ShayFL

Antibody levels do not always equal severity of symptoms. You can have low antibodies and bad symptoms. You could have high antibodies and no symptoms. You can have a negative blood but positive biopsy and vice versa. Celiac isnt as cut and dry as some doctors might lead you to believe.

I would definately have everyone tested and request the genetic tests. You could save some (or all) of your family a lot of future pain.

What did they test?? Did they only do IgA antibodies?? Did they test your total IgA to see if you are deficient (therefore making the IgA tests invalid). Did they test IgG??

Have you had genetic testing for Celiac?

Biopsy?

I had neg blood, neg genetics for Celiac, but positive response to the diet. I have 2 gluten intolerance genes through Enterolab.

If you have positive blood...then yes you are Celiac. You should also request genetic testing to see if you have Celiac genes. Just one more piece to the puzzle.

I am now going to investigate Lyme. I googled LLMD + Tampa to discover an expert in infectious disease literally 3 minutes from my house. Right up the street. So if I have Lyme, I know I will be in good hands. I called them and they are sending me a package to fill out. They use IGENX for testing and they work in conjunction with my primary care doctor. So if I have Lyme, the LLMD will prescribe the protocol and my Primary doctor will administer it. And she is really good about these types of things, so I know she will work with me and another doctor very well.

When a few people first mentioned Lyme to me, I thought there would be no way I would have it. But as a child I grew up in the country. We played in the pastures and woods everyday and my Mom did tick checks every night before we took our baths. I do not remember her ever finding any on me (but I remember once on my brother) and I dont remember ever getting sick. I have visited my Ex's relatives in Connecticut about 12 times. I was aware of Lyme up there and took precautions, including making my Hubby check me every night for ticks. I wore long pants and didnt walk in the woods in CT at all.

So there is a possibility and at this point I do want to be able to rule it out.

Has anyone used IGENX and tested Negative???

Does everyone who tests with IGENX come up positive???

Are there false negatives??

False positives??

How common??

What is the best test to order???

Western Blot?

Anything else??

How long does it take for results??

If you have been Dx Lyme, what has been your treatment??

Is it working??

Anyone cured??

How has the Herx been??

And anything else you care to add......

Uranium....that's just weird. Near a nuclear power plant??

Like the rest of us...tests.....doctors....supplements....treatments.....when will it end!

I need to rephrase my last remark....it should read:

Dont try eating OUT right now if you can help it. Once you heal and feel better, we can help you make more choices.

Ive been using almond meal/flour for pie crust with good results. I mix a cup of almond flour with 2 tlb of coconut oil and a few tlb of my homemade nut yogurt (but any yogurt should work fine). Press it into the pie pan....fill with fruit and bake for 30 minutes.

Welcome.

Yes, it can be hard, but you have come to an awesome place for support and guidance.

The best advice when first dx is to eat simply: plain meats of any kind, eggs, pure spices, veggies of any kind, fruit of any kind and if you want starches things like potatoes, squashes, fresh corn. You can eat rice, but check to make sure the brand you get is gluten free.

You may want to wait a month or so for nuts and seeds while your villi heal. And same goes for dairy. You can then add them in at that time.

Try not to eat a lot of the processed gluten-free foods as they are generally very high glycemic and hard to digest. You need to heal.

Dont try eating right now if you can help it. Once you heal and feel better, we can help you make more choices.

xylitol is a natural alcohol sugar from either corn or birch. I believe birch is better. I dont eat corn, so I got the birch. Like Maple syrup comes from maple trees. Xylitol comes from Birch trees.

I have been gluten free for nearly 4 months and I got my first real glutening Friday night. I ate some Whole Foods Sushi. No gluten ingredients and I didnt eat the soy sauce of course. Just nori, rice, sesame seeds, carrots, avacado, plain shrimp....that is all. But the next morning I woke with vertigo. It lasted all weekend. And the BLOATING!!! OMG.......bloating was not a big deal before gluten free. But my body sure let me know now!! Today is the first day not looking 6 months pregnant. I was so bloated on Monday night I considered an ER run. But took a bunch of Gax-X and did get a small amount of relief. And "D" 6 or so times a day. And today...a migraine (the symptom that disappeared when I cut out the gluten. My BM's are back to normal today and not bloated. But migraine...ugh! So 5 days....I so hope tomorrow is better and I am done with it!

You know....I dont have this problem. But xylitol will give me "D". I wonder if you ate a little packlet of xylitol if that would help.......It isnt harmful. It is a non-digestible sugar alcohol. A lot of fiber is non-digestible too. So similar concept.

