ShayFL

It does show negative for the Celiac tests they ran. There are others that are IgG based they didnt run.

Your ferritin is low. Optimal is 70-90. Do you have fatigue? Heavy periods with cramps? Bruise easily? Hair thinning?

Your TSH is normal. However, there are people who do not feel well unless their TSH is under 1. Mine is curently .08. I personally was very hypothyroid with a TSH of 1.

Did they test Free T3 and Free T4 PLUS antibodies to thyroid? You cannot have an accurate picture of what is going on without these.

BTW the new TSH ranges are .3 - 3. Most labs have not changed the ranges even though they were changed by the medical community over 5 years ago.

How old are you? Have they tested your iron and ferritin? Are you taking any herbs or supplements other than a multi/vit? Added a lot of soy lately?

We would need to see the reference range for the Enterolab result.

Trauma and grief can certainly trigger all sorts of GI issues including Celiac and/or gluten sensitivity.

The proof is in the diet. So you can adopt a gluten-free diet and see if your symptoms go away.

I hope you feel better soon.

***YES. One can be POS and the other NEG.

Just Celiac gene testing.

People with the digestive disorder

diverticulosis may no longer have to worry

about eating hard-to-digest foods like

popcorn, corn and nuts. For many years, it

was suspected that these foods increase

the risk of complications, such as infection,

but a new study found that they may

actually have protective effects.

The study, published in The Journal of the American Medical

Association (JAMA), is believed to be the first large study to

investigate the effects of these foods on diverticulosis. This

disorder occurs when small pouches develop in the lining of the

colon, but it does not usually cause symptoms. If the pouches

become swollen, a condition called diverticulitis, intense

abdominal pain and sometimes nausea, vomiting, bleeding and

cramping may occur.

Beginning in the 1950s, many doctors advised patients with diverticulosis to avoid eating popcorn,

corn and nuts. Some even warned against eating fruits and vegetables with seeds, such as

tomatoes. These restricted diets were recommended based on the theory that the indigestible parts

of foods would get stuck in the pouches and cause complications, such as infection, inflammation

and bleeding. Until now, studies on this correlation were lacking.

Researchers used data from an ongoing Harvard School of Public Health study. They analyzed

47,228 men who were 40-75 years old at enrollment and had no history of diverticular disease. For

18 years, the participants completed biennial questionnaires about the foods they ate and their

health status.

By the end of the study, 801 men were diagnosed with diverticulitis and 383 had diverticular

bleeding. Those who frequently ate popcorn, corn or nuts did not have an increased risk of

developing diverticulitis or diverticular bleeding compared to men who rarely ate these foods. Also,

none of these foods were associated with the development of uncomplicated diverticulosis.

In fact, eating nuts at least twice a week was associated with a 20 percent reduced risk of

diverticulitis, while eating popcorn twice a week or more was linked to a 28 percent lower risk. The

authors concluded that the current diet recommendations for patients with diverticular disease should

be reconsidered.

Yes, go ahead with the genetic testing. It isnt diagnostic, but it could be a useful tool in helping you stick to the diet. Remember healing takes time. For some up to a year or 2. So be patient and make sure you are 100% gluten-free and see if your symptoms subside.

happygirl is right! Go to this new doctor. Might as well get as much as you can paid for through insurance. You pay your premiums so dont pay out of pocket unless you have to.

Just tell this new doctor your symptoms, your daughter's symptoms and your family history. Ask for complete Celiac panels for you and your two daughters. Also ask for genetic tests for everyone. All the doctor can say is no. You have nothing to lose by asking for EVERYTHING.

Yes!! Many of us went through that and "withdrawal" is the appropriate term. It took me 6 weeks to get through the PMS like symptoms, insomnia and extreme hunger. Hang in there....you will get better!

Have you ever cut into an apple that looked perfectly delicious on the outside, but was rotten on the inside? No symptoms does not mean no damage. Just so you know. Consider the home builder who decides he will use untreated 2x4's just here and there...the rest of the house will use pressure treated wood. The house might stand for awhile and look great, but the damage is being done as the termites are eating those untreated timbers. Hope this helps!

Maybe these will help:

Open Original Shared Link

Open Original Shared Link

Thank you for sharing your beautiful story G. Beautiful because you love your Amy so much and went gluten-free with her and you "get it". Not everyone is so fortunate and plenty of people forget their wedding vows before the honeymoon. My DH and DD both went gluten-free in our home for me. There was no fight or fuss in anyway. They both wanted me to get better. They love me more than food. We are blessed indeed.

Valda - this is my field.

Yes, certain vegetables and grains are what are called goitrogens. These chemicals block T3 from attaching to the receptor sites, thus creating a hypothyroid condition. Eating small amounts of them would not be significant. But eating them EVERY day can cause enough blocked hormone to create CLINICAL hypothyroid.

