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dixonpete

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by dixonpete

  1. dixonpete
    My GP signed off yesterday on the blood work, but he said without signs of GI issues an endoscopy wasn't warranted. I didn't know celiacs ever went into spontaneous remission. Thought it was a permanent thing. "Physiologically the inflammation and symptoms go hand in hand, so if you’re asymptomatic then there’s likely nothing going on internally." -...
  2. dixonpete
    I never took any chances. Whole foods, no ingredient lists, cooked at home. One time in Toronto I spent 15 min negotiating in a restaurant in Toronto and I still ended up trapped in a subway washroom for a couple of hrs before I felt it was safe to go home. That was it for me.
  3. dixonpete
    Is this for bread or for trying to catch gluten contamination? Considering it only takes a tiny amount of gluten for someone to get glutened I can't really see how this could work. Surely some gluten gets through.
  4. dixonpete
    I'm not inclined to do it. The eggs aren't infectious till they've gone through a couple of molts. Once they've reached that stage though, look out! Here's what my arm looked like on Sunday (day 3). It's better now. In a month there will just be a little redness left. Hookworms aren't for the faint of heart. You have to look at it philosophically...
  5. dixonpete
    The two providers I've bought from are located in Australia. My last spend was $154 US. I used to pay 2X that annual amount on paying extra for gluten-free food. So in a real way you save money. Once you start hosting you can harvest the eggs in your stool. I have a friend in the group that does that. You need a microscope and a tolerance for poop, which...
  6. dixonpete
    I gotta say, for a celiac with probably decades of experience avoiding gluten to deliberately put gluten in their mouth to test reactivity is a mind f***. It's not easy to do. I used to dream all the time about gluten exposures and putting my finger down my throat (in the dream). It's funny how easy you get over it once it's safe.
  7. dixonpete
    I tested for gluten reactivity on day 39 after inoculation, found none, and was on a regular diet the next day. It makes sense to wait till the larvae have matured to their adult form and firing on all cylinders before risking a gluten exposure. You'll find a range of opinion on this topic in the wiki. Some people micro dose gluten over weeks and build...
  8. dixonpete
    Look up The Helminthic Therapy Wiki. There's a provider section with reviews. The guy I use doesn't have a website that I know of, but he accepts payment by PayPal and offers tracking. I email him and then pay him. 11 days later I have my larvae. You have to watch out for the cold though. Shipping larvae in the winter risks ending up with dead frozen...
  9. dixonpete
    The stats I hear is 70%+ of celiacs become unresponsive to gluten when hosting hookworms. I'm on my third batch now. My first experience with them was in 2018. After they died off in 2019 I became celiac again and had to go gluten-free. I know the research results are iffy. Real world experience is different and far more positive. I couldn't be...
  10. dixonpete
  11. dixonpete
    My GPs haven't mentioned that blood test, but I'll ask them about it. Too bad they didn't add it to the last panel, or perhaps they did and didn't mention it to me. As I said, I hang out with other people who host hookworms, and they had those tests done and came back clean, so I'm not worried about it. I was a super reactive celiac on any exposure becoming...
  12. dixonpete
  13. dixonpete
    I had to look up what TTG was. My doctors have never brought that up. I hail back from 2006, and it's always been gluten-free was the only thing that mattered. I ate only whole foods, lived alone, never ate out, so I wasn't getting gluten from anywhere. The colitis was always an issue though, even once I got rid of meat and nuts like pistachios. There was...
  14. dixonpete
    Mine seem to last 6-7 month before they die off, so I re-inoculate in the spring and fall. If they do die off, I go back to being celiac.
  15. dixonpete
    My GP was interested in the idea and was supportive. He nearly lost his kid brother as an infant to celiac disease so he wanted to see it play out. We did weekly blood tests after my first inoculation to monitor how my red and white cells were doing. My last blood panel with his replacement was fine. Hookworms leave a mark going in that takes about a...
  16. dixonpete
    I host hookworms. They put my celiac disease and ulcerative colitis into remission. Plenty of people don't like the idea of worms in their belly. For me it was a choice of that or having my colon removed. Seemed like a lesser evil, and it worked. I'm on a regular diet now, with lots of gluten. I was diagnosed celiac back in 2006, lived totally gluten...
  17. dixonpete
    I'm on my second inoculation of Necator americanus this year. Things are going swimmingly. I've been back on a regular diet since 40 days after the first inoculation. What can I say other than I don't notice the hookworms, my blood panels are great, and being able to eat at restaurants is wonderful. I've been celiac and had ulcerative colitis since ...
  18. dixonpete
    I host Necator americanus hookworms 25 per semiannual inoculation. They keep both my celiac disease and ulcerative colitis in full remission. No restrictions on diet, no GI symptoms whatsoever. A cure for as long as the hookworms are vital in my gut. Once I let them die off and my conditions came back.
  19. dixonpete
    I've just inoculated myself for the 3rd time with my usual 25 larvae. It's been a huge success for me, with both my celiac disease and ulcerative colitis gone into full remission. I'm on a regular diet, no restrictions. Tons of gluten.
  20. dixonpete

    Happy birthday and may God bless you today!

  21. dixonpete
    I just took the test and it showed negative. I put that up the effect of a gluten-free diet for the last 4 months. I certainly do have Celiac Disease since I get terrifically sick with diarrhea whenever I run into gluten in any form. Just let this be a warning. Do not take the test unless you are on a gluten diet. I knew this but didn't observe it because...
  22. dixonpete
    My experience was 3 years of disability before figuring out what the issue was in late June of this year. I was nearly manic with joy because I had come to the conclusion that I would never be able to work or travel again because of uncontrollable diarrhea. Turned out it wasn't that cut and dried. It's been 9 weeks and I'm still healing and not fully mobile...
  23. dixonpete
    Unlike some of the reports of encounters with nutritionists/dietitians I just had a remarkably good experience with a Registered Dietitian on Bloor West near Royal York in Toronto. Susan Fyshe, her web site is Open Original Shared Link Pricey at $175 for a hour consult but I got my money's worth. Susan did a fair amt of prep work looking at my 3 day diet...
  24. dixonpete
    When I visited my pharmacy I found i had been preceded by another Celiac who had prompted the pharmacist to do his research on gluten. Of the whole wall of vitamins the only ones he was able to verify as gluten-free was: Jamieson Calcium Citrate Jamieson Regular Vita-Vim The take home message that I got from that exercise that any pill I might be offered...
  25. dixonpete
    Seems like. I was despairing since after I figured out it was Celiac Disease I thought I was finally clear, but then I encountered the mucus issue. Looking back I guess it could have been there for a while but I wouldn't have known since the diarrhea was overwhelming enough. Yesterday was the first day the mucus finally let up. It's still unbelievable...
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