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ShayFL

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  1. Im no expert on canker sores. But if this happened to me, I would go get some colloidal silver and swish full strength in my mouth and gargle then spit it out. I would also buy the nasal spray and do 2 squirts up each nose. I would do this three times a day until all clear. But no longer than 7 days.

    I know there are the reports of people turning blue from colloidal silver but what you have to realize is that those people were taking suspended silver mostly made on home devices which make the liquid 200 ppm or more. And they were taking LARGE doses of that.

    The colloidal silver at the health food store is only 10 - 30 ppm and is safe for short uses. But do your own research on this.

    This is just what I would do.

    CS got rid of my pink eye when nothing else would. Within 2 applications it completely disappeared. I was so relieved. I also use it at the first hint of sinus trouble. A few days of squirts up the nose and that is the end of it.

  2. When we didnt know what Hanna was gonna do and the one before that one we did a little shopping.

    I bought canned tuna. Plantain chips and fruit that doesnt go bad fast. And my beloved Almonds by "Back To Nature". I was delighted when I called them and they were very up on Celiac and said all of their products are gluten free. Hemp milk. Apple sauce and canned fruits. This was enough for me to feel secure for up to 2 weeks.

    Good choices are apples and peanut butter or almond butter. Tuna and corn chips. Trail mix. Canned refried beans, salsa and corn chips. Could get corn tortillas too (they dont have to be refridgerated).

    Apple sauce and almonds. gluten-free cereal with the small individual rice/almond/hazelnut milks.

    Get some plastic plates, silverware and cups.

    Buy ice and put in coolers.

    Dont open the fridge or freezer if you lose power. Things will stay good for a few days if you dont open them. Hopefully power wouldnt be out long.

    If so....make sure you have lots of charcoal for the grill, so you can grill what you can.

  3. You should have a full Celiac panel done. Some say that it could be elevated due to other auto-immune diseases and that is why you should also have EMA:

    Diagnosis of celiac disease

    There is no test yet which is definitively diagnostic of celiac disease. Relief of symptoms or reversion of an abnormal intestinal biopsy to normal on a gluten-free diet is the most convincing evidence that an individual has celiac disease or gluten sensitivity. Intestinal biopsies as discussed above show characteristic findings compatible with celiac disease but are obtained just as often to exclude other intestinal conditions, most importantly infection, which can have a clinical presentation similar to celiac disease.

    The first serologic marker reported to be of use in the diagnosis of celiac disease was the IgG class antigliadin antibody (AGA). Though sensitive, this antibody is also found in other diseases and is therefore not specific for celiac disease. IgA class AGA is more specific, however about 2 % of patients with celiac disease have selective IgA deficiency. A positive IgG and IgA AGA gives a reported sensitivity of 96 % to100 % and specificity of 96 % to 97 %. If only the IgG AGA is positive an evaluation for selective IgA deficiency should be undertaken. Antireticulin antibodies (ARA) have also been reported in individuals with celiac disease, but are nonspecific. IgG ARA is relatively useless, but IgA ARA has a high sensitivity and specificity in adults (97 % and 98 % respectively). In children these values are much lower. Recently two antibodies, IgA class antiendomysial antibody (EMA) and human jejunal antibody (JAB), have been identified which are highly sensitive and specific for active celiac disease (100 % sensitivity and specificity reported in one study). The one best characterized is the EMA, an antibody against endomysium reticulin fibers. In adult studies, EMA was only found in patients with active celiac disease and not other diseases. The test is less powerful in children as EMAs have been detected in other childhood diseases. The more important limitation of EMAs in children is the reported fall in sensitivity observed in children with celiac disease less than 2 years old. Even the EMA and JAB antibody tests in adults are not fool proof as they may not be positive in individuals with celiac disease and IgA deficiency.

    A panel of these antibodies seems to be most useful in the diagnosis of celiac disease. A combination of IgG AGA, IgA AGA and EMA have a reported positive predictive value of 99.3 % when all were positive and a negative predictive value of 99.6 % when all were negative. These antibodies tend to lessen or disappear when individuals are maintained on a gluten-free diet. Antibody testing is important in screening individuals who are at risk for having celiac disease but have no symptomatology, in individuals with atypical symptoms or extraintestinal manifestations of celiac disease, and in individuals with presumed celiac disease who fail to respond to a gluten-free diet. Patients with postive antibody tests must undergo small intestinal biopsy to confirm the diagnosis and assess the degree of mucosal involvement.

