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mhb

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mhb

  1. mhb
    Hi, I have gotten my EnteroLab results back. Recently there was an article at the New York Times (Can't find it now) about how inaccurate testing blood for antibodies to different foods is for determining food "allergies." Apparently skin tests are more accurate. The New York Times article had said that the problem with testing for antibodies in the blood...
  2. mhb
    I've been off gluten for 1.5 years and casein for 1 year, except of course the occasional screwup. I'd been hoping to reintroduce casein after a year, so I started with a goat milk yogurt (goat and yogurt forms supposed to be easier to digest). Well that was the end of it. Immediate reactions were slightly gurgling stomach, bronchial congestion and gas. Two...
  3. mhb

    ARCHIVED No Period

    mhb replied to Ems1984's topic in Related Issues & Disorders

    Hi, I never find much explanation of the connection between ammenorhea/infertility and gluten, but the association is commonly referred to. I don't think they understand the connection, but the theory is that gluten mounts an autoimmune reaction somehow affecting reproductive hormones, perhaps affecting a gland that produces them? I was treated for PCOS for...
  4. mhb

    ARCHIVED Sa-bai Thong, Madison

    mhb replied to Jess's topic in Gluten-Free Restaurants

    My understanding is that the only 2 gluten-free dishes there are #49, Yum Ta-Wai, and # 52, Seeda Longsong, but I haven't tested them out.
  5. mhb
    What are the noodles in pho made of, or do you ask to leave them out? If the latter, do they remove them (cc) or just not add them in?
  6. mhb
    I've been gluten-free for about three quarters of the year, and dairy free since about September. The gluten free diet remedied lifelong amennorhea, and the dairy free diet relieved my lifelong acne. Recently I started using butter on bread, thinking that it was very low in casein and may not pose a problem. But I started to get some strange bumps around...
  7. mhb

    ARCHIVED Sushi?

    mhb replied to munkee41182's topic in Gluten-Free Restaurants

    Sushi is a great stand-by for me! I just make sure they've used rice vinegar in the rice (I heard some alternatives to that can have gluten). So far not one restaurant has used the alleged alternative. Then instead of using soy sauce, or even wheat-free soy sauce which some have, I ask for lime wedges and squirt lime juice all over it. Delicious. Gives it...
  8. mhb
    I wonder if it's all that linear. Do we have reason to think villi destruction is "end stage" as opposed to just one manifestation, more like a spoke on a wheel with gluten at the center?
  9. mhb
    Sometimes tempura is made using corn starch rather than wheat. As long as the fryer didn't have gluten items in it that may work if you can communicate it to them. Call ahead if you can so you know what will work. If tempura, eat well before going and just have vegetable tempura. You could check the soups, but they may all have wheat.
  10. mhb
    Anyone know if this has gluten? It was all I had on hand when I had my first major D attack ... 5 days after eating gluten. I'd had 2 days (apart) headache and a major emotional outburst in between. It seems my reactions are different with different glutenings, and changing over time. I never had the D reaction before. It's not a bug because I feel totally...
  11. mhb
    Yea, a brilliant breakthrough in terminology! I like this structure, but I would go one step further and say: gluten autoimmune disease of the intestines, aka celiac gluten disease of the nervous system gluten disease of the reproductive system gluten disease of the skin gluten disease of the kidney gluten disease of the thyroid gluten disease ....
  12. mhb
    Boy, if all these responses don't illustrate my original point. There are so many ways people use all the terms, and different assumptions they make when they use them, that we are not - truly - all having the same conversation ... medical community and online forums alike. I believe we have a situation here ;-) But what to do about it? The main celiac research...
  13. mhb
    I think this is really important, that I don't think we know, to my knowledge, how much of the conditions strongly associated with celiac are associated because they are both caused by gluten, or they are simply two (or more) conditions one is predisposed to by the same gene(s). I have read that the high rate of type 1 diabetes concurrent with gluten is due...
  14. mhb
    Anyone know why my info to the left says "Warn 0%"? No one else here says anything like that???
  15. mhb
    Sorry you saw it this way, because I think we're all or mostly on the same page about this, but it illustrates my original post perfectly ... that just *using* the words intolerant and sensitive *sounds* less serious than *celiac* even in a community that for the most part I think knows better (other than maybe those new to it all?). I've had a concern that...
  16. mhb
    I third the balanced diet approach. I also was convinced by vegan for a while. I feel much better now paying attention to real and specific food intolerances (mainly gluten and dairy for me) rather than macro dietary concepts. People all over the planet over centuries have thrived while eating animal products. Modern processed food, more calories going in...
  17. mhb
    Boy, I'm on the west side so can't help too much off 90, which runs N/S down the east side. Most of these I know to be on the west side or downtown, so not so easy on/off venture. I'd keep your eye out for, or research ahead, the chains like Outback for that stretch. Maybe someone closer will know more. Maybe a Noodles or an Uno, but I think lots of these...
  18. mhb
    Glad others are grappling with my original post too, and it's not just me whose brain is a bit contorted by all this. First, I hope no one thought I agreed with the perspective when I referred to, "mere 'intolerance'" to gluten. I meant to have that open quote before "mere," indicating *others* em to view it that way. About mention of celiacs going gluten...
  19. mhb
    I emailed the co. to see what they recommend in the way of a gluten challenge for their product to be valid, and got this response: Thank you for your inquiry. The Canadian Celiac Association has provided us with guidance on that issue. Their response is as follows: "1. If a person started a gluten-free diet or reduced gluten consumption, they...
  20. mhb
    Does anyone know why the bread machine instructions say do not use the gluten-free setting? I've been experimenting with using 1/2 her mix and 1/2 my own flour additions to cut back on the refined starches per slice..
  21. mhb
    This is exactly what I had getting at, but much more succinct! :-) Some are conceiving celiac as the umbrella term and others conceive celiac as one of the sub-disorders. I'm in favor of the latter since the science behind celiac is so much more specific/established/accepted compared with other manifestations, while knowing that if one has one symptom...
  22. mhb
    I think we need to use "gluten syndrome" more often. I keep feeling like presentation of the issues makes celiac out to be worse than a mere "intolerance". Granted, there are known mortality issues with celiac in the form of cancers and malnutrition, but I would venture to guess that many don't test + for celiac while having serious side effects to gluten...
  23. mhb
    Any updates dizzygrinch? I'm interested how you got it in US.
  24. mhb
    I think the first link said 30 of 31 dx celiac using the card were accurate. I emailed the company to ask how long one would have to eat gluten, and how much, for results to be valid (if already gluten-free). I'm glad I didn't pay for gene tests yet. If I have it (definitely have intolerance), this will make it far easier to encourage family to test!
  25. mhb
    Has this been mentioned here and I missed it? What do ya'll think? Open Original Shared Link Open Original Shared Link
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