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dilettantesteph

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by dilettantesteph

  1. dilettantesteph
    Some celiacs are more sensitive to low levels of gluten than others. My son and I are both very sensitive. We couldn't get better until our whole household went gluten free. The other members of our household were very careful, certainly more careful than young children (sorry young children) and we still kept getting sick. Many celiacs do fine with a...
  2. dilettantesteph
    I am very sensitive so I just use fresh spices.
  3. dilettantesteph
    I crack my own nuts. It is tedious, but that way I can be sure that they are gluten free.
  4. dilettantesteph
    My son got the red ears before the diagnosis and before gluten free. Now he doesn't get them anymore. 10 years old at diagnosis. I have only heard of it as a symptom anecdotally.
  5. dilettantesteph
    That not making it to the bathroom was happening to me for about 10 years until I finally got diagnosed. My idiot GP said that it was consistent with irritable bowel syndrome. Once it happened when I was volunteering at my son's school. Humiliating and embarrassing is right!
  6. dilettantesteph
    It would start as early as 2 a.m. and continue every hour until mid morning. I am so grateful for my diagnosis!
  7. dilettantesteph
    I play saxophone. One time I very absentmindedly put some cork grease on my lips thinking that it was lip balm. I was very worried that it might contain gluten. I rubbed it off right away. I am so sensitive to gluten that I have cut out almost all processed foods, yet the cork grease/lip balm did not make me sick, so I think that it is safe. The brand...
  8. dilettantesteph
    Gluten free doesn't mean absolutely no gluten. It just means under some certain amount. Soon to be set at 20 ppm, I think. Some of us might be sensitive to smaller amounts. That might have something to do with why the gluten free amount is set to under 5 ppm in Australia and New Zealand. When I ate rice chex I seemed to get a gluten reaction too.
  9. dilettantesteph
    I noticed that a gluten free company Savonnerie makes deodorant. I haven't used it or anything so I'm not endorsing it. I just noticed it when I was ordering their lotion.
  10. dilettantesteph
    There is a link. My mother died of lymphomia at 47, and I didn't figure out I had celiac till I was 48, so I freak out too. In her case she went to doctors for years with lymph problems. They kept telling her it was just a viral infection when they were probably missing signs of early lymphomia. I don't know if it can be easily diagnosed early or not...
  11. dilettantesteph
    I used to vomit a lot before I knew I had celiac. People always thought I was some kind of horrible drunk, or had food poisoning. They tend to add wheat flour to teff because it keeps the cost down. I got sick from Ethiopian that said it was gluten free too. I haven't vomited since, but my celiac son does. Bioenzymes, and food easy on the stomach like...
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