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dixonpete

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by dixonpete

  1. dixonpete
    It's been more than a month since my last inoculation of hookworm larvae. No issues to report. All told, I probably consume the gluten equivalent of 3 slices of bread+ in an average day. My stools are perfectly normal and there's no sign of any gastric distress. A few weeks ago though, I did find one cheap brand of yogurt that made me ill, something I chalked...
  2. dixonpete
    My relatives never understood much about my celiac disease or other food sensitivities, and whenever I visited, I was always offered foods or drinks that would make me ill. I learned to accept that was just par for the course. You have to come to terms with the fact that you can't rely on others, however well-meaning, when it comes to your health. Anything...
  3. dixonpete
    It's been a week since my latest hookworm inoculation with my usual 25 Necator americanus (NA) larvae. The skin reaction this time has been mild. As I look at it now I just see some redness and several marks, really nothing to look at. The site was mildly itchy for a few days and that was the extent of it. I was using a topical corticosteroid cream 3x a day...
  4. dixonpete
    About 10 days ago I was called away out of my city on a family emergency. I had to leave on a Sunday, just before the courier with my hookworms were to arrive. I was frantic because were they to be sent back or lost I might not be able to get more until the spring as larvae often are killed in the cold weather. If that happened, I would soon have to go gluten...
  5. dixonpete
    Back in 2008 when I figured out I was celiac, no mention was made by my doctor about antibody tests, so I never took one. After being prompted by the mods here on the site I did get a clear antibody test a year or two ago while on hookworms and consuming gluten. It was completely in the normal range. Getting a normal biopsy while on hookworms and gluten...
  6. dixonpete
    It's been suggested that I clarify my claim of being celiac. Something of some importance as I am making the claim that at least for myself using hookworms has improved my life as a celiac, and making that claim on a celiac-oriented site no less. I have never had a positive biopsy test for celiac disease. There, I've said it. That said, I maintain...
  7. dixonpete
    Like I said, a 90+ week study is silly because hookworms typically don't last near that long, not in people with active immune gut problems anyway. So yeah, even I know better than those researchers did in that respect. The Helminthic Therapy Support Group of which John Scott heads has for years coached thousands of people though the process of using helminths...
  8. dixonpete
    I have ulcerative colitis that's greatly, or was greatly, aggravated by food, in particular meat protein, and celiac disease. The colitis is totally gone for sure as shown by regular colonoscopies. I see the celiac disease as gone the same way. Gluten is regular part of my diet now as is meat. It is what it is. John can speak for himself but I don't...
  9. dixonpete
    You've seen my "A1" antibody test and I've told you my GP declined to do the biopsy. In my blog and elsewhere I've described what my life was like before hookworms and afterward. It's night and day. Some months ago I also sent you a link to a video where an expert in treating people with helminths described his celiac patients passing those tests after...
  10. dixonpete
    Not to belabor the point, but I exist. I read the forums and I'd put my former celiac symptoms up there with anyone here. Hookworms can work for celiac disease, my experience proves it. There is a working mechanism there. The only question is how broadly efficacious hookworms are when used with best practices. The only way to find that out is to have...
  11. dixonpete
    Those studies don't reflect real life experience of self-treaters. Some hookworm hosts experience full relief from celiac symptoms and pass all the tests, others not so much. You don't know what basket you fall into until you try. I used to blow up bathrooms on the smallest gluten exposure. Now? Nothing. Worse was the hour long scream fests from the...
  12. dixonpete
    I guess you could say hookworms would allow me to eat gluten-free bread! At issue though is you still believe gluten remains a threat while on hookworms. I don't believe it does, for me anyway, as there's no evidence for that. Others in my situation have taken all the tests including biopsies and passed. I consider celiac disease an unstable, vulnerable...
  13. dixonpete
    I used to buy gluten-free bread at a well known gluten-free bakery. It always still made me ill. I was reacting to the other proteins in the bread I guess. Without hookworms in me I have a very broad spectrum of food sensitivities.
  14. dixonpete
    There's a wide margin of safety for hookworms, probably 10X+, so being a little over probably isn't a big deal. The current methods used by providers and the community these days is to inch up the number of hookworms until there's symptom relief. Finding the right number takes time but once you know, you know. I could go gluten-free but if I did I wouldn...
  15. dixonpete
    If I hadn't embarked on my hookworm journey I likely wouldn't have a colon right now. If all you have to deal with is celiac disease it's manageable. My cousin doesn't seem to mind being celiac. Celiac disease was maybe 15-20% of my calculation to do hookworms. I simply couldn't take the colitis pain anymore.
  16. dixonpete
    A 94-week study was guaranteed to fail. My hookworms have never lasted longer than 26 weeks - they die off by then or age out, I'm not sure which. If I want continuous symptom relief I have to reinoculate a month or so before that.
  17. dixonpete
    There are lots of reasons for the low interest. Skepticism, cost, revulsion, fear of the unknown. Also helminths don't work for everyone, and if they do the improvement may only be partial. I won the helminth lottery and that's why I'm so enthusiastic. Most of the people habiting this site would benefit from hosting but convincing anyone is like pulling...
  18. dixonpete
    My renewal date came up on the weekend based on my new inoculation schedule of 5 months and I reordered larvae. All much simpler than it used to be, but I guess that's what you get once you learn the angles. Just a quick email to confirm the price and a visit to PayPal to send the money, and then the Provider then gave me a tracking code. The larvae should...
  19. dixonpete
    That was going to be my point. The odds of vomiting were directly related to the amount of gluten exposure.
  20. dixonpete
    This week I've been reading up on self supply of hookworms, not just to save money but to ensure access. Covid made getting larvae difficult, and here in Canada it's hit or miss once the cold weather sets in. Larvae don't like temps below 5C and they can die in transit because of the cold. Providers usually resend for free but that still means being symptomatic...
  21. dixonpete
    A few weeks ago I had a bad day marked by considerable GI distress. It was bad enough I figured I must have lost my hookworm colony. Immediately I went gluten-free and was better, so I thought I'd have to pony up earlier than I expected for my next inoculation. After a further 4-5 gluten-free days I reintroduced meat and gluten expecting the worst, but...
  22. dixonpete
    The next step of looking for efficacy complicated by the fact that there are multiple conditions helminths are used for, and some helminths seem to be more effective for different conditions than others. This page from the HT Wiki illustrates the scope of the problem: https://helminthictherapywiki.org/wiki/Selecting_a_therapeutic_helminth. At a rough count...
  23. dixonpete
    https://doi.org/10.1093/ibd/izad110 Published June 15, 2023 in the journal of Inflammatory Bowel Diseases, this study is expressly for ulcerative colitis, but because the focus was on safety and tolerance of hookworms as a treatment, the results should apply for any of the myriad conditions people use hookworms to treat. It's a pilot study paving the...
  24. dixonpete
    By species I meant strain. The only species of hookworm ever used in Helminthic Therapy is Necator americanus. It's well adapted to humans and a pussycat compared to other species of hookworms.
  25. dixonpete
    So you've made the decision to try Helminthic Therapy. What do you do now? 1) First you join the Facebook Helminthic Therapy Group @ https://www.facebook.com/groups/htsupport and make an introductory post. Tell the members about what you hope to achieve and a bit about your medical history. The regulars there are veterans at HT, use helminths (usually...
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