dixonpete
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by dixonpete
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I spent a good 10 years dodging gluten. When I got caught it wasn't subtle. My last gluten exposure was a big one with the reaction lasting a day and half. I had to sit in the bathtub for hours to catch all the vomit and diarrhea being projected out of me. It was gluten. Also, as I said, my symptoms were identical to my formally diagnosed relatives. It's...
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I've told this story before here, but I guess it bears repeating. For two years straight I was sick multiple times a day was catastrophic diarrhea. Towards the end I was hitting over 10x a day. I rarely left my apartment and was considering suicide. My GP wasn't any help. One day after getting sick after a sandwich I finally figured out the association...
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Hookworms modify the immune systems' behavior to protect themselves in the gut. The argument is that in the history of the human species hookworms would have always been there, and as such would be a defacto component of the human immune system. Remove them and things can go haywire. That's the theory at least. I was about to undergo surgery for my ulcerative...
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The Connection Between Celiac Disease and Gut Microbiome Health
dixonpete commented on Jefferson Adams's article in Spring 2023 Issue
You forgot the hookworms! They do start small.- 1 comment
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Hookworm Infection No Magic Bullet for Gluten Tolerance in Celiac Disease
dixonpete commented on Jefferson Adams's article in Winter 2023 Issue
I completely disagree. Again, I'm drawing from personal experience here, but my GI tract under hookworms has changed from a nightmare to deal with to being a veritable ticking clock. It seems no matter I throw at it, it just keeps chugging along. Completely aside from gluten I regularly find foods like I did yesterday, ham and pea soup, that I had long given...- 13 comments
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Hookworm Infection No Magic Bullet for Gluten Tolerance in Celiac Disease
dixonpete commented on Jefferson Adams's article in Winter 2023 Issue
I can't speak for John, but the only money I've seen has gone out to purchase hookworm larvae. My motivation is humanitarian. I think back at how sick I was, and I look around and see others who are currently in the same boat that I was, and I want to give them a good shake and get them out of that hole. Do you have any idea how much good karma you get from...- 13 comments
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Beware Shelled Nuts
dixonpete replied to Ramncats's topic in Gluten-Free Foods, Products, Shopping & Medications
Those floured pistachios would have been 2008. -
Beware Shelled Nuts
dixonpete replied to Ramncats's topic in Gluten-Free Foods, Products, Shopping & Medications
I think it was my very first glutening experience after diagnosis was pistachios. After I got sick I read the label. Flour had been added to the bag to stop the pistachios from sticking together. -
Hookworm Infection No Magic Bullet for Gluten Tolerance in Celiac Disease
dixonpete commented on Jefferson Adams's article in Winter 2023 Issue
Nobody is making the claim that hosting hookworms will resolve every celiac's disease. Unfortunately it just doesn't work that way. What does seem to happen is that for the majority of subjects in most all the studies is that reactions to gluten are lessened. John Scott makes a good case that using best practices gained from real world experience hosting...- 13 comments
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Hookworm Infection No Magic Bullet for Gluten Tolerance in Celiac Disease
dixonpete commented on Jefferson Adams's article in Winter 2023 Issue
I'm the hookworm host that was featured in the previous article. At this point I'm tempted to shoot a video of me eating spaghetti followed by an apple pie dessert. In our Helminthic Therapy Support Group I think few people hosting hookworms would say that their hookworms last 42 weeks. The one time I let mine die out it was at 30-week mark. I know that...- 13 comments
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Man Claims Hookworm Treatment Led to Remission of Celiac Disease
dixonpete commented on Jefferson Adams's article in Additional Concerns
With me my IBD caused three surgeries, a permanent physical disability, much agony, and I don't even know how to describe the impact of the two years I had pre-diagnosis of celiac disease (constant illness) and 20x I was glutened afterward. From hookworms I get a painless rash after inoculation that's unsightly for about a week. Twice a year. Other than...- 71 comments
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Man Claims Hookworm Treatment Led to Remission of Celiac Disease
dixonpete commented on Jefferson Adams's article in Additional Concerns
I was reading your post exactly at the moment I was snacking on mini-wheats and a wheat flour maple cookie, so obviously I beg to differ.- 71 comments
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Man Claims Hookworm Treatment Led to Remission of Celiac Disease
dixonpete commented on Jefferson Adams's article in Additional Concerns
Back when I first got sick with my trifecta of IBD issues I never would have dreamt that infecting myself with a parasite would be the solution to restore me to health. Turned out though that was exactly the case. It took me 8 years to get my head around the idea and find the resources to do the deed, but when I did, it was like flicking a switch, and all...- 71 comments
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Man Claims Hookworm Treatment Led to Remission of Celiac Disease
dixonpete commented on Jefferson Adams's article in Additional Concerns
Something I haven't mentioned before is that my hookworms allow me to eat junk food without issue. Even if there were no gluten or meat in a food item most foods I couldn't touch for reasons I never understood. Nowadays I can eat total crap and my GI tract doesn't miss a beat. Not saying it's a reason to get wormed but it's an interesting side benefit.- 71 comments
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The hookworm posts are coming. Figured without a proper background people wouldn't understand why I was driven to consider hookworms.
