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Right Jenny! Kikkomans has wheat in it and it tested NEG. Neither you are I are going to eat Kikkomans soy sauce because it clearly states it has wheat regardless of the Elisa test. That is why the NEG list doesnt interest me either. I cannot trust a NEG with the Elisa test because of my results. However, based on my tests, a POS can be trusted because they DO detect large amounts gluten (I just question the sensitivity of the test). So only the POS list has value to me personally.
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Personally, I could only feel comfortable posting a POS list. No one would get hurt. People would avoid those foods.
It would absolutely kill me if I posted a NEG list and people trusted it and even 1 person got sick based on my list.
No way could I do that.
No way.
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If you want Celiac blood tests, you MUST keep eating gluten. 2 weeks even can cause a false NEG. So you need to eat plenty of gluten for a few months and then test.
It is not unusual for Celiacs to feel worse for a few weeks as the body heals. Think of a broken toe. It will heal, but it will be sore for awhile until it gets to a certain healing point. Same for your intestines. I didnt start feeling better till about 6 weeks gluten-free.
Also MANY Celiacs cannot digest dairy until the intestines heal. If you want to continue gluten-free and see if it will work, then you might want to cut dairy out too. Once you are symptom free, add dairy back in and see if you tolerate it.
SOY is another problematic food.
I suggest if you want blood testing to keep eating gluten.
If you decide, no way, not gonna pay for the blood tests, then I recommend cutting DAIRY and SOY while you heal.
And there is no need to spend a lot of money on (Pre-packaged) gluten-free foods and in fact while you are healing, they can impede progress. They arent easy to digest and if your intestines are damaged, then they will be all the harder to digest.
You MUST give you body time to heal eating simple easy to digest foods before adding in complex processed gluten-free foods and dairy.
Meats, Eggs, Nut butters for protein. Lots of fresh veggies (raw and cooked). Winter squashes. Sweet potatoes. Fruits. Rice. These foods are a lot cheaper than ready made gluten-free foods and they are naturally gluten-free.
Drink lots of water. Consider a good probiotic and digestive enzymes.
Mostly make sure if you want to go gluten-free without testing that you are 100% gluten-free. Get rid of old scratched Teflon pans, wooden spoons, toasters, cutting boards. These can all harbor gluten. Do not let anyone use wheat flour in your kitchen. You will get cross contaminated. Make sure no one double dips into your nut butters. Bread crumbs can get in you that way.
Check your shampoo, facial cream, washes, lipstick, etc. You can get gluten this way too.
Dont kiss anyone that eats gluten and has not brushed their teeth.
No Wheat, Rye, Barley or Oats in any form.
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Or the next batch is run on the line right after a wheat product.
Anyone eating the Kikkoman's yet?
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Have you heard of the IBS Low Starch Diet?
Open Original Shared Link
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I had 2 gluten sensitivity genes through Enterolab. No Celiac genes. But POSITIVE response to a gluten-free diet.
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I looked at that recipe and my blood sugar shot up....LOL
How are you Pyro? Havnt seen you around in awhile?
I would use more of the coconut cream with coconut milk mixed in until "sweetened condensed milk" consistency. You might need more sweetener though. You could add honey to the coconut cream/milk mixture. Make sure the liquids are equal to what it calls for.
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A person can have both Hashi's and Graves disease at the same time. Your symptoms are a little of both. Have they tested you for BOTH thyroid antibodies?
How are they treating your Hashi's? Hashi's is different than other types of hypothyroid. The goal is to suppress the TSH to stop the attack and to eliminate symptoms. Sadly many doctors just get their patients into the "normal" range and people continue to suffer for years.
I was not well until my TSH was suppressed .08 on Armour.
What are your most recent thyroid labs like?
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According to a web page on cholesterol testing from the the Discovery Health Channel, abnormally low levels of cholesterol may indicate:
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hyperthyroidism, or an overactive thyroid gland
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liver disease
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malabsorption
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inadequate absorption of nutrients from the intestines
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malnutrition
Manganese deficiency has also been linked to low cholesterol levels (hypocholesterolemia).
The BBC news reported in 1999 that low cholesterol levels were linked, in both men and women, to depression and anxiety. In a separate story on the same topic, MSNBC reported that, a study conducted in South Korea found that depressed patients with low cholesterol levels may be more likely to commit suicide.
