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Amber M

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Everything posted by Amber M

  1. Amber M
    I have been gluten free for over a year now and still have problems with Gluten Ataxia which includes some of your stuff. After finally tapping into the "Candida" issue, thanks to you people, I have been on mega doses of probiotics and am getting some relief. I researched to discover that the outside of the cell of the yeast infection produces the exact...
  2. Amber M
    Thanks, but National Ataxia foundation says "Quest" is the only one that does the "NON-deamidated" for Gluten Ataxia (not standard Celiac) and now Quest doesn't want to tell me what test to have, they say ask my doc. The problem is, my doc doesn't know either! I am back to feeling so alone in geting help. Anyone else????? Thanks.
  3. Amber M
    Ya, it was gluten free. I had just recently had an attack before the antibiotics too. I am sure I ate no gluten. Sorry it took me so long to respond. I did not get emailed for some reason. Still slowly coming out of it now.
  4. Amber M
    Okay here's the situation. I'm sure I have gluten ataxia, have the genes, been gluten free for a year and suddenly having attacks again (I think from yeast overgrowth), but I was on the National Ataxia Foundation site and they listed the blood test for this as: Only at "Quest" Labs, Gliadin Antibody Panel #3517N (NON Deamidated). The only one specifically...
  5. Amber M
    Hi folks, I am just coming out of an ataxia attack, knowing I have not touched gluten. I had to take another round of Azithromycin for my gums. I had just a week previous to that started on a large amount of Probiotics for the yeast overgrowth I was already having. On day 5 (last day of antibiotic pak) I came down with the worse case of ataxia yet. I...
  6. Amber M
    Check what DQs you have. Mine are 1 and 3 which are gluten ataxia genes, I do not have 2 or 8 and my biopsy and original blood test were nagative too. I just had the IgG Non-Diemiated #8889X by "Quest" Labs for the gluten ataxia (do not have to eat gluten for-by the way I was gluten free for 3 months when I had the original tests) Waiting for the results...
  7. Amber M
    I got really excited about the oatmeal till I saw the soy tooo! Oh crappy!!!
  8. Amber M
    I broke out in what appears to be cold sore blisters inside my bottom lip. This has happened a lot in the last 2 years, mainly when I eat corn. The ingredients in everything I bought seems to be good. The Stevia is Pure, I contacted the company. One container is pure and the other (packets) has "Inulin" fiber made from Chicory root. My lips feel swollen...
  9. Amber M
    I am giving up sugar and using "Stevia" sweetener, but I know I will still eat Pamalas Pancake mix, unless I have to give it up too, but only for awhile maybe. I am on my first day of "mega" doses on probiotics and my mouth broke out tonight. Not sure why, (its all gluten, etc. free), but I did read it might get worse for a bit before it gets better, so...
  10. Amber M
    Wolicki, I just want to give you a special Thank You! This may be what will help heal me soon. I should have listened to others before on the issue of Candida, but for some reason this article made it click for me. I wrote a post this evening here on my day with this stuff, hope you read it. Thanks again!
  11. Amber M
    Ya, I am still a mess. It's been about 3 weeks now. I am better early now and worse by evening. It's starting to leave. The thing is, I know I did not get glutened! After reading the article and doing the "spit" test for Candida, and realizing that my tongue is white for a reason (duh!) along with many other things, and knowing I have increased my sugars...
  12. Amber M
    Great article, thanks so much. I am geting ready for a round of antibiotics, couldn't have come at a better time. Thanks again!
  13. Amber M
    I am DQ 1 and 3 which are the genes for imulogical gluten sensitivity and gluten ataxia. I also do not carry DQ 2 or 8. The research on gluten ataxia comes with any of those genes, but no digestive symptoms in alot of DQ 1 or 3. (although I tested negative for Celiac after being gluten free for too long, I did have some upper digestive and bowel problems...
  14. Amber M
    Duh!!! Yea, contact the lab. Of course!! My brain is not working right now! I will, thanks. I know that when the ataxia is to the point that you can't walk, etc. then an MRI shows cerabellum atrophy. I have seen some pictures of MRIs like that on line. The quack neurologist that I saw said my MRI was okay even though the balance tests indicate that...
  15. Amber M
    I have been gluten free for over a year now and done pretty good finally, until last week. Full blown gluten ataxia episode right now. I have investigated the "four" gluten free proccesed foods and discovered that a gluten free (local) pizza I've been eating had "less than 20 ppm" of gluten. I am hypersensative. No more of those of course, but my question...
  16. Amber M
    I have been in the middle of a full blown attack this last week, and one of the few processed foods I use is "Pamala's" baking and pancake mix. I contacted the company and recieved a reply very quickly. They are a gluten free facility and have a lab on site and test every batch. They use the "Eliza" method and test down to 10 ppm's. (The best test avaliable...
  17. Amber M
    Upon having a recent CT for severe back and abdominal pain for years, I have been told I need to see a bone doc as I have a lower back fusion, (with out surgery) and a severly infalmmed sacroiliac joint. I am afraid it is AS. What else could have fused my lower spine? What really upsets me is years ago the fusion was discovered in an exray, when I was complaining...
  18. Amber M
    Wow! Thanks people! I knew it had to be connected!!!! I'm so happy!!
  19. Amber M
    Well, This June, my normal severe pollen allergy season came and went with only 2 days of minimal allergy symptoms! I am usually on an medications thru June and suffering terribly. I have read a lot about the "corresponding" pollen and food categories. I had wondered if getting off of all the things that I couldn't tolerate would influence this. I have...
  20. Amber M
    I have been gluten free for about 8 or 9 months now, and it has been an up and down battle of getting well. I have discovered many other food intolerances as well. I already had some other food allergies for years prior too. I have been keeping a food journal as well, (pain) but worth it because I can pinpoint pretty easily now what is giving me problems...
  21. Amber M
    I use coconut oil now and I don't think it whitens as well as the sesame oil I used to use.
  22. Amber M
    Thanks so much people. I am waiting for a pharmacist to get back to me too. She has an auto-immune disease and it appears that the drugs could have caused her immune system to attack the inner ear too. We are not sure yet. She has been to the Doctor and they are working with her. I could not find the pill Darvocet on the gluten free list, so checking...
  23. Amber M
    Thanks, is this information from research or you just don't think so? I need more to go on. Thank you so much
  24. Amber M
    It sounds to me like you have had it for years, but it just has to be put in order now as you need to get well. I hope to do a strict gluten free diet. Over time you will heal. Lot's of us realize how far back we had symptoms and others had none. There is no way I know of to find out, but it really doesn't matter to me anymore. I have just accepted it...
  25. Amber M
    New Question. My gluten free friend just had a procedure in which she had to be knocked out. For a week now she has been very ill with all of the neurological symptoms like what I have. (Gluten Ataxia) She has seen the Doctor and spoken with the Anesthesiologist a few times. They are not sure what is happening. She got the list of 6 drugs they used (isn...
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