Some foods move through me faster than others. Okra is another one that gets things going.

We love Applegate and can get them at Sweetbay as well as WF.

Are you eating dairy? Could be that you re-damaged yourself bad enough that the little villi that digests casien arent working. You could try cutting dairy and see if that helps.

I tested positive with Enterolab for Gluten Sensitivity. Negative for Celiac via blood and genetic testing.

If you mean the skin prick test for wheat. I was negative there. Sorry.

A lot of people like Jarrow B12. I have used it for years, but am now switching to Pure Encapsulation liquid because I want to avoid the xylitol. I just figured out it gives me "D". Make sure you take this with a complete vitamin B complex or it can throw others off like Folic Acid.

You can take up to 1000 mg daily of magnesium. I like magnesium citrate, but others are also good. I like Solgar. You need to balance it with calcium though. Dont take alone. A ratio of 2:1 or 1:1 is good. And with the calcium you need vitamin D and Boron.

Supplements are about balance or you can create a new problem by fixing just a single nutrient.

We need to see the "ranges" to help you interpret them.

Here!

How bout this:

CELIAC WARNNG!! AT This Time No Enzyme Product Will Allow You To Eat Gluten. Please Consult Your Doctor Before Using This Or Any Other Enzyme.

That would fit.

We lost one of our very best friends 2 years ago to gastric bypass. He was only 54 and left behind two children for his wife to raise alone. We still miss him dearly......

BTW - This experiment failed. I digested them too well and got blood sugar spikes. So for now....I am grain free.

Tonight it is Mahi Mahi. I put them in little tin foil packages. Let my daughter add the spices she likes...drizzle with olive oil. And I made roasted sweet potatoes and carrots. I put salt/pepper/garlic powder and a drizzle of olive oil on them and bake for 20 minutes...cut into slices. Yummy!

It happened to me too. I was starving for about 6 weeks. Even waking at 3 am just ravenous. Then it went away. There were many theories thrown around. But likely your body is trying to make up for lost time. The gluten kept you from absorbing nutrients and now your body is starting to be able to do so.

Soy Sauce!! That has gluten...and you cannot just remove the crust. Really to know if gluten free will get rid of these for her, you have to go 100% gluten free. If you want a diagnosis of Celiac first, then she has to keep eating gluten and lots of it to get all of the tests.

They sound like seizures to me. I used to get them in the middle of the night. Minus the headache. But all of the other symptoms. Potato is what caused my seizures. When I removed potatoes...I never had one again.

Gluten causes me to have vertigo. My food intolerances aggravate me neurologically. Bummer! But even harder to watch your child suffer. Sorry you have to be going through this.

I also had migraines prior to gluten-free. None since going off.

It is hard. But if you want to know for sure, you have to eliminate all gluten. You cannot risk eating out right now. And you need to clean your house/kitchen to prevent cross contamination with gluten.

So I call "Answers From Nature" and speak to someone. I ask them where they get their "natural" vitamin E, since they claim their products are gluten, wheat, soy and nut free. He said it was a good question, he should know the answer, but he didnt. He would call me back. That was 4 hours ago. I smell a rat!!

SO WHERE DO YOU GET SUPPLEMENTS WITHOUT FILLERS, LUBRICANTS, AND ALLERGENS?????

That is the thing about forums. They are anonymous. We can put any picture we want up. We can be whoever we want to be. You might thing I am a female, but I could really be a male......

Some people who come in here might not have ANY health problems at all. They might just be lonely and finding a group like this could be a godsend to them.

Some might not have any problems with gluten, but since this is such an active forum where MANY topics are discussed, settle right in.

Some will only be here for a short time.

Some get well and move on.

Some never do.

Maybe I am just too clever. But it seems to me if I wanted to shill. I would come in and be active for a few weeks at least. Posting on different topics. And then start in on my product.......Why be obvious?

So maybe they arent shills......

It is actually amusing if you think about debating who someone is on a forum. UnkleZach could be another member with a double identity. Two user names. Someone who just likes to debate and watch how people react. Maybe one identity is pro-Glutease and the other is against it.

Or UncleZ could just be like one of us. Was sick. Has gotten better. Found something that helps and wanted to share.

If I find something that works for me, you bet I will tell others. Why wouldnt I? It doesnt mean it will work for you. But I would still tell everyone.

For instance right now...chewing on Fennel has helped with my bloating.....but I aint sellin fennel.......