The CNN web site has an article on low cholesterol that reports that people with cholesterol below 180 had twice the risk of hemorrhagic stroke over people with cholesterol levels at 230.
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I have always run them under cold water once done boiling and then threw in an ice tray and let the ice melt. Never had one stick.
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Bravo!! So happy for you.
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Found this:
Open Original Shared Link
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Well you will just have to try other flavors to find out.
Chocolate, Vanilla, Coconut, Peanut butter/cholcate, mocha fudge, mint chip
Whatever will you do to get to the bottom of this........
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I personally would go ahead and enroll him. I started K at 4 and I was the smallest in the class for many years. I am not a big person now either. My size was never an issue. But I will say that being "the smartest in the class" was actually a negative for me. It was especially hard for me when teachers made a fuss over me being the only one in the class who made 100 on a test. Dirty looks. Punching on the playground. I remember other kids asking me if I had studied for tests. I learned to lie for fear of rejection. And it became even more problematic in H.S. when I got a teacher that graded on a "curve". Everyone hated me then. So I learned to cower. In college a History teacher graded on a "curve" as well and I remember protecting my SS number with my dear life. Only SS were posted with the grades. No one knew who set the "curve" then and I was relieved.
I am great online. The wonderful anonymous world of the Internet, but in person, I never talk about my accomplishments. I still feel like that little kid inside.
If he can be on par with other kids, that might be a good thing. I dont know your child. But wanted to give my perspective.
Just a thought.......
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Sadly, if the doctors have not Dx Celiac, there is no reason that legally she cannot feed him gluten. Sorry you are having to deal with this.
Celiac usually causes "low stomach" acid. But could cause the reverse. What most people call acid indigestion is usually a sign of "too little" stomach acid. That is why TUMS just makes it worse over time.
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Basically when he told her all about me and she disapproved he just pretended I didnt exist (to her). I do not know what he was thinking. Like we would get married and never tell her? Weird indeed.
This is my point. What is your BF thinking?
Sometimes we just dont know.....and it is up to you to confront and find out. You are worth it!!
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Mine were slightly elevated prior to gluten-free and have returned to normal.
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I have nothing to add other than I tested NEG on bloods, refused biopsy, did Enterolab genetics and discovered I have 2 gluten intolerance genes. Went on the gluten-free diet and have never looked back. I will never eat it again. Gone are the migraines and dizziness. Gone!!
You do not need a doctor's permission to go on the diet.
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Their genetic testing is accurate.
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I see RED FLAGS all over your post. I agree. You deserve better. 2 years is a decent commitment to someone. If you continue I would assume that you would might want children at some point. If your baby has Celiac (it is genetic), think how your child will feel that he/she cannot go over to Grandma's. OR picture how you will feel if your child is allowed over there, but you are not invited. Oh yeah. This sort of thing happens all of the time in families with major issues.
They are unwilling to work with you now. Why not have dinner at your house? Why cant you visit with your BF and just not eat? This wont change once they become in-laws.
I would demand therapy with my BF to resolve this issue or tell him you are moving on. If he loves you, then he would be more than willing to find a way to work this out. He is hurting you. Celiac is no excuse to treat someone like dirt. Celiac is no excuse to not invite someone over. There IS more to this. TRUST ME.
I dated a guy years ago who seemed absolutely smitten with me. He had a chalk board over his desk at his apt. In chalk he wrote "Chris + Sharon" with a big heart around it. He kept it up there for months. But then his Mom visited I wasnt invited to meet her. We had been together for over a year. And the next time I was at his place, the heart was erased. When he graduated from college, he told me I could come, but he was having dinner with his Mom afterwards and I wasnt invited.
Finally, I had had enough. So I flat out called his mother. I introduced myself and she was taken aback. We talked about Chris and this woman worshiped her only son. Chris had asked me to marry him (but I had not answered him), so I asked her if she new. The woman started sobbing. She said. No. No. She wouldnt have it. Here reason: I already had a child and she wanted "her own" Grandkids.
I then invited him over and told him NO I would not marry him. I could never see putting my beautiful innocent child into such a situation. Nope. And confronted him about his Mother. He admitted quite a few things to me then. Like he still slept in her bed with her when he visited. And he was 23!!! And had his own bed/room at her house. Weird. Bye bye. No thank you. See ya!!
