
dixonpete
Advanced Members-
Posts
191 -
Joined
-
Last visited
-
Days Won
20
Content Type
Profiles
Forums
Events
Blogs
Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by dixonpete
-
I've been made desperately ill all while thinking I was being celiac safe. It happens to all celiacs eventually no matter how careful we are. I prefer not having to worry about such things. I don't find hookworms onerous, and again, switching the topic, I did everything I possibly could to avoid the food effects on my colitis and I never succeeded. The...
-
A better response would have been, a diabetic using insulin is still a diabetic, but what sense would it be to withhold insulin? Hookworms are my insulin.
-
Semantics. With hookworms on board I display no signs of being celiac. If you buy the argument that humans in their natural state would always be carrying hookworms then it's you the unhookwormed who are unnatural. For me it's a mute argument. Either I use hookworms or I lose my colon, or I take those ungodly expensive colitis drugs. I ran into one guy...
-
The few, the proud, the hookwormed. I first heard about the idea in 2010 but I had to be desperate enough to be pushed to try them. My celiac cousin with presumably the same genetics as me and so likely an excellent candidate has no interest. Says he's perfectly fine being celiac. I like the freedom of choice and freedom from fear of not being celiac...
-
My decision to use hookworms wasn't based on fixing my celiac disease, that was just a bonus. I was at risk of needing surgery because of ulcerative colitis and the pain was absolutely intolerable. I was lucky. Hookworms fixed both conditions.
-
I take Vit D daily, never had any involvement with B12, I had a complete blood panel done several weeks ago and everything was fine. I used to have lots of issues with low iron because of blood loss due to colitis (blood in stool) but my iron levels have been fine since I've been using hookworms. In my case they save much more blood than they consume...
-
I hear you Scott. Protocols exist for a reason. In my case though I've established to my satisfaction that with a healthy colony of hookworms my GI tract does well. How do I know that? With a healthy hookworm colony my blood tests are fine, my stools are picture-perfect and painless, I have none of the irritation and bleeding that mark colitis, and the...
-
By gluten test I meant not having GI symptoms from consuming gluten. I've been around this block a few times now. If my hookworms are healthy, then so am I.
-
Hookworms don't live forever in the human gut. They are constantly under attack from the immune system and also they get older and less capable and eventually die off exiting via the stool. With the first batch I did in 2018 I had protection till just after the 6-month mark. Over a couple of weeks I had progressively worse GI symptoms leading to me soiling...
-
Not much to report. My GI issues have all cleared up, but that's probably because I've gone gluten-free for the month of June. My entry wound has almost entirely healed. Aside from a touch of redness it should be 100% in a couple of days. That steroid cream made a huge difference, not in pain or discomfort really but certainly in aesthetics. Previously the...
-
This time around I've been using a steroid cream to keep down the inflammation. The results still aren't pretty but I don't have the ugly blisters I usually get. Definitely worth using. The cream I used was a topical corticosteroid called Taro-Mometasone, aka Mometasone Furoate USP 0.1%, applied every 6–8 hours. After a week the mark should be a...
-
A couple of weeks ago or so I started noticing GI issues. Occasional bouts of loose stool, stirrings of colitis, incontinence - all completely at odds with my usual experience. It had been more than 6 months since my last hookworm inoculation so I knew it was time to re-up. Things have changed since I started with Helminthic Therapy. I got hooked up...
-
So I ordered my first hookworms around July 7th, 2018. The sales and transport of hookworm operates in somewhat of a gray area. Authorities recognize that seriously ill people are trying helminths like hookworms tin order to get better, but the laws in all jurisdictions haven't caught up with what some people see as a medical necessity. Accordingly...
-
I also had one bout of Dermatitis herpetiformis. Not sure why it only occurred once. Weirdest skin condition ever.