  4. I made these today. A modification of another recipe I found. I made them SCD legal and they are delicous:

    Ingredients

    * 2 1/2 cups blanched almond flour (I prefer the flour from digestive wellness over Bob's)

    * 1/2 teaspoon celtic sea salt

    * 1/2 teaspoon baking soda

    * 1/4 cup honey

    * 1/2 cup oil (I made mine with 1/4 cup coconut oil and 1 egg white because I tolerate eggs)

    * 1/2 teaspoon vanilla extract

    * 1 tablespoon almond extract (I used 2 for a more almond flavor)

    * 1 cup cherry jam (I used digestive wellness brand which is SCD legal fruit and honey only)

    Directions

    1. In a large bowl, combine almond flour, baking soda and salt.

    2. In a smaller bowl, combine oil, honey, vanilla and almond extract. (or honey, almond extract, vanilla, coconut oil and eggs if you want what I did)

    3. Stir wet ingredients into dry.

    4. Roll into 1 inch balls (give or take)

    5. Place balls on parchment paper on top of a cookie sheet.

    6. Press balls to 1/4 inch thick (give or take)

    7. Put a dollop of cherry jam in the center of each cookie.

    8. Bake at 350 for 6-9 minutes. Watch them. You want them to just start turning brown on the edges. Not too brown. My oven needed the full 9 minutes.

    9. Cool and serve.

    ***If you are not SCD. Then you could use regular jam for these. Raspberry would also be good for those that can tolerate them.

  5. Dina...I feel your pain.

    Were you tested for (H. pylori)? There is a strong connection with this bacteria and gastritis.

    Sometimes gastritis develops after major surgery, traumatic injury, burns, or severe infections. Certain diseases, such as pernicious anemia, autoimmune disorders, and chronic bile reflux, can cause gastritis as well.

    Were you tested for PA? This would include testing your B12 and MMA plus antibodies to your stomach lining.

    On top of the avoided foods, consider elevating the head of your bed 6 inches or so. Dont lay down within 3 hours of eating. Dont drink too much with meals.

    Google PepZin GI. It is used in Japan to heal gastritis (with great success). Adding 10 mg Biotin daily can also speed recovery. SeaCure can be looked into. Spend some time reading about these.

    Also consider probiotics.

    For food, I am in a similar boat.

    Focus your meals on simple meats with salt and olive oil for flavor. Not too much oil. All veggies that you can have. Saute, steam, bake and grill them. Rice, sweet potatoes and squashes for carbs. Eat the non-acidic fruits in moderation and not with meat meals.

    Eat these fruits:

    apricots - blueberries - huckleberries - strawberries - nectarines - raspberries - blackberries - gooseberries - mangos - elderberries - olives - fresh figs - sweet apples - cherries- sweet peaches - sweet plums - persimmons

    Avoid the acidic ones:

    oranges - pineapples - sour apples - sour plums - lemons - grapefruits - sour peaches - limes - tangerines - sour grapes - tomatoes

    You are not alone. And believe you can heal. We are here to help. ")

  6. Seems you have 2 choices: Keep eating gluten for the 2 - 3 months and stay depressed and tired. But go for a gold star dx.

    Or eat gluten-free for those 2 - 3 months and see if your fatigue and depression deosnt lift. You may find that other things improve as well (that you were not aware of were a problem because the fatigue and depression can take over).

    There is a strong connection between Celiac and other auto-immune diseases like Graves and Hashi's.

  7. The great thing is that their stuff tastes the best. :)

    I buy pre-packaged because I used to work in the Publix Deli (many years ago) and it is not safe at all with regard to CC. Those slicers have to be taken apart at night to get all of the bits out.

    There is nothing worse than having liverwurst residue on your smoked turkey. :( So I have avoided the deli counter long before gluten-free.

  8. Thank you for that Tim.

    If you read my original post, I was encouraging the biopsy. But I was also letting this person know that they have options even if ALL tests come back negative.

    I didnt suggest going gluten-free and then getting tests.

    Tests should be done first.

    But if doctors throw their hands in the air and say "There is nothing wrong with you." There is absolutely no harm in a gluten-free diet. And MANY on this forum have benefited from it with NEG tests. Many. I am one of them.

  9. It sounds like you have done some research already. If you buy capsules, you can empty 1/2 out as well to start with a very small dose.

    One person in here feels that HCL irritated their stomach lining. They were told to take it BEFORE the meal. But if you dont eat immediately you get this major dose of acid with not enough food to work on. So taken during is better IMO. Some bottles might say after.

    Have the soda water on hand just in case.

  10. It is so hard being a Mom. And the schools dont make it any easier. I know when I put my daughter in pre-school it was so very difficult because at the time I was a vegetarian and did not believe in ANY refined sugar. Everyday it was cookies and candy. And of course my daughter loved those things. But I had to pay the price when I picked her up.....cranky....crying.....ugh!! But calmer on weekends and the days she didnt go. Family gatherings....again...everyone would feed her junk and I would pay later. To this day she is no fun if she eats a bunch of sugar. It is like a different kid comes out.

