ShayFL

I am the best doctor I have. I have no problem discussing my issue with others. I know it affects me. The diet is proof enough for me. If you have a cold, do you feel weird telling others you are sick? Do you need a doctor to dx the cold? No? You know your body better than anyone else.

Clearwater - Support Group

Contact: Jim & Mary DuGranrut

Pinellas County Celiac Group, CSA/USA Chapter #84

St. Petersburg/Clearwater, Florida

Tel: (727) 522-1204

E-mail: jdug@pipeline.com

It could be caused by something else too:

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On the Alfalfa...I would do 6 weeks on and 6 weeks off so you dont develop an intolerance to it.

Your body produces enzymes from the time you are born until you die. So you can take them as long as you want.

Sorry you arent feeling well. Hope you get better soon.

I just dont eat at those places...havent in over 12 years.....when I became a "health nut"....LOL

Yeah...there is a lot of nasty food out there folks!

Kids do need to learn on their own. Here is a good example. For years I have drilled healthy eating into my daughter's head. And we dont eat junk around our house.

Her school has an annual dance every year. Well the one before last, Althea was sick when I picked her up. She said she had eaten cake and a bunch of soda. She wanted to puke. Well this last dance was very different. I didnt say a word to her....just "have fun". When I picked her up, she was beaming. She had had a great time! She said, "Mom I had sooooo much fun!! I didnt eat any of the junk and I only drank water".

They do learn......

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Lots of goodies online for Chia.

I roughly do it about 2:1. Twice as much "ground" seeds. You can buy them already ground. And they just came out with a combo of chia and rice flour for baking. Have not tried it though.

This site has a lot of info about chia sees:

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I use them in all sorts of things....dressings....smoothies.

This recipe looks yummy:

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My coffee grinder is just for me....no coffee ever!

I dont really consider them expensive. I can get a whole pound in bulk for 7 bucks! And I only use a few tsps per baking. A pound will last me a year!!! To me 7 bucks a year is dirt cheap. I think someone on here found them for 5 bucks a pound.......But I already have a bag and wont need any for a VERY LONG time.....

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Do Vitamin D Deficiency, Gut Bacteria, and Gluten Combine in Infancy to Cause Celiac

Do Vitamin D Deficiency, Gut Bacteria, and Gluten Combine in Infancy to Cause Celiac Disease?

Celiac.com 06/16/2008 - Do vitamin D deficiency, gut bacteria, and timing of gluten introduction during infancy all combine to initiate the onset of celiac disease? Two recent papers raise the potential that this indeed may be the case. One paper finds that when transgenic mice expressing the human DQ8 heterodimer (a mouse model of celiac disease) are mucosally immunized with gluten co-administered with Lactobacillus casei bacteria, the mice exhibit an enhanced and increased immune response to gluten compared to the administration of gluten alone.[1] A second paper finds that vitamin D receptors expressed by intestinal epithelial cells are involved in the suppression of bacteria-induced intestinal inflammation in a study which involved use of germ-free mice and knockout mice lacking vitamin D receptors exposed to both friendly and pathogenic strains of gut bacteria.[2] Pathogenic bacteria caused increased expression of vitamin D receptors in epithelial cells. Friendly bacteria did not.

If one considers these two papers together, one notices: (1) Certain species of gut bacteria may work in conjunction with gluten to cause an increased immune response which initiates celiac disease; (2) The presence of an adequate level of vitamin D may suppress the immune response to those same gut bacteria in such a way as to reduce or eliminate the enhanced immune response to gluten caused by those gut bacteria, thus preventing the onset of celiac disease.

Vitamin D has recently been demonstrated to play a role in preserving the intestinal mucosal barrier. A Swedish study found children born in the summer, likely introduced to gluten during winter months with minimal sunlight, have a higher incidence of celiac disease strongly suggesting a relationship to vitamin D deficiency.[3] Recent studies found vitamin D supplementation in infancy and living in world regions with high ultraviolet B irradiance both result in a lower incidence of type 1 diabetes, an autoimmune disease closely linked to celiac disease.[4][5]

Gut bacteria have long been suspected as having some role in the pathogenesis of celiac disease. In 2004, a study found rod-shaped bacteria attached to the small intestinal epithelium of some untreated and treated children with celiac disease, but not to the epithelium of healthy controls.[6][7] Prior to that, a paper published on Celiac.com[8] first proposed that celiac disease might be initiated by a T cell immune response to "undigested" gluten peptides found inside of pathogenic gut bacteria which have "ingested" short chains of gluten peptides resistant to breakdown. The immune system would have no way of determining that the "ingested" gluten peptides were not a part of the pathogenic bacteria and, thus, gluten would be treated as though it were a pathogenic bacteria. The new paper cited above[1] certainly gives credence to this theory.

