cassP
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About Me
Hi. I've been lurking for awhile & finally decided to join. Looking back, I've had all kinds of symptoms as early as age 8. I started getting tested for Lupus at age 14- because of the classic "butterfly" rash on my face (which actually disappeared at age 27 when I went wheat free & gluten lite on the Bloodtype Diet for Type O).
Anyways, after 2 years of blood tests- a Lupus Diagnosis could not be made- and a Sjorgens test was negative. I never even made a connection till this year- that my elevated speckled ANA could be related to Celiac.
So, as I mentioned above- I found Dr. D'Adamo's Bloodtype Diet in 1999. I was truly, predominantly, wanting a diet to lose weight. I had no idea- that eating mostly meat & veggies, and removing wheat from my diet- would not only slim me down, but progressively cure every annoying physical ailment i had.
I only thought to ask my doc for a Celiac panel after my best friend mentioned it- after being Gluten Lite for almost a decade (with month long binges here and there)- it's no surprise I had 2 inconclusive blood tests... (TTG weak positive, Antigliadin IGA & IGG negative, Endomysial Antibody Positive, IGa serum LOW). I never had the small intestine biopsy because my Health Insurance denied me.
That was 2 years ago, and I just couldn't shake the non-diagnosis... as I looked in the mirror and realized the little holes in my teeth are possibly ANOTHER classic symptom- I decided to order the Gene test through Enterolab. I was expecting to only get one gluten sensitive gene & still be guessing- but I got 2 DQ8s.
Well, that was more than enough motivation to adhere 100%. After YEARS of GI pain combined with my own research, blood & gene tests- I suspect I am a Celiac with some Fructose Malabsorption. Now, I just want my G.I. to formally diagnose me- so that my parents and siblings will get properly checked.
Sorry so long- it's nice to be here- and I'm looking forward to sharing information and support with everyone 
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i searched and found this thread- because i had this paralysis THIS MORNING!!!!! i believe it could be gluten related-> as SOME Celiacs get Narcolepsy & Apnea-> so i ASSUME that Sleep Paralysis and other sleep disorders could be caused by gluten. im a little nervous tho- because i only had these episodes about 5 times maybe- on and off from Mid...
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hi there- i am so new to the IC... dont even know if i have it- but highly suspect it... i too have Celiac and Thyroid disease- and IC seems to be common or related.. ive suspected IC before or a very very sensitive tiny bladder... but last fall i had my most recent UTI.. was pretty bad.. the Cipro worked immediately, but then afterwards- i kept feeling...
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ya, what everybody else said i got the same answer when i called Advil to clarify what the starch was- "corn gluten". it's not the same as gliadin. unless you have a sensitivity/intolerance to corn products- you should be fine. -
they even make u sick with the peanut butter???? cause if i eat some almond butter with mine or toast or whatever, im usually fine... it's if it's by itself am in trouble
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omg YES bananas are gluten free!!!!! and i totally relate- bananas in baked goods dont make me sick at all!!! most of the times-as long as i eat the banana WITH SOMETHING... yogurt, almond butter, toast, im fine- but by itself- i could be throwing up
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ya, like 5 years ago i had a strange pain in my left foot.. well it wasnt strange- i assumed it was from standing too long or not wearing good enough shoes- but it felt like i had a ton of "stone bruises" on the bottom of my foot- like the bones were not padded. this was the same time where i was eating more wheat than normal and having malabsorption/fatty...
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yes- i do- and im not so sure it has to do with the fructose malabsorption thing. just my own theory really. if i eat a banana BY ITSELF- i will get hot & nauseous- and reflux- and almost IMMEDIATE "RUN TO THE BATHROOM" and vomit feeling- it is awful- i discovered this in my early 20s- way before i knew anything about wheat or gluten,etc. **this also...
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really really tired of additional food intolerances
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Hi Cass: See http://www.lowdosenaltrexone.org/ for information about LDN, what it helps and precautions for using it while taking thyroid supplements.
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omg, how old is your son??? im so sorry he has to suffer from this already- hopefully your doc can help and hopefully your son's will just shrink like most people's hems do. mine unfortunately are relentless... and have caused me a great deal of pain. im going to paste some links here- i use ALL these products on a daily basis. i HAD TO FIND this alternative...
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could be the corn... which gives me problems... i hope there's no cc issue- as i just bought some to keep around in case i ever get another stomach bug... they seem like the closest gluten-free thing to saltines
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totally wondering if the whole foods lady put WheatGrass in my drink instead of Spirulina?? been nauseaus, & a new patch of DH :/ ????
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Anyone Try Daura gluten-free Beer?
cassP replied to jasonD2's topic in Gluten-Free Foods, Products, Shopping & Medications
really? it's made from barley- and it's "gluten free"?? that would make me so nervous... ive never tried it. i did try my first gluten free beer the other night: Redbridge gluten-free beer (made with sorghum).. it was AWFUL just AWFUL... i couldnt finish it.. so i just went with Woodchuck Cider the rest of the night which is gluten-free & pretty delish -
is getting a little lazy these days, and instead of replying to posts- am just adding points to posts i like
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Silent Celiac Disease
cassP replied to Real1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
you mean "silent" as in asymptomatic right? if you tested positive- it is still ACTIVE even tho its silent. please stay on this forum and soak everything in-> there is a wealth of information on here- and plenty of reasons why you should go gluten free even tho you are not suffering stomach wise. Celiac disease can cause so so so so so much more... -
Gluten Intolerance And Hemochromatosis
cassP replied to jeannieknits's topic in Coping with Celiac Disease
OMG! every 2 weeks?????!!!!!! good God, i really hope they figure something better for u- that WOULD be so traumatic- i would hate that so much i hope u find some better way of dealing with it! xo