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In the last blog entry it was late July 2018 and my larvae had just arrived. Before going further there is a fair amount of history leading up to that moment that probably should be discussed. Back in 1999 at age 35 and single again I had my first inkling of what was to come. I was into body building at the time and consumed a fair amount of protein...
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Back in the summer of 2018 I was reaching a pivotal moment in my life. I had had celiac disease and ulcerative colitis since 2006, but the colitis had flared to an 11 and wasn't responding to drugs. Prednisone disrupted my sleep but didn't even begin to take the edge off my colitis pain. Daily I was going into the shower, closing the door, cranking the radio...
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Man Claims Hookworm Treatment Led to Remission of Celiac Disease
dixonpete commented on Jefferson Adams's article in Additional Concerns
That half a year (7 months) was just the lifetime of my first batch of hookworms. They died en masse for some reason. I would have expected a slower rate of attrition. If you were referring to my self-diagnosis of celiac disease that was two uncomfortable years. I was just reading recently about the history of the discovery of wheat/gluten as the causative...- 71 comments
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Man Claims Hookworm Treatment Led to Remission of Celiac Disease
dixonpete commented on Jefferson Adams's article in Additional Concerns
Just looking at that study you mentioned to John Scott. When I did my first inoculation back in late July 2018, my hookworms all died off around late Feb 2019. I saw the bodies. That makes it roughly 30 weeks, just over 1/2 a year. If the study lasted 94 weeks I would have been forced to withdraw less than 1/3 of the way through. I'd call that a...- 71 comments
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Man Claims Hookworm Treatment Led to Remission of Celiac Disease
dixonpete commented on Jefferson Adams's article in Additional Concerns
Just to add to John's comment, it wasn't him that claimed that Hookworms could cure celiac disease. I believe the words he used were 'to treat'. It was me that said hookworms were keeping my celiac disease and ulcerative colitis in remission. And that for me, hookworms are effectively a cure for those two conditions for so long as my colony is healthy. I...- 71 comments
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Man Claims Hookworm Treatment Led to Remission of Celiac Disease
dixonpete commented on Jefferson Adams's article in Additional Concerns
For me it was pretty obvious, but I had a lot of things wrong with me. Reduction of bowel movements from 6 per day to 1-2 with much better formed, painless stools. I had near global food sensitivities, and now I have a near cast iron stomach. And of course, the ability to consume gluten without wanting to die.- 71 comments
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Man Claims Hookworm Treatment Led to Remission of Celiac Disease
dixonpete commented on Jefferson Adams's article in Additional Concerns
Helminthic Therapy only advocates for the use of the most benign and controllable helminths, not the ones that are generally seen in the wild that cause blindness, elephantiasis, etc. Wikipedia claims there are 68 species of hookworm (https://en.wikipedia.org/wiki/Hookworm#Species), HT only advocates for one, Necator americanus. Dog hookworms, for example...- 71 comments
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Celiac Disease Causes Social and Dating Anxiety, Lowers Quality of Life
dixonpete commented on Scott Adams's article in Additional Concerns
I rather think of it as a conversation starter..- 21 comments
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Man Claims Hookworm Treatment Led to Remission of Celiac Disease
dixonpete commented on Jefferson Adams's article in Additional Concerns
"More recently, a study from Finland, found even a higher prevalence of biopsy-proven celiac disease (2.13%) in older people (52-74 years of age)." - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3227015/ I read somewhere else recently a figure of 2.7% celiac incidence by the time people reach end of life. If I come across the source I'll come back and...- 71 comments
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