Celiac disease begins in infancy. Studies consistently find the incidence of celiac disease in children is the same (approximately 1%) as in adults. The incidence does not increase throughout life, meaning, celiac disease starts early in life. Further, in identical twins, one twin may get celiac disease, and the other twin may never experience celiac disease during an entire lifetime. Something other than genetics differs early on in the childhood development of the twins which initiates celiac disease. Differences in vitamin D levels and the makeup of gut bacteria in the twins offers a reasonable explanation as to why one twin gets celiac disease and the other does not. Early childhood illnesses and antibiotics could also affect vitamin D level and gut bacteria makeup. Pregnant and nursing mothers also need to maintain high levels of vitamin D for healthy babies.

Sources:

[1] Immunol Lett. 2008 May 22.

Adjuvant effect of Lactobacillus casei in a mouse model of gluten sensitivity.

D'Arienzo R, Maurano F, Luongo D, Mazzarella G, Stefanile R, Troncone R, Auricchio S, Ricca E, David C, Rossi M.

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[2] The FASEB Journal. 2008;22:320.10. Meeting Abstracts - April 2008.

Bacterial Regulation of Vitamin D receptor in Intestinal Epithelial Inflammation

Jun Sun, Anne P. Liao, Rick Y. Xia, Juan Kong, Yan Chun Li and Balfour Sartor

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[3] Vitamin D Preserves the Intestinal Mucosal Barrier

Roy S. Jamron

https://www.celiac.com/articles/21476/

[4] Arch Dis Child. 2008 Jun;93(6):512-7. Epub 2008 Mar 13.

Vitamin D supplementation in early childhood and risk of type 1 diabetes: a systematic review and meta-analysis.

Zipitis CS, Akobeng AK.

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[5] Diabetologia. 2008 Jun 12. [Epub ahead of print]

The association between ultraviolet B irradiance, vitamin D status and incidence rates of type 1 diabetes in 51 regions worldwide.

Mohr SB, Garland CF, Gorham ED, Garland FC.

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[6] Am J Gastroenterol. 2004 May;99(5):905-6.

A role for bacteria in celiac disease?

Sollid LM, Gray GM.

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[7] Am J Gastroenterol. 2004 May;99(5):894-904.

Presence of bacteria and innate immunity of intestinal epithelium in childhood celiac disease.

Forsberg G, Fahlgren A, H

I've been touting Chia seeds in here in place of xanthum gum for months. I baked my first gluten-free food and used them. I have never bought xanthum...Heck...I cannot even spell it.......

Wow Paul....I had to get a magnifying glass out to read your "tiny" font.

With the case you have presented here, if it were me, I would go gluten-free. It is just one food item and not worth all of the possible problems it could cause you.

Awesome!!

I agree. I wouldnt mention it to the friend. It might make the friend disappear. Better for your daughter to learn to resist. Because throughout life there will be A LOT of temptation.

That is frustrating. Sorry to hear this and hope the extra therapy does the trick!

I think either one would be fine Beth. I always just buy the original. If you want it vanilla. Add a tsp of vanilla extract to it.

Is she new to the gluten-free diet? If so, it is best to WAIT a good 3 months for her villi to heal before eating processed gluten-free foods. Glutino's are made in a dedicated facility. They are serious about their gluten-free status.

Or it is possible that she is sensitive to something else in them.

I buy it at Whole Foods too. I just linked to the site so she could "see" it.

Only some brands Beth. You have to read labels and sometimes call manufacturers.

I use the plain hemp milk to make white "cream" sauces and it is yummy.

You insurance may REQUIRE biopsy for the genetic testing to be ordered. However, if you dont want a biopsy, you should not be forced to have one. If you can afford it, you can have genetic tests through Kimball or Enterolab yourself. A cheek swab is all. And your little ones could have the cheek swab tests done also. This is if you want to bypass your insurance and self-pay. You do want to know if you children have the genes and definately get their blood tested for Celiac. But really the only true Dx is a gluten free diet.

You HAVE to be on a gluten free diet from now on to stay healthy. Why not put him on a trial to see if the eczema clears up? BUT DO NOT take him off gluten if you want to have him tested via blood and possibly biopsy. Be aware that there are MANY false negatives in children under 7.

It will be easiest for you if everyone in your house is gluten-free in the house anyway. So much easier.

I was not a good candidate for biopsy (high risk for perforation due to adhesions from previous abdominal surgery). So I did the genetics and then the diet. The diet speaks for itself.

You have to just make some decisions on what feels right for you to do.

I wouldnt give it to him. I struggled for a long time to find a "milk" I actually like. Mostly I make my own almond or hazelnut milk. But I do buy this brand. We all like it and it is good to cook/bake with :

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I think it is doable to have a "mixed" household. But FLOUR is the worst!! That fine powder gets EVERYWHERE!!! You have to make her understand this.

My family absolutely LOVES the gluten-free goodies I make for them (brownies, choco chip cookies, banana bread, etc.). My daughter has proclaimed that my gluten-free homemade foods taste better. She says that she hopes I am always gluten-free (which I will be).

You could buy your wife a good gluten-free cookbook, bookmark your families favorite baked goods, buy her the right flours and let her go to town. My favorite cookbook so far is "Cooking Free". But other people have their favorites.

She will be amazed at how delicious gluten-free baking can be.

If she makes homemade bread, that will be the toughest one. But if you search the forums you will find great recipes for gluten-free bread.

Use dots. G.F.