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CCR

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Everything posted by CCR

  1. CCR
    My Zo bread machine is only for gluten-free baking. I thought I was being neurotic but I guess I'm not alone in worrying about switching back and forth. I just use the basic cycle for my gluten-free mixes and it has worked fine. I also got a recipe from the company (if you call them, they can guide you through finding recipes) and used the basic setting...
  2. CCR
    Just wanted to thank you for that recipe, JenPen. I made a double batch for the French class yesterday and they were a huge hit. The teacher emailed me to ask for the recipe (I hope you don't mind that I gave it to her!) because she said they were some of the best crepes she'd ever had and she has a celiac friend who would love them. I can attest to how...
  3. CCR
    Dulce de Leche is fine. Debbie, you really should call Haagen Dazs. You'll get your own list (and who knows, it may have even more flavors on it) and you might get COUPONS. To buy ICE CREAM. What could be better? Call 800-767-0120. They are very nice on the phone. If I had a xerox machine or a fax I would totally send you a copy. But I don...
  4. CCR
    Wow, that is really interesting. That sounds like ME!
  5. CCR
    Thank you for the info. I had the appointment last week and asked for some of those tests, plus a celiac panel (which I never had done before) but I will see her again in a few months and I'll ask for the rest. I am going to start to ask for copies of these tests, I think. It seems many people on the forum do that, and it sounds like a good idea.
  6. CCR
    I actually contacted Haagen-Daz early on and they have many gluten-free flavors. They mailed me an info sheet in response to my phone query and some coupons, too. The flavors that DO contain gluten (in the superpremium category) are: Caramel Cone Cookie Dough Cookies and Cream Sticky Toffee Pudding The rest are fine. The light version...
  7. CCR
    Hi Debbie, I am so sorry to hear how unhappy you are. I am only gluten-free for 3 months and I'm still pretty sad, too. My problem, however, has always been being overweight and that has not changed from giving up gluten. I guess we are all different in the way this disease affects us. Anyway, just sending some encouragement your way. Carin
  8. CCR
    jberg, just wondering how you are doing. Did you get to see the doctor yet?
  9. CCR
    I found a ton of books at my Barnes & Noble (in NJ) but they were all in the cookbook section, not in the Health section.
  10. CCR
    My doctor told me when I woke up that he suspected celiac (which had not even been a possibility as far as I knew) but that the biopsy would confirm it. Which it did. It was easy, easy, easy. Best sleep I've ever had.
  11. CCR
    I'm sorry I don't know more but I can tell you that in my case, I personally did not lose an ounce of weight and I still was diagnosed by biopsy as celiac. I had no symptoms beyond anemia. I don't know if it is different with children. I have a book that I have not read yet: KIDS WITH CELIAC DISEASE by Danna Korn. She says that "a negative blood screening...
  12. CCR
    I am far from an expert but I do have a 13 year old who was just diagnosed by biopsy after positive bloodwork. I am sorry you are having such a rough time. We had a straight line from pediatrician's positive bloodwork to gastro's positive bloodwork to confirmation by endoscopy. But I had been reading all along on this forum and I have heard people say that...
  13. CCR
    I can't thank you enough! I will give these a whirl. They sound great!
  14. CCR
    My 8th grader's French teacher wants to have a monthly French food party in class. She is very open to accommodating his allergies (nuts, soy) as well as his celiac disease. I told her I'd search for a gluten-free crepe recipe. Anyone have one? I'd be very grateful. Carin
  15. CCR
    I am having a real addiction to Kettle Corn (the sweet kind) and to Kozy Shack flan. Very high in calories, but gluten free!
  16. CCR

    ARCHIVED Overreacting?

    CCR replied to jewlesD's topic in Coping with Celiac Disease

    I really empathize with you...it's hard to be the center of attention when that's not a comfortable place to be and we are not all at ease stating our feelings plainly. But...in their defense...you did eat before you went (and I am guessing they knew that, maybe they didn't) and you did not give them a clue what you were thinking. They are not mind readers...
  17. CCR
    Thank you! That is incredibly helpful. I am planning to give the Kogan Center a call. My doctor offered me zero in the way of follow-up advice beyond "give up gluten." Carin
  18. CCR
    I'm sure that's true. But I would hope that a reputable hospital would have more than signs! I'd be happy to find a nutritionist who knows something about celiac, a doctor who knows how to monitor my health, and maybe the occasional support group. Maybe that's too much to ask for. Hope not. Carin
  19. CCR
    You're probably right. Maybe I will just do the basic iron bloodwork with her (she's the one who originally spotted the anemia) and take the rest elsewhere. Good point about the insurance. I'll check that first. Thanks, Carin
  20. CCR
    After my endoscopy and diagnosis, the gastroenterologist basically said "Bye. Go gluten-free. See you in a few years. You might want to find a nutritionist through your primary care provider." So now, 3 months later, I am having my first appointment with my primary care provider and I don't know how savvy she'll be about celiac (not very, I fear, since...
  21. CCR
    I am far from an expert but the best way to diagnose it conclusively is through an small-bowel biopsy, which is done via an endoscopy. (You are asleep for this, don't faint!) It's an out-patient procedure. You need to find yourself a gastroenterologist. Did you know they just opened at Celiac Center at St. Barnabus in Livingston, New Jersey? I haven...
  22. CCR
    I'm getting ready to go to San Francisco and Yosemite with my family and I'm pretty worried about the food issue, too. I have bought a ton of bars, and a bag of Glutino pretzels and a box of Rice Chex...I may need extra luggage just for the food! My biggest concern is the wedding we're attending. I think I'll be too afraid to eat there. And the rehearsal...
  23. CCR
    I thought I'd try to revive this topic and see if anything is new on LBI for celiacs. This will be my first summer going there as a non-gluten-eater and I'm a little worried. I plan to follow the above advice on the breakfast front. Going out to breakfast is part of our family's 14-year tradition but it's all pancakes, waffles, etc. Lots of CC potential...
  24. CCR
    Well, for me it means that now, when I have gluten (which has only been accidentally, btw) I have a sick, nauseated feeling, then stomach pain for about a half hour, then the diarrhea starts and goes on for about 30 minutes, on and off, until I can't believe there is anything left in my body. It's almost like I prepped for a colonoscopy. So far, it has...
  25. CCR
    Sounds like a good plan. I didn't know about the cheek swab option. I wonder if my insurance would cover that. I have to look into it for my needle-phobic 15 year old. My daughter's genetic test was a blood test. Carin
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