The vegetables with significant goitrogenic activity are:

Cruciferous vegetables including:

* Broccoli

* Brussel sprouts

* Cabbage

* Cauliflower

* Kale

* Kohlrabi

* Mustard

* Rutabaga

* Turnips

Millet

Sorghum

Peaches

Peanuts

Radishes

Soybean and soy products, including tofu

Spinach

Strawberries

****BUT cooking destroys a fair amount of the goitrogenic chemicals. So as long as you eat these foods cooked (or fermented), you should be fine. If you are hypothyroid, you should dramatically cut back on these (if you eat them RAW) or avoid them all together (RAW).

Yes. Find anothere doctor. Geez......

Im going to try these next month when the weather is cooler (for safe shipping):

www.bellyveggies.com

I agree that the biopsy can be a good tool to help you adhere to the diet. But keep in mind that you CAN have Celiac with POS bloodwork, but the biopsy can come up NEG because the damage is not significant enough yet to show villi damage (or they didnt take enough samples or in the right places as damage can be patchy). BUT SHE STILL HAS CELIAC based on the blood. Since she does not have symptoms, it is very likely the villi will seem fine. BUT SHE DOES HAVE CELIAC. If your decision about a gluten-free diet will be based entirely on the outcome of the biopsy, you could make a grave mistake. You cannot ignore 3 POS blood tests. Especially since so many children under 6 with Celiac cannot get a POS blood until they are older. The fact that she shows POS at 4 really says something. IT IS CLEAR.

What posters meant to say is that there are rarely "false positive" and not "false negatives". "False negatives" are actually quite common. "False positives" are not common.

You should ask for genetic testing for your DD. And then for you and DH. This is another piece to the puzzle.

Country Life and Pure Encapsulations supplements are ALL gluten-free.

I have never been overly fussy about my skin, but I did have to give up this wonderful (and way too expensive) moisturizer I was using because it has wheat in it.

So I tried a few different things till I found some products I like. We are all different and you may have to waste a little money through the trial and error time. I didnt throw any creams away. If I didnt like them on my face, I used them on my feet or legs.

For cleanser.....I love these:

Pond's Exfoliating Clean Sweep Cucumber Cleansing Towelettes

You dont have to rinse, but I do with cool water because it feels nice. I dont wear much makeup, but when I do it gets it off well. For waterproof mascara you will have to use makeup remover tho.

For moisturizing I finally settled on Burt's Bees Pomegranate series. I use the night cream and the repairing serum. It was VERY different from what I was using and I didnt LOVE them at first, but after a week I really did LOVE them. They work well for me:

Open Original Shared Link

I confirmed that all of these are gluten-free.

Or quail eggs. They sell them in Asian grocery here. Of course you would need like 4 of them to equal 1 chicken egg. Duck eggs are bigger, so you might have to subtract a tlb of liquid from the recipe for baking. But an excellent idea!! Other types of eggs.

I just avoid the obvious things: anything that goes on my lips or face or hands (including chap stick, lotion and shampoo. I dont worry about anything else really. I give the hairspray a cursory glance to make sure it doesnt say WHEAT anywhere. Usually it is just a bunch of chemicals anyway.

Dont be afraid to be knowledgeable with a doctor. A good doctor will listen and admit if he does not know something. A bad doctor will belittle you, act arrogant or get upset that you actually know something. Fire a bad doctor and look for a good doctor if that happens.

Hoping all goes well and you get some answers!

Sounds like Hashimotos. The thyroid can "sputter". I had a similar experience. You could also have issues with your adrenals.

I got better. My skin got better. My boobs got fuller.

There is hope. Hang in there!!

Let us know what the specialist says. It may be that you can work with them plus do some holistic measures (like I did) to get you well.

If it just says...."manufactured in a facility that also manufactures wheat" and nothing else, I wont buy it.

If it says something like...." "We do not provide a gluten or allergy free statement for our products since the facility and production lines haven't been verified to run as such. We do follow strict Good Manufacturing Practices to minimize the potential for cross contamination but we do not test for the presence of allergens in our final product. "

I like to see some indication that they are aware of CC and the negative consequences it can have on certain people and are doing things to make sure that doesnt happen i.e. good manufacturing practices....

So far this has worked for me very well. No glutening from any products. Of course most of what I eat these days is from scratch and whole foods. But I do have the chip now and again.

*The above products do not contain gluten; however, they are produced on the same line as our products that do contain gluten. Although the lines are washed between batches, a slight residue may remain on the lines. Individuals who are extremely sensitive may be affected.

This is what would concern me. You know working in a factory is hard work. And someone might be tired one night and might not wash the lines as good as they should. So there is more than a "slight residue" left. And the first run of the next product could pick up the most of this residue and you could get glutened.

This is an interesting article:

Open Original Shared Link

So happy the pieces of the puzzle are coming together for you.

Owls are such cool creatures......