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Mother of Jibril

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  • Gender
    Female
  • Interests
    Gluten intolerance, Casein intolerance, Hypothyroidism, Pregnancy loss
  • Location
    Indiana

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About Me

I'm a tenure-track professor in textiles and clothing. I also have two living children: a four-year-old daughter and a one-year-old son. Our food intolerance journey started when my son developed colic. It turns out he's severely intolerant to casein and corn. In August 2008, I was diagnosed with autoimmune hypothyroidism, halo nevi, and rosacea. On my own, I figured out that I'm intolerant to gluten and corn.

My symptoms of autoimmune disorders...

Idiopathic anaphylaxis (attacks with no identifiable cause), hair loss, depression, anxiety, pica (I enjoyed licking metal as a child), low blood pressure, angular chelitis, anemia, elevated liver enzymes, rosacea, depigmented spots on my hands (halo nevi), constipation, bloating (looked like I was pregnant for years), gas, heavy (irregular) periods, abdominal cramps, pain in my knees and shoulders, chronically dry eyes, pregnancy loss at 17 weeks, extremely dry skin, chronic dandruff, fatigue, muscle twitches, itchy rashes, brittle fingernails with vertical ridges, frequent hiccups, episodes of unexplained weight loss and gain, terrible acne as a teenager, hair is turning gray at 33 years old...

A lot of these have improved significantly on the GFCFMF diet! I still have a ways to go, but I haven't felt this good since I was a teenager.

  1. Just Mandy started following Mother of Jibril
  2. Mother of Jibril started following Just Mandy
  3. Tiff started following Mother of Jibril
  4. Mother of Jibril
    I've been using Carlson "Solar D Gems"... lemon-flavored cod liver oil in gelatin capsules (they actually taste good). Free of gluten, heavy metals, and PCBs. Here are the ingredients: Cod liver oil, natural lemon flavor, beef gelatin, glycerin, sorbitol, water.
  5. hhdavid started following Mother of Jibril
  6. Mother of Jibril
    How old are you? Could you be starting menopause? I've been reading about this lately... most women go through menopause in their early 50s, but you can experience symptoms for as long as ten years before that happens! Also... premature ovarian failure (aka premature menopause) tends to cluster with celiac disease and hypothyroidism. In extreme cases...
  7. Mother of Jibril

    Hi mother of Jibril, I am logged on as DNP student currently working of my dissertation on celiac disease. Gathering data to create an awareness of the effects of celiac disease on families. Your posting raises some interesting areas to pursure. I would like to include it as part of the qualitative research with your permission. If so, please email me directly at doeykelly@aol.com. Thanks HK

  8. Mother of Jibril
    They said they wouldn't be able to tell exactly what kind of infection unless they took the whole lymph node out for dissection... which is a possibility if the swelling doesn't go down soon. I'm definitely being cautious about candida. I'm taking an enteric-coated probiotic, eating yogurt every morning, and keeping sugars to a minimum. Your suggestions...
  9. Mother of Jibril
    Thank you for thinking of me! Thanks to Patti too I agree with you about the general link to cancer. My dad's family has been plagued with it. Two siblings (out of eight) have died from breast cancer, one when she was only 29. Her two kids were just a little bit older than mine are right now. I've been thinking about her a lot. I also think about...
  10. Mother of Jibril
    A little update... On Thursday I had a biopsy of that lymph node. It's not lymphoma! :D It's not any kind of malignancy at all. They did see some macrophages... so it looks like some kind of infection. Hopefully it will go away on the broad-spectrum antibiotic I'm taking. Not thrilled about antibiotics... but I'm taking probiotics in between...
  11. Mother of Jibril
    Thanks for getting back to me! My son is ten months old... I suspect he'll be breastfeeding for at least another year. Last month I had a biopsy for an itchy (gluten-enhanced) rash that I thought was DH, but the results came back as "acute dermatitis"... I found a definition that said it's "a rash caused by inflammation somewhere else in the body...
  12. Mother of Jibril
    OK... so your "evidence" is a TIME magazine article about a scientific study that has not yet been peer-reviewed or published. Only seven people were willing to stick with the sugar-free diet and two of them still died. Have the other five people gone into remission? It's probably too early to tell. I'm no statistician, but I have to tell you that this...
  13. Mother of Jibril
    I know this is your particular drumbeat... http://junkfoodscience.blogspot.com/2008/0...use-cancer.html I think yolo's suggestions are generally very healthy and consider the well-being of the whole person... physically, mentally, and spiritually. Stress causes autoimmune disorders to flare... freaking out could really set me back
  14. Mother of Jibril
    This is good advice I'm already doing some of the things you mentioned... vitamin D (4000iu per day), fish oil, digestive enzymes (plus Betaine HCl)... I'm adding more garlic and dark green vegetables to my diet and I've cut way, WAY back on all processed foods and sugars. I love the sauna... I wish I had time to go more often. What I'm wondering...
  15. Mother of Jibril
    There is a connection between celiac disease and lymphoma: https://www.celiac.com/articles/1007/1/Celi...homa/Page1.html Sjogren's Syndrome (an autoimmune disorder that clusters with celiac) also increases your risk of lymphoma. I've been reading about this lately because I've had a painless, swollen lymph node in my neck for more than two months...
  16. MinRalph started following Mother of Jibril
  17. Mother of Jibril
    Maybe a stone from your gallbladder, liver, or kidneys?
  18. Mother of Jibril
    Hey... just wanted to update this thread. Just before Halloween I asked to be tested for heavy metals. I was curious about the fact that my daughter's lead level went down after she stopped breastfeeding... even though I caught her chewing on a lead weight! (It was in some old drapes that came with our house... ugh). Anyway... they also ran a CBC...
  19. Mother of Jibril
    It sounds like you had a good doctor who was willing to look at more than just the standard celiac blood tests for your diagnosis. This is all very helpful information! I didn't realize there was such a connection between the thyroid and liver. Did any of you notice symptoms that improved when your liver enzymes went back to normal levels? I'm just...
  20. Mother of Jibril
    I haven't had my PTH or Vitamin D levels checked... but I wouldn't be surprised if my Vitamin D is low. I don't spend a lot of time outside. About two years ago (for religious reasons) I started wearing more clothing, so the only skin that's really exposed is my face, neck, hands, and feet (if I don't wear socks). Would it be a bad idea to start taking...
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