    I feel for you, but you have gotten some great advice here.

    She could also exchange a non-food item with her little buddy. A toy or homemade little gift. This could be fun. :)

  11. I stand by my original post. I recommended the biopsy for the very reasons you are arguing Tim.

    I never said that a gluten-free diet dx Celiac. I said that a POS response to the diet is accurate for Celiac/gluten sensitivity.

    Honestly, Tim, why must you try your best to cause hostility in here with me. I have no beef with you. And I will not respond to anymore of your posts. I will focus on the person who needs the help and not you. I am here to help not fight.

  12. Yes, Low TSH with hypothyroid indicates the pituitary is not working properly.

    I am gluten-free 5+ months now and my Thyroid has not shown any indication of healing. With hashi's it isnt always possible. I do not say this to discourage you. You may be one of the lucky ones and I hope you are. I am telling you this, because it should be monitored very carefully.

    You have antibodies, so you have Hashi's. Most doctors find that Hashi's patients need replacement hormone. Make sure you keep your doctor on his toes if you do not start feeling better within that 4 month period.

    I am not fond of the Endocrinologists in Tampa, but you should see one. There are other tests that should be performed. Your thyroid should have an ultrasound to look for nodules and cancer.

    My Mom had Hashi's and Cancer and did not know it until her thyroid was almost completely eaten away. Her bloodwork kept coming back normal. But she felt like total crap. Finally she convinced her doctor to do an ultrasound and that is when they found the cancer. Her Hashi's was dx post surgery. She NEVER had any antibodies show up. Why? Antibodies are generally testes as IgA. We (my family) appear to have very low levels of IgA.

    Tests are tests. But some are very useful. Ultrasound is non-invasive and painless. I recommend getting one.

    Please be careful with thyroid. It can cause a lot of misery, but can be treated effectively with a good doctor.

  13. I have. I used it for a few months and then my own body kicked in and I discontinued it.

    If you want to try it, take only 1 capsule with a moderate or high protein meal. Never take with a carbohydrate only meal as this can damage your stomach lining. You dont need all that acid to digest carbs. If you feel a "burning" in your stomach with that first protein meal (you DO NOT need HCL). If you feel nothing or improvement in digestion. You can stick with one pill per meal or try 2 the next time.

    If you up to 2 and get the burning then 1 pill is your dose.

    If at anytime you get a "burning" you can quickly and easily neutralize the acid by taking warm water with some baking soda 1/4 - 1/2 tsp in 4 oz.

  14. colonoscopy (up the bottom) will not dx Celiac. You need endoscopy (down the throat and into the intestines) with multiple biopsies.

    Dont buy "new" foods. Just buy basic simple foods that are unprocessed (you can actually SAVE money this way). Instead of gluten-free bread, buy potatoes to bake or rice to cook. Instead of cookies eat fruit. Instead of a hamburger on a bun at a restaurant, buy yourself a nice little steak and cook at home.

    Meats, eggs, veggies, fruit, nuts and gluten-free whole grains are cheaper in their unprocessed state.

  15. What I would be interested in is all of those "false" POS for other diseases, how would those people respond to a gluten-free diet. THAT would be a very interesting study which would likely be very revealing.

    It is true that information on the net can be wrong. Even in respected medical journals. History is rife with the medical community having to eat crow. Hey cigarettes used to be "just what the doctor ordered". Hard to believe.

    The only truly accurate test for Celiac/gluten intolerance is a 100% gluten free diet. Regardless of what blood and biopsy say, if you have a POS response to the diet, you have your answer.

    Tests are just that. They arent the end all be all.

  16. No that DOES NOT mean gluten is not the problem. She may have "healed" some while gluten-free (even for a week or two). Enough to change her reactions. But it could still be doing considerable damage.

    If you are going to the GI, you should not have taken her off of the gluten because even though she is eating it now, enough "healing" might have happened to get a NEG on tests. The tests will be useless unless you feed her LOTS of gluten for a good 3 months before tests.

    You really only have 2 choices: Keep feeding her LOTS of gluten and schedule the tests 3 months out (and btw in children test are notoriously inaccurate so even with this you might get a FALSE NEG). Some kids are told no Celiac until they are around 8 or more years old. Then they get the dx. OR they get dx when they develop Type 1 diabetes (related to Celiac). You could also ask for tests NOW and then retest with a heavy gluten 3 months.

    Your child is not thriving.

    If it were me, I would go 100% gluten free for a good 2 - 4 months (no cheating) and see if she starts gaining weight and those other symptoms go away. You would then have your answer.

    If NOTHING changes during that 2 - 4 month trial, then more tests are in order.

    How long did you try gluten-free diet with her?

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