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dixonpete

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by dixonpete

  1. dixonpete
    Imagine having to tell your date you host hookworms to deal with celiac disease!
  2. dixonpete
    My fridge..
  3. dixonpete
    I hear that refrain a lot in the group. Meds will never be able to replace helminths that have evolved for millions of years to work with the mammalian immune system, and with Necator adapted specifically to human hosts. Maybe it'll be possible, maybe not, but researchers certainly have their work cut out for them. And the cost of such drugs when they...
  4. dixonpete
    Hosting isn't as bad as it sounds. For me, it's a biennial event that takes probably 10 minutes of my time from ordering to application. The rash from the entry wound is unsightly but heals up and disappears. Most of the problem have with hookworms is fear. There are things to learn. The right number and frequency, how not to injure the hookworms by...
  5. dixonpete
    I didn't like the idea either, the main reason I was pushed over the edge was because of the colitis. Celiac disease was one thing, but the colitis pain was intolerable for me. It would be better if the solution was rubbing dandelions under one's chin, but it is what it is. The way it is now, you reach out to the provider and arrange the purchase...
  6. dixonpete
    My celiac disease kicked in about the same time as my ulcerative colitis back in 2005/2006. The UC was easy to diagnose. A scope saw all the ulcers. The celiac disease went on for two years before I figured it out on my own. My GP missed it, though I don't know why because my symptoms were textbook. I stayed gluten-free from June 21, 2008 till Dec...
  7. dixonpete
    That's exactly the claim. Substitute the word parasite with symbiont and the claim sounds better. Think of the helminths as acting as a portable immune system regulator. In the case of celiac disease people with the DQ2 or DQ8 alleles fare less well dealing with helminth absence than people with other alleles. That's my explanation of the facts anyway...
  8. dixonpete
    Actually that 3rd point is what proponents of Helminthic Therapy argue. Nothing to do with the medication per se, but the fact the medications enable people to live without helminths that's the problem. The core argument behind HT is the human immune system evolved with the presence of helminths. Their immune modulating activity is a component of a balanced...
  9. dixonpete
    There are different species of hookworms, some are friendlier than others. Not acknowledging that is kind of like equating a grown lion with a kitten. Necator americanus in particular is well adapted to humans and tends to only cause issues when excessive numbers are used. In addition to celiac disease I also suffered from ulcerative colitis. The colitis...
  10. dixonpete
    That was actually part of my calculus. I was in my late 50s. Not wanting to wait till my life was almost over before I got fixed. I didn't mention it before, but I pay about $400 a year for my hookworm larvae. Sounds like a lot I know, but I figure I save twice that by not having to buy gluten-free pasta and other gluten-free foods.
  11. dixonpete
    People use Necator americanus hookworms for Helminthic Therapy. They are well-behaved and actually use very little blood. In addition, the modern standard is to use very few hookworm larvae, usually starting with just 5. I've never noticed mine. I do notice all the gluten products I now get to eat and the absence of colitis. Plus, living in fear of other...
  12. dixonpete
    The test where I was below 0.5U/ml was the one specific to celiac disease, TRANSGLUTAMINASE IGA ANTIBODIES, so I'm pretty sure I'm good.
  13. dixonpete
    A lot more than two slices of bread per day. Probably the equivalent of 3-4x that with all sources considered. My GP said the numbers were fine.
  14. dixonpete
    I finally got that ant-TTG result back. 2.8. Apparently for that test there's no concern unless it's over 4, so looks like I'm ok.
  15. dixonpete
    Nope. I restarted May 24th, 2022, and reinoculated Oct 21st, 2022. I'm currently on a 2x a year schedule, spring and fall. Hookworm larvae don't fare well in the winter, so it's important to get doses in before the temp drops. I suppose people who need to inoculate more frequently must self-harvest eggs from their stool or live in warmer climes.
  16. dixonpete
    From Covid? Not that I know of. I was left with a partially collapsed right lung but that resolved after a couple of months. I actually caught Covid again earlier this year (rapid tested). It was little more than a bad cold that cleared up in 5 days. Thanks to it being a different strain and 3 vaccines I suppose.
  17. dixonpete
    I saw that. During a period between hookworms in April 2020 I caught Covid-19 when it was really mean. It darn near killed me out of the gate with an over immune reaction that blocked my airway with fluid. By the sound of that article I would have been better off had I been hosting back then. Suffering from IBD carries a broadly increased risk from...
  18. dixonpete
    A physician on Quora listed out all the tests for Celiacs and I forwarded that to my GP. So far I've only had the anti-TTG test and haven't heard back yet the results. Hookworm hosting celiacs in the Helminthic Therapy Support Group have gone through this and have passed those tests with flying colors. I have no reason to suspect my case would be any...
  19. dixonpete
    I chatted up the admins over at the Helminthic Therapy Support Group and their consensus was that the majority of celiac hookworm hosts would be spared the catastrophic reactions to casual gluten exposure, but most of those would probably choose to stay gluten-free because they felt better for it. Only a minority would be like me and become completely unreactive...
  20. dixonpete
    After one particularly painful experience where I tried really hard to negotiate with a restaurant and still got deathly sick, I decided putting my health on the line relying on people who didn't have the same interest as me didn't make sense. I think I ate in one restaurant over the next 10 years after that.
  21. dixonpete
    I figured out I was celiac in June 2008 after two years of increasingly severe illness. Sick many times per day, plus I was dealing with a diagnosed case of ulcerative colitis at the time. Once I cut out gluten the diarrhea stopped immediately, but I was still dealing with mucus in my stool (grossest thing ever) and still too many bowel movements. It...
  22. dixonpete
    Frankly I don't know how much experience he has monitoring celiac patients. I do know he's never asked me about my success in adhering to a gluten-free diet. Not that that's a particular issue anymore. I'll broach the idea to him at our next face-to-face meeting. I do know he's big on flow charts and decision trees in standards of care. There's probably a...
  23. dixonpete
    Not that I know of. Hookworms have a life cycle they have to go through. They are programmed for it. Into the skin onto the lungs where they mature for a week travel up the trachea get coughed down the esophagus land and stay in the jejunum If you swallowed them no doubt they'd try to penetrate the skin in the mouth and...
  24. dixonpete
    It's always a good story to bring up in casual conversation. Especially right now when my entry wound is maximally gross. Actually, it's looking much better now.
  25. dixonpete
    No doubt. The way I look at it an antihistamine capsule made with gluten would have me on the toilet for two hours. Now pretty much every meal I have is loaded with gluten and there's no reaction. But if the TTG test is off I'm sure he'll spring for the endoscopy. Btw, I currently weigh 320. If anything, my gut villi are a little too healthy.
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