ShayFL

Im doing a little research for you Leslie.

The main bacteria in there is: baccilus. subtilis

While it is not considered a human pathogen; it may contaminate food and can cause food poisoning.

It has a natural fungicidal activity (Might you have Candida???? And your reactions were a constant low level "die off")

The enzymes it produces are used in laundry detergent.

***Just my 2 cents here***But this is a powerful bacterium. It can cause food poisoning. So my guess is that you might be sensitive to it. Or you have candida die off as a result of it.

I take their digestive enzymes without issues. You know their whole deal is helping people with intolerances (especially gluten). So there is a possibility that you were reacting to something else in them.

I hope work stays stable for you Leslie. Try not to stress about what could happen and focus on each day, one day at a time.

I like the flakes for breakfast sometimes. I mix almond butter and stevia in it. Tasty.

Generally blood transfusions are given to save a life. If my life needs to be saved, I will take the blood that is available (celiac or no). A glutening would be bad......but not compared to the alternative.

I have nothing to add Meline, except, I hope you feel better soon.

You dont have to rinse the flakes. I tried the banana muffin recipe on the box of flakes and they were gross.

Taco salad shells are usually made from wheat flour. They are different than "taco" shells. I know because I used to be addicted to them. So light and airy and crispy fried and pale. Nothing like corn.

Ah yes...it has a saponin coating which is a natural soapy substance that keeps the bugs off of it naturally. I just run under water in a strainer for a few minutes.

Thyroid disorders/Diabetes/Insulin Resistance go hand and hand with Celiac/Gluten Intolerance.

I am hypothryoid and doing well on Armour.

I felt bad for the first month, but then started feeling better. Things healed that I wasnt aware of that was a problem. So dont be surprised if things like your skin looks better, etc. after awhile. Or you have more energy, but didnt realize you were fatigued before.

I def. went through withdrawal. And had GI symptoms when my main symptoms are neurological.

Hang in there. It gets better.

It does have a slightly earthy taste. I like to make mine with chicken broth rather than water. Or I make taboule with it. In other words, add some spices and flavorings to it. It passed my family test for good taste. So no need to fear.

If it were me and I was watching my baby waste away, then I would try the diet. It will not hurt and could help. Wheat is not what we need for good nutrition anyway. There are so many healthy foods. Meats, veggies and fruits. My daughter loves veggies when most of her friends wont touch them. She got them from the get go. Start em young and they will love healthy foods.

Wishing you all the best and hope he gets better soon.

You can add a small amount of almond meal or hazelnut meal (Bob's sells it). Like up to 1/3 of the flour in a recipe. More fiber. I also add some ground Chia seeds to my baking for more fiber and nutrition.

Perfectly safe. I love it!

Im actually feeling quite good today!!

Two portions of soaked grains and all is well. I only soak them overnight, then drain, rinse and put in fridge till I cook them. Not a lotta fermentation going on. And if the grains are "alive" they should start to "sprout" and not "ferment". Old rancid grains would "ferment" no doubt.

I have been supp. iron and Vit D pretty strongly for a month now and since I believe I am better able to absorb my nutrients now, this is helping me get well. Dark circles disappearing from around my eyes. My lips have color!!! No longer pale. They are a healthy shade of pink.

Are you certain you are not getting ANY gluten from anywhere?

Old scratched pots and pans, wooden spoons, cutting boards, toaster, etc.

Lotions, shampoo, lipstick, etc.

Cross Contamination from others that use your kitchen or at work?

Eating out?

If you are certain that there is no way gluten is getting in, then you may have to eliminate dairy (for a few months while your villi heal). Most celiacs are intolerant to dairy because the tips of the villi secrete an enzyme to help digest dairy. So you have to heal first. Some celiacs find they are intolerant to dairy forever. You will have to experiment.

But for now make sure NO GLUTEN. And then eliminate dairy for awhile and see if this helps. For most it does.

I use digestive enzymes too. They have helped me a lot with my digestion. Right now I take Digest Gold. It covers everything.

Soaking the rice made it quite tasty and seemed to digest much better.

Tonight it is soaked quinoa.

Try not to be too hard on yourself. We all make mistakes. You can correct it now and move on. I hope you feel better soon.

I dont think you have an official Dx do you Leslie??

Thanks RG!!

I appear to be doing everything right. Now just to wait and see......

The weird taste in your mouth can be an "aura" for a migraine. That you mention the headache afterwards leads me to think "migraine". "Auras" can be sparkly lights in your field of vision, sounds in your ears, tastes in your mouth or other nerve sensations.

* visual symptoms: flashing lights, wavy lines, spots, partial loss of sight, blurry vision

* olfactory hallucinations (smelling odors that aren't there)

* unusual taste and/or oral sensations

* tingling or numbness of the face or extremities on the side where the headache develops.

* difficult finding words and/or speaking

* confusion

* vertigo

* partial paralysis

* auditory hallucinations

* decrease in or loss of hearing

* reduced sensation

* hypersensitivity to feel and touch

The neuropathy is actually better today and that strange "waking up" sensation is much much less today. So this gives me hope!!

I realize since I am deficient in Vit D and Iron (I am supplementing) that my body may simply be absorbing more (since I am not eating gluten) and these deficiences are getting better which may be what is improving my symptoms.

Hoorah!!!

I know we all heal at our own rates, but I do like to hear other people's experiences. Good news should be shared.

Im very sorry to hear this Leslie. Might you consider sitting down and talking with him about your health and what has been going on. Explain how much you want to keep your job and get healthy and that you are working hard to insure both????

Thank you Rivergirl!

Did you have strange sensations as your body healed??

Yes, my migraines were also the first to go. Thank goodness!!

Im so glad to hear your dizziness went away. How long did that take? And the neuropathy. How long??

Ah...the post meal "coma". I hated those.