- 19 comments
-
- celiac disease
- drug
-
(and 3 more)
Tagged with:
-
I spent a good 10 years dodging gluten. When I got caught it wasn't subtle. My last gluten exposure was a big one with the reaction lasting a day and half. I had to sit in the bathtub for hours to catch all the vomit and diarrhea being projected out of me. It was gluten. Also, as I said, my symptoms were identical to my formally diagnosed relatives. It's...
- 19 comments
-
- celiac disease
- drug
-
(and 3 more)
Tagged with:
-
I've told this story before here, but I guess it bears repeating. For two years straight I was sick multiple times a day was catastrophic diarrhea. Towards the end I was hitting over 10x a day. I rarely left my apartment and was considering suicide. My GP wasn't any help. One day after getting sick after a sandwich I finally figured out the association...
- 19 comments
-
- celiac disease
- drug
-
(and 3 more)
Tagged with:
-
Hookworms modify the immune systems' behavior to protect themselves in the gut. The argument is that in the history of the human species hookworms would have always been there, and as such would be a defacto component of the human immune system. Remove them and things can go haywire. That's the theory at least. I was about to undergo surgery for my ulcerative...
- 19 comments
-
- celiac disease
- drug
-
(and 3 more)
Tagged with:
-
The Connection Between Celiac Disease and Gut Microbiome Health
dixonpete commented on Jefferson Adams's article in Spring 2023 Issue
You forgot the hookworms! They do start small.- 1 comment
-
- celiac disease
- connection
-
(and 4 more)
Tagged with:
-
Hookworm Infection No Magic Bullet for Gluten Tolerance in Celiac Disease
dixonpete commented on Jefferson Adams's article in Winter 2023 Issue
I completely disagree. Again, I'm drawing from personal experience here, but my GI tract under hookworms has changed from a nightmare to deal with to being a veritable ticking clock. It seems no matter I throw at it, it just keeps chugging along. Completely aside from gluten I regularly find foods like I did yesterday, ham and pea soup, that I had long given...- 13 comments
-
- celiac disease
- cure
- (and 6 more)
-
Hookworm Infection No Magic Bullet for Gluten Tolerance in Celiac Disease
dixonpete commented on Jefferson Adams's article in Winter 2023 Issue
I can't speak for John, but the only money I've seen has gone out to purchase hookworm larvae. My motivation is humanitarian. I think back at how sick I was, and I look around and see others who are currently in the same boat that I was, and I want to give them a good shake and get them out of that hole. Do you have any idea how much good karma you get from...- 13 comments
-
- celiac disease
- cure
- (and 6 more)
-
Beware Shelled Nuts
dixonpete replied to Ramncats's topic in Gluten-Free Foods, Products, Shopping & Medications
Those floured pistachios would have been 2008. -
Beware Shelled Nuts
dixonpete replied to Ramncats's topic in Gluten-Free Foods, Products, Shopping & Medications
I think it was my very first glutening experience after diagnosis was pistachios. After I got sick I read the label. Flour had been added to the bag to stop the pistachios from sticking together. -
Hookworm Infection No Magic Bullet for Gluten Tolerance in Celiac Disease
dixonpete commented on Jefferson Adams's article in Winter 2023 Issue
Nobody is making the claim that hosting hookworms will resolve every celiac's disease. Unfortunately it just doesn't work that way. What does seem to happen is that for the majority of subjects in most all the studies is that reactions to gluten are lessened. John Scott makes a good case that using best practices gained from real world experience hosting...- 13 comments
-
- celiac disease
- cure
- (and 6 more)
-
Hookworm Infection No Magic Bullet for Gluten Tolerance in Celiac Disease
dixonpete commented on Jefferson Adams's article in Winter 2023 Issue
I'm the hookworm host that was featured in the previous article. At this point I'm tempted to shoot a video of me eating spaghetti followed by an apple pie dessert. In our Helminthic Therapy Support Group I think few people hosting hookworms would say that their hookworms last 42 weeks. The one time I let mine die out it was at 30-week mark. I know that...- 13 comments
-
- celiac disease
- cure
- (and 6 more)