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dixonpete

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by dixonpete

  1. dixonpete
    Something I haven't mentioned before is that my hookworms allow me to eat junk food without issue. Even if there were no gluten or meat in a food item most foods I couldn't touch for reasons I never understood. Nowadays I can eat total crap and my GI tract doesn't miss a beat. Not saying it's a reason to get wormed but it's an interesting side benefit.
  2. dixonpete

    A new journey

    dixonpete commented on dixonpete's blog entry in Pete Dixon

    The hookworm posts are coming. Figured without a proper background people wouldn't understand why I was driven to consider hookworms.
  3. dixonpete

    A new journey

    dixonpete posted a blog entry in Pete Dixon

    In the last blog entry it was late July 2018 and my larvae had just arrived. Before going further there is a fair amount of history leading up to that moment that probably should be discussed. Back in 1999 at age 35 and single again I had my first inkling of what was to come. I was into body building at the time and consumed a fair amount of protein...
  4. dixonpete
    Back in the summer of 2018 I was reaching a pivotal moment in my life. I had had celiac disease and ulcerative colitis since 2006, but the colitis had flared to an 11 and wasn't responding to drugs. Prednisone disrupted my sleep but didn't even begin to take the edge off my colitis pain. Daily I was going into the shower, closing the door, cranking the radio...
  5. dixonpete
    That half a year (7 months) was just the lifetime of my first batch of hookworms. They died en masse for some reason. I would have expected a slower rate of attrition. If you were referring to my self-diagnosis of celiac disease that was two uncomfortable years. I was just reading recently about the history of the discovery of wheat/gluten as the causative...
  6. dixonpete
    Just looking at that study you mentioned to John Scott. When I did my first inoculation back in late July 2018, my hookworms all died off around late Feb 2019. I saw the bodies. That makes it roughly 30 weeks, just over 1/2 a year. If the study lasted 94 weeks I would have been forced to withdraw less than 1/3 of the way through. I'd call that a...
  7. dixonpete
    Just to add to John's comment, it wasn't him that claimed that Hookworms could cure celiac disease. I believe the words he used were 'to treat'. It was me that said hookworms were keeping my celiac disease and ulcerative colitis in remission. And that for me, hookworms are effectively a cure for those two conditions for so long as my colony is healthy. I...
  8. dixonpete
    For me it was pretty obvious, but I had a lot of things wrong with me. Reduction of bowel movements from 6 per day to 1-2 with much better formed, painless stools. I had near global food sensitivities, and now I have a near cast iron stomach. And of course, the ability to consume gluten without wanting to die.
  9. dixonpete
    Helminthic Therapy only advocates for the use of the most benign and controllable helminths, not the ones that are generally seen in the wild that cause blindness, elephantiasis, etc. Wikipedia claims there are 68 species of hookworm (https://en.wikipedia.org/wiki/Hookworm#Species), HT only advocates for one, Necator americanus. Dog hookworms, for example...
  10. dixonpete
    I rather think of it as a conversation starter..
  11. dixonpete
    "More recently, a study from Finland, found even a higher prevalence of biopsy-proven celiac disease (2.13%) in older people (52-74 years of age)." - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3227015/ I read somewhere else recently a figure of 2.7% celiac incidence by the time people reach end of life. If I come across the source I'll come back and...
  12. dixonpete
    Imagine having to tell your date you host hookworms to deal with celiac disease!
  13. dixonpete
    My fridge..
  14. dixonpete
    I hear that refrain a lot in the group. Meds will never be able to replace helminths that have evolved for millions of years to work with the mammalian immune system, and with Necator adapted specifically to human hosts. Maybe it'll be possible, maybe not, but researchers certainly have their work cut out for them. And the cost of such drugs when they...
  15. dixonpete
    Hosting isn't as bad as it sounds. For me, it's a biennial event that takes probably 10 minutes of my time from ordering to application. The rash from the entry wound is unsightly but heals up and disappears. Most of the problem have with hookworms is fear. There are things to learn. The right number and frequency, how not to injure the hookworms by...
  16. dixonpete
    I didn't like the idea either, the main reason I was pushed over the edge was because of the colitis. Celiac disease was one thing, but the colitis pain was intolerable for me. It would be better if the solution was rubbing dandelions under one's chin, but it is what it is. The way it is now, you reach out to the provider and arrange the purchase...
  17. dixonpete
    My celiac disease kicked in about the same time as my ulcerative colitis back in 2005/2006. The UC was easy to diagnose. A scope saw all the ulcers. The celiac disease went on for two years before I figured it out on my own. My GP missed it, though I don't know why because my symptoms were textbook. I stayed gluten-free from June 21, 2008 till Dec...
  18. dixonpete
    That's exactly the claim. Substitute the word parasite with symbiont and the claim sounds better. Think of the helminths as acting as a portable immune system regulator. In the case of celiac disease people with the DQ2 or DQ8 alleles fare less well dealing with helminth absence than people with other alleles. That's my explanation of the facts anyway...
  19. dixonpete
    Actually that 3rd point is what proponents of Helminthic Therapy argue. Nothing to do with the medication per se, but the fact the medications enable people to live without helminths that's the problem. The core argument behind HT is the human immune system evolved with the presence of helminths. Their immune modulating activity is a component of a balanced...
  20. dixonpete
    There are different species of hookworms, some are friendlier than others. Not acknowledging that is kind of like equating a grown lion with a kitten. Necator americanus in particular is well adapted to humans and tends to only cause issues when excessive numbers are used. In addition to celiac disease I also suffered from ulcerative colitis. The colitis...
  21. dixonpete
    That was actually part of my calculus. I was in my late 50s. Not wanting to wait till my life was almost over before I got fixed. I didn't mention it before, but I pay about $400 a year for my hookworm larvae. Sounds like a lot I know, but I figure I save twice that by not having to buy gluten-free pasta and other gluten-free foods.
  22. dixonpete
    People use Necator americanus hookworms for Helminthic Therapy. They are well-behaved and actually use very little blood. In addition, the modern standard is to use very few hookworm larvae, usually starting with just 5. I've never noticed mine. I do notice all the gluten products I now get to eat and the absence of colitis. Plus, living in fear of other...
  23. dixonpete
    The test where I was below 0.5U/ml was the one specific to celiac disease, TRANSGLUTAMINASE IGA ANTIBODIES, so I'm pretty sure I'm good.
  24. dixonpete
    A lot more than two slices of bread per day. Probably the equivalent of 3-4x that with all sources considered. My GP said the numbers were fine.
  25. dixonpete
    I finally got that ant-TTG result back. 2.8. Apparently for that test there's no concern unless it's over 4, so looks like I'm ok.
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