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ShayFL

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    Holistic Nutrition, Fine Art, Big Dogs
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    Tampa

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ShayFL's Achievements

  1. The manager at my local Cheescake is Celiac himself and so is his daughter. I didnt know this the first attempt and while accommodating, I got glutened. They werent careful and I got veggies thrown in pasta water. The manager picked up the tab for all 3 meals, drinks and desserts. But I got sick. :(

    Anyway, he told me if I would trust them again he would make sure no mistakes. He told me to call ahead and ask for him personally. So the next time, I did just that. When we got there, he greeted us. He personally took my order went to he kitchen and assisted the cook in every step. He told me he didnt take his eyes off my food the whole time. I had pan seared Mahi Mahi with sauteed carrots and a salad. I didnt get sick. :)

  2. You do not need a doctor's permission to go on a gluten-free diet. So what if you dont get an official dx of Celiac? If the gluten-free diet makes you well.....you have your answer regardless of what type of label you want to call it (Celiac or Gluten Intolerant).

    BUT you need to be 100% gluten-free. No Wheat, Rye, Barley or Oats. Check everything. Ask in here if you are uncertain. Call manufacturers to check. Make sure all toiletries like toothpaste lip gloss, creams, etc. are gluten free (anything that can get into your mouth in anyway must be gluten-free). Give it a solid 3 months and see if you dont improve.

    If you are Celiac that would explain why you can no longer digest fats.

    Genetic testing will not dx Celiac. It is just another piece to the puzzle. If your parents can get tested, then great, they should.

    But you can start the diet today and see if you get well.

    OR you can eat tons of gluten foods everyday for 3 months and get all of the tests.

  3. Did you guys know that there is no such thing as a "Cornish" hen? Those little birds are just chickens that are not fully grown yet. Kinda like veal (baby cows). That is why they are so very succulent. :P

    I am challenging "Corn" as we speak. If all goes well, I will make cornbread stuffing for TG. If not, it is sweet potato casserole. :)

  4. Your suspicion is correct. Autoimmune diseases tend to cluster. If you have one you are much more likely to have another. In my family it is hashimotos (thyroid) and psoriasis (skin).

    So sorry to hear of your health issues. How awful for you to suffer so much.

    Your endoscopy showed "some erosion" which might mean villi atrophy which would indicate Celiac. Have you done a complete Celiac panel INCLUDING IgA. They said you were immuno deficient so they may have tested your TOTAL IgA.

    Do you have copies of ALL of your lab work and endoscopy reports? It is your legal right to have them. If you dont, request copies. Let us know exactly what they tested and the results and we can help you as much as we can.

    It certainly would not hurt at this point to try a gluten-free diet. It is a healthy diet. But if you want Celiac tests, then you need to keep eating it until AFTER all of the testing is complete so they will be accurate.

  5. You really should get Vit D tested before supplementation. In general you can safely take 2000 IU a day without problems. But because Vit D stores in the body, you can overdose (which has it's own problems like bone loss). You need 15 minutes a day of full sunlight on 90% of your body in the tropics during the Spring/Summer months to get enough to make enough Vit D for your daily needs. Northern people should almost always supplement. But a simple blood test can let you know for sure.

  6. If you are open to it, I would suggest Acupuncture. It can open up energy blockages to different organs. I know many people who have benefited from it. And there have been many studies done on it and it is recognized by the AMA as a valid therapy. My insurance even covers mine.

    At this point for you, it would be worth a try.

    The needles are sooooo tiny. I dont feel a thing and I find it relaxing.

  7. They can find nodules...but they cannot tell if they are cancer or not. Sometimes they just "watch" them to see if they change. Sometimes they do a needle biopsy. In my Mom's case, thank g-d, cuz the needle biopsy showed her cancer. They caught it in time and she had her thyroid removed.

    My PTH was normal when my Vit D was in the toilet. So there are no hard and fast rules. But getting the PTH checked is a good idea.

  8. Welcome to the club. We are happy to help. Hope he recovers quickly!

    Did you get DD tested for Celiac too? Her issues could be related. Also at least you or your hubby has the gene(s). You might think you dont have symptoms, but you would be surprised at how good you feel gluten-free if you are Celiac without knowing it and go on the diet.

    PLUS it is A LOT easier for the whole house to be gluten-free.

    See about get everyone tested. Might as well do it now in the beginning of your journey.

  9. 2 things caused my daughter pain when I was BF. Garlic and Salsa. So I didnt eat them and all went well.

    If you have already eliminated all the gassy (broccoli, cauliflower, cabbage, peppers, garlic, onions, beans) and hot/spicy (any red pepper, chili pepper, jalepenos, etc) and that has not worked then a gluten-free diet for you and strict BF would be my choice for now.

    Goats milk IS NOT ideal for a human infant. It IS for baby goats. And besides ALL of the goats milk you can buy legally is pasteurized (i.e. dead and without enzymes). Back in the day they did use Goat's milk as a sub for breast. But it was RAW goat's milk which is as close to human as it gets. But the dead stuff is crap. In Florida I get raw goat's milk from a local dairy but they have to mark it "for pet consumption only" for it to be legal. We drink raw goat's milk keifer.

    And SOLID food is a BAD idea at her age. My g-d!!! IMO that will wreck her. Babies arent developed enough for solid food until somewhere after 4 months and if you can BF for 6 and then introduce foods that is best. Back in the day at around 6 months, Mom's would "chew" their own food and give the baby a little bit of this pre-chewed food. Mom's saliva and enzymes would start the digestion process for the baby because at 6 months babies dont have all of the enzymes to digest fully. This is how nature intended it. Not a jar of gerber.

    We are so far from what really makes for healthy human beings. We just keep going against nature.

    Please do not let your inlaws sway your care of your baby. I'll bet you have instincts and that they are correct. :)

  10. Firstly, if you go gluten-free even for a week or 2 and then get tested they may ALL come back negative (a false negative). You DO NOT want that. So if you want to get tested you MUST keep eating gluten. Do not stop. Or it ruins the tests. They would be useless.

    Secondly, I am sure each insurance carrier has different rules about PECs. You might call several of the larger ones and ask it Celiac would be considered a PEC.

  11. The liver makes more ALP than the other organs or the bones. Some conditions cause large amounts of ALP in the blood. These conditions include rapid bone growth (during puberty), bone disease (osteomalacia or Paget's disease), or a disease that affects how much calcium is in the blood (hyperparathyroidism), or damaged liver cells.

    If ALP is high, more tests may be done to find the cause.

    My guess is that it is thyroid related (your parathyroid). You should have them test your PTH (parathyroid hormone) and get an ultrasound of your thyroid done.

  12. Me too. I hope gluten-free is the answer. Try cutting the dairy at least for a few months too to give her time to heal. Soy could also cause problems. Keep her with simple foods as much as possible. Meats, veggies, fruits, nut butters, rice cakes, rice, sweet potatoes and winter squash are excellent and kids usually like them.

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