dixonpete
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by dixonpete
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As followers of this blog are aware I recently demonstrated that it took 30 days from larvae inoculation to recover my ability to consume gluten. You, as a visitor to celiac.com, are obviously concerned enough about your celiac status to want to seek out information on how to deal with your condition. Well boys and girls, aside from going completely...
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I believe the answer to that question is an unequivocal yes. Celiac disease is a debilitating condition that uncontrolled exacts a huge toll on people impacting both their health and their quality of life. Controlled, by which I mean sufferers make serious effort to avoid gluten, celiac disease still lurks in the background waiting to act on diet...
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One person I know provides others local to her with hookworms. She mentioned of the 9 people she supplies none have experienced any side effects. Unfortunately statistics aren't yet available on how frequently side effects occur. Medically it's widely acknowledged that a small hookworm infection of Necator americanus is usually asymptomatic and harmless...
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I suppose it's to be expected that a treatment that has the goal of manipulating the immune system could have side effects, and for some people that appears to be true. Back when I started in 2018 with Helminthic Therapy (HT) I simply asked for 25 larvae from my provider because, well, the price was the same whether I ordered one or 25, so I tried to...
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Someone recently posted their HT story with the HT Support Group. It's probably the most riveting account I've read yet where a person was rescued from a life living with devastating illness to making a near full recovery. https://helminthictherapywiki.org/wiki/Hookworms_literally_saved_my_life?fbclid=IwAR2h6DKBYwZaWEGjcrr6CYgAHia4HP5aJMHiCM0nT1yzrRgQSl...
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I have several feelings on the matter. First and foremost I feel gratitude. Beginning in my early 40s I was very sick. Because of my out of control immune system I was in great pain and suffered tremendous disability, social isolation, deprivation and vulnerability. With hookworms on board, all that is gone. Sure, with the best knowledge of exactly what foods...
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Hookworms and the three other helminths are used for a variety of immune conditions, not just celiac disease. John Scott just pointed me towards a collection of blogs like mine where people discuss their experiences at length like I do: https://helminthictherapywiki.org/wiki/Helminthic_therapy_blogs?fbclid=IwAR0U6tvguzLaQ0Tl-0gwC-zMPkJrMKIn2tZk018iHiDGuN...
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One video I watched had the main complaint that hookworms allowed the host to eat junk (gluten, for example). That misses the point. I was down to 12 foods I thought were relatively ok to eat but I still suffered from mild colitis and usually had 6 unpredictable bowel movements per day. I was miserable. Before hosting hookworms, the fellow that...
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The Helminthic Therapy Support Group on Facebook maintains a repository of all its gained knowledge in the form of the freely available Helminthic Therapy Wiki (Google it). In it there's a listing of videos that the group has found most useful: https://helminthictherapywiki.org/wiki/Helminthic_therapy_in_the_media#Featured_videos I did a YouTube search...
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In case there was any doubt I'm pleased to report everything is fine. I've resumed a gluten containing diet and haven't experienced any issues. I mentioned my success to the people over at the Facebook Helminthic Therapy Support Group and they were all happy for me. One person said in the five years she's been hosting hookworms she's never considered consuming...
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For those curious where the 30 days comes from it's probably simply a reflection of the fact the hookworm larvae need time that to grow up to be mature 1 cm long adults. On receipt in the vial the larvae are microscopic, invisible to the naked eye.
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I've had plenty of gluten goodness sitting in my freezer for a month now and the siren call from them was too much for me to bear. A donut and a Crustini sacrificed themselves for science last night. Aside from a little gas I've had no reaction - just feeling fine. So that it's it, 30 days and I'm back in remission. I apologize for the dramatics but...
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Impatient am I. I just ate another 10 Wheat Thins. Still no reaction. If I survive this I'm back on a regular diet tomorrow.
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The oatmeal yesterday didn't cause any reaction whatsoever. I decided to take the plunge this morning and ate a whole Wheat Thins cracker. If anything would unambiguously cause a reaction that much gluten would. In the past pre-hookworms an exposure 1/10th that much would have had me sitting on the toilet for a couple of hours. If I don't react by the...
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I've been keeping a blog on this platform about my adventures with hookworms.
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I was doing 25 larvae every 6 months which was handy coordinating with the cold weather here in Canada. This last cycle I managed to wait too long and aged out my hookworms and had to go gluten-free again. I just did my first gluten test today and so far so good (famous last words). I think I've exceeded the time that I reacted last week when I had an accidental...
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As I've written about before, the last time I ran out of hookworms (or perhaps effective hookworms) was with my first cycle spanning early August 2018 to the first week of March 2019. That end point was when I had to go back on a gluten-free diet. Putting those dates together that's 5 months for 2018 and 2 months of 2019. I was slow in testing gluten that...
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Being sick was a one-day thing. I did buy a gluten-free version of Quaker Oats oatmeal. I'll give it a go today and see if I do better. Celiacs can react to oats, so it's possible that was the source. For the record while fully hookwormed I've eaten hundreds of bowls of regular oatmeal without consequence. The clock is ticking, I hope, until my celiac days...
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Yesterday I got sick. Twice. Just like I remember being sick in my celiac pre-hookworm days when I was still eating gluten. A colonoscopy cleanse level sick. I had been eating gluten-free this month letting my critters grow and mature into their adult forms so I wasn't sure what happened. Then I remembered I had eaten a new oatmeal. I didn't say gluten...
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It's been a while, but do you remember me posting my antibody tests last year I think it was? They were A1. Since my colony stopped functioning last month I figure when I became symptomatic again it's fair to assume any new antibody tests would reflect a problem. Once my colony is back in business such tests should be ok again. As it stands right now...
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I was always super reactive to gluten. Hours of toilet duty on any exposure. Large exposures to gluten were norovirus events. Was kinda like living life being a firecracker surrounded by matches.
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It's the part of the price of admission. I've never heard of the rash creating an issue other than being temporarily unsightly. 15 days on it's almost unnoticeable. Compare and contrast, a bit of an itch for a few days or 6 months of colitis and not being able in restaurants. Helminthic Therapy will probably always be niche. Until Scott posted a...
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I've been made desperately ill all while thinking I was being celiac safe. It happens to all celiacs eventually no matter how careful we are. I prefer not having to worry about such things. I don't find hookworms onerous, and again, switching the topic, I did everything I possibly could to avoid the food effects on my colitis and I never succeeded. The...
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A better response would have been, a diabetic using insulin is still a diabetic, but what sense would it be to withhold insulin? Hookworms are my insulin.
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Semantics. With hookworms on board I display no signs of being celiac. If you buy the argument that humans in their natural state would always be carrying hookworms then it's you the unhookwormed who are unnatural. For me it's a mute argument. Either I use hookworms or I lose my colon, or I take those ungodly expensive colitis drugs. I ran into one guy...