Word to the wise......
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I have nothing against Mike personally. I do not even know him. I personally just dont feel comfortable basing my own decisions on the voice of one person who has focused most of his energy in here on this ELISA test. That is just me and I use my own personal intuition. If you feel comfortable, then by all means, get him to list his NEG list. Use it. Feel confident in your decision. There is power in what you believe. If you personally believe that Mike has run tests and that those tests are accurate, then you can feel very certain that you can eat the foods that Mike says are safe.
I will log into this thread just to see if Mike actually posts that list. No danger in posting a NEG list at all. Doesnt hurt the companies in ANY way and in fact HELPS them make sales.
I dont feel bad for Mike. I envy Mike. Mike has found an answer to his prayers. He can eat in perfect reassurance that what he is eating is safe for him. He can afford to spend thousands of dollars on tests that make him feel safe.
I have not found that. I still have to be concerned about the foods I eat. I still have to read labels. I still have to stick to whole foods. I didnt get the results I would have liked from the ELISA test strips. No....I do not feel bad for Mike.
I have done my part in here. People can think for themselves and take away what they want and leave the rest.
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And it is not gender specific either. I have known the converse to be true as well. I personally dated a guy for nearly a year who was in Law School. I fell in love with him. Things went well for that time until I realized I was spending some 50.00 more a week on groceries. That my electric bills had went up. That he always seemed to have not brought his wallet when we ate out. Now I am no fool. It didnt take me long. One morning as he was toasting some of my waffles for breakfast, I asked him to contribute to my grocery bill. He said he couldnt because his grant had run out 2 months ago. He had been "mooching" off of me that whole time without letting me know. His Mom didnt like me....she thought I was a "gold digger". Yet, he was the one digging off of me. I broke it off with him because, deception is NOT my forte. Had he come clean and explained his situation to me and offered to help around my house or something in exchange it might have been different. He was also lazy.
But that relationship taught me what I DONT want in a relationship.
My DH and I are equally yoked. We both work. I am in sales, so there are times when I make 4 times what he makes a month. But he has the steady govt job with benefits. Overall we support each other. We both do housework. We both take care of the child and the dogs. Equal. If one is sick, the other takes over and doesnt get bitter or resentful. It is a "team" effort. But I know I am blessed, so few find this type of marriage.
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Let me say again: useless to me. I would not buy them again. They are too expensive. They are completely impractical. TO ME. WASTE OF MONEY.
Please anyone else who can afford it do your own testing. Post your results here if you like.
These test strips DID NOT prove valid or useful to me personally.
I have a Phd in Nutrition, but I certainly do not know everything about nutrition. I have taken Chemistry classes up the wazoo and understand how to do a valid experiment. I have conducted research and written a dissertation.
I never said that this experiment was a validated peer reviewed study. Or that anything I posted was conclusive. I just stated MY OPINION. I cannot afford to test these on a large scale. And I am not going to base my opinion on Mike (who posts only in here and doesnt participate on the rest of the board)
It was simply a retail customer buying a product, testing it for accuracy and determining that they were not accurate or practical for their own personal use. That's it.
It is so hard to know who works for ELISA and who doesnt in a forum like this. Many companies take advantage of sick people. I just try not to be a victim and in this case I didnt want others to fall prey either.
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You may simply not be eating enough calories. Try avacado with salads or as a snack. Nut butters on rice cakes. Maybe have a simple breakfast of fruit/protein smoothie. OR the nut butter/rice cake breakfast. Just a little something. Lunch Dinner PLUS 2 snacks. That should help a lot. Use a nice olive oil salad dressing and throw on some olives if you like them. How bout a yummy sweet potato with dinner? Or homemade fried rice with dinner. gluten-free soy sauce of course. Egg salad with gluten-free mayo for snack.
Holiday Work Party..uggghhh!
in Coping with Celiac Disease
Posted
I personally always dreaded company parties. But always felt obligated to go. At my age now, if I had a company party now, I would just skip it. But it sounds like you really want to go. And that is good.
What time will they be eating? Can you arrive fashionably late? And then just enjoy the fun (eat before you go).
Or I would go with eat only your own food. Company parties are usually confusing enough as it is for caterers. I would worry to much for errors.