'm moving back to my apt. at school this weekend. Unlike last semester I have a roomate this semester so I planned ahead. Obviously it will be impossible for me to have a gluten free kitchen so I am bringing a plasic storage container for all my food and keeping it out of the way. As far as pots and pans/silverware ect.. I'm using my own and washing it immediatly after I am done using it with my own sponge that will also be out of the way of all the gluten foods. I'm keeping a few plates, bowls and silverware for myself to use in a plastic container also. I think as long as I wash my hands before I eat and dont clean my roomate's gluten dishes I will be O.K. It will suck b/c a lot of times I'm in a hurry and leave stuff in the sink, wah it later... that is one thing I wont be able to do anymore with sharing a sink. On the positive side, I have a good excuse NOT to wash my roomates dishes!!! And she definitly doesnt have to worry about me eating her food. I'll just have to make sure she doesnt use my mayo/butter, I'll definitly be sharpie-ing it "gluten-free" haha- you never know who may just stop by and use something of mine

Hugs to you all.

I am stil so new to this..and its been 2 years at least. My moods were so bad, I was on 2 kinds of depression meds and still I wanted kill myself daily, and my rants and rages were bad. After celiac I am on nothing but I suffer from constipation I assume from al my protein intake and I am confused as hell about modifyed starchs...gawd! No one can give me an anwser there. Ugg..

I was tolds to start the Birth control pill which has MS in it...and I have been suffering bad mood swings....I am at a losss....

Rebecca

I cant take birth control. Thats what I did last time to start my periods back up. I gained 20 IBS on the pill. retained water so bad it hurt to touch my skin and my muscles would cramp up with charlie horses. I enede up in the ER with a hemoglobin of 8 and then had to go on iron, which made me sick also- blah! My gyno I have now said she wont put me on the pill since there are heart problems in my immediate family and conidering my reaction...

My "friend" went from 29 day cycle to 34 since gluten free. Weird. I dont understand how it messes with the hormones. Im at a loss.

I hope they get to the bottom of your issues soon. No pun intended.

I think it might be because wheat products have phytoestrogens ( they can mimic estrogen in the female reproductive system) so taking that out may throw the hormones off in some people.....but dont qoute me on that, I've only looked into the phytoestrogen thing a little bit becaue i have tried taking fennel in the past ( before going gluten-free) for my gas problem- (HA, the things I've tried........)

Please keep me updated as to what you find out! I would say that mine is either from the digestive stuff OR because I'm 25 years old, 5'5" and I went from about 125 lb to 117lb? Do you think? I started dieting in April. I'm so confused!!!! I wish it would just come...

I will definitly post back on hear after my appt.

it sounds like your problem is from wight loss, but probablyl that with a combination of other things.

Do you have any pms symptoms? When I lost my period @ 115 pounds I didnt have any pms symptoms what-so-ever. Right now I've been having constant pms symptoms since april, but no period since may! Most of my body wieght is muscle mass, but I can gain up to 10 ibs in water just in 2-3 days- so frustrating!!! and uncomfortable. BUt nobody ever takes me seriosly because I look thin, like 120, but I am really 140.... I know I have a good balance between fat and muscle, but I dont feel in balance, one day I'll be 135, the next 145!! so i am completely lost....it has to be gluten related....

I am in you EXACT boat. I have not had my "friend" since April. Since April I haven't consumed gluten, except for the few "messups." I am also in your same boat with the C. I went gluten-free and THEN had all the Celiac tests, which, were negative - no surprise. I had an endo and a colonoscopy. The dr did find a form a colitis - proctitis. This means that when I have a "flare up," I won't be able to get anything through me...not even a laxative, until the bottom of me is softened. So when I make mistakes I get severely backed up and have to do enemas. Have you had a colonoscopy?

My biggest frustration, though, is still that it's been since April with no friend! I'm getting married soon and am getting concerned about children....

OMG!! my mom mentioned colitis! well I'm glad I'm not going insane.

I havent had a colonoscopy or anything. I havent actualy been to the G.I. yet, or ever. I havent had my P since May, and like you I am more concerned about that than the digestive problems. I'v lost my period for being too thin when I was 16, but I wiegh 140 now and am 5'6.....I was 115 when I lost it last time! I'm mostly muscle mass, but I DEFINITLY have healthy fat on me...

thanks so much for responing