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Mother of Jibril

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  • Gender
    Female
  • Interests
    Gluten intolerance, Casein intolerance, Hypothyroidism, Pregnancy loss
  • Location
    Indiana

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About Me

I'm a tenure-track professor in textiles and clothing. I also have two living children: a four-year-old daughter and a one-year-old son. Our food intolerance journey started when my son developed colic. It turns out he's severely intolerant to casein and corn. In August 2008, I was diagnosed with autoimmune hypothyroidism, halo nevi, and rosacea. On my own, I figured out that I'm intolerant to gluten and corn.

My symptoms of autoimmune disorders...

Idiopathic anaphylaxis (attacks with no identifiable cause), hair loss, depression, anxiety, pica (I enjoyed licking metal as a child), low blood pressure, angular chelitis, anemia, elevated liver enzymes, rosacea, depigmented spots on my hands (halo nevi), constipation, bloating (looked like I was pregnant for years), gas, heavy (irregular) periods, abdominal cramps, pain in my knees and shoulders, chronically dry eyes, pregnancy loss at 17 weeks, extremely dry skin, chronic dandruff, fatigue, muscle twitches, itchy rashes, brittle fingernails with vertical ridges, frequent hiccups, episodes of unexplained weight loss and gain, terrible acne as a teenager, hair is turning gray at 33 years old...

A lot of these have improved significantly on the GFCFMF diet! I still have a ways to go, but I haven't felt this good since I was a teenager.

  1. Mother of Jibril started following Just Mandy
  2. Just Mandy started following Mother of Jibril
  3. Mother of Jibril
    Hi Gypsy, Yes, I've run into quite a few people on the SM/MCAD/IA boards who are either sensitive to gluten or have celiac disease. And YES... the triggers are cumulative! My last attack (which left me vomiting uncontrollably for four hours) happened after a meal of gluten-free macaroni and cheese, bananas, and a bottle of pomegranate juice followed...
  4. Mother of Jibril
    Thanks JoAnn I remember you too! Although it stinks to have another autoimmune disorder (as you know all too well)... especially one that affects so many different systems in the body... it's very nice to have it identified and be able to treat the symptoms. No more feeling like I'm crazy!
  5. Mother of Jibril
    Hi everyone, The last time I was here (about six months ago) I was struggling to figure out some ongoing health problems... abdominal pain, nausea, diarrhea, joint pain, headaches, chronically dry eyes, episodes of anaphylaxis, a weird skin rash, etc... After extensive testing to rule out other things (I saw two allergists, four primary care doctors...
  6. Mother of Jibril
    I did use Enterolab, which seems to be the cheapest. It takes about a month from the time you order the test until you get the results. The downside is that they only type the beta parts of your genes... sometimes it's helpful to know the alpha parts too.
  7. Mother of Jibril
    Although the blood test is a great place to start, a genetic test (for HLA-DQ) can be very useful when you still have questions. Typically, the two genes that are most strongly associated with celiac disease are DQ2 and DQ8. It doesn't mean you HAVE celiac disease if you have one of those genes... just that your risk is higher. To answer your question...
  8. Mother of Jibril
    What kind of special treat are you thinking of? There are a few limits in the gluten-free world (no croissants, no licorice...), but there are lots of possibilities for baked goods. Pamela's makes a chocolate cake mix that you would NOT guess was gluten-free My four-year-old daughter loves to help me stir up a cake and decorate it with frosting I make...
  9. Mother of Jibril
    Terra chips are my gluten-free (and corn-free) favorite
  10. Mother of Jibril
    Some quick answers to your questions... Nobody can diagnose you with celiac disease "on the spot." The blood tests should include: - Antigliaden IgA - Antigliaden IgG - Tissue transglutaminase IgA - Tissue transglutaminase IgG - Endomysial antibodies (EMA) - Total IgA Personally (unless you have tons of money to throw around...
  11. Mother of Jibril
    OK... here's my basic understanding of how immune complex disorders work. The basic function of your immune system is to clear dead cells, virus, and bacteria (things that don't belong) out of your system. One way it does this is by generating antibodies. The antibodies link up with specific "antigens" (things that don't belong) to form "complexes...
  12. Mother of Jibril
    There are several different types of rashes that can occur in people with immune complex disorders (like rheumatoid arthritis). I had a blistering, itchy rash on my hands, arms, and lower legs that I thought for sure was DH! I had it biopsied (one punch biopsy of a lesion and one biopsy of a clear spot next to the lesion), but it came back negative. Have...
  13. Mother of Jibril
    Hi Jason, I really think you're doing the best you can! You've made SO much progress Something to think about... I checked out a basic textbook on immunology (to help figure out a problem I'm having) and I ran across an interesting idea about autoimmune disorders... their original purpose may have been to serve as a defense against cancer! I...
  14. Mother of Jibril
    Hi Sandi, Considering that you're IgA deficient, a blood test is useless. If you're still eating gluten you might want to go looking for a gastroenterologist who's willing to do an endoscopy. You could also get tested for an allergy to wheat, but is it really that much more difficult to avoid rye, barley, and oats? I find that rye is very easy to...
  15. Mother of Jibril
    How old are your kids? I've heard a couple of other stories like this and it seems to work best when the kid(s) say, "Daddy I can't eat that." If your kids are still really young (under 5, for example) then it can be difficult to get a firm diagnosis. Lots of false negatives. If you want to try a gluten challenge you probably need to give it a good...
  16. Mother of Jibril
    Hi Cheret, ANA is a general term for autoantibodies (antibodies designed to destroy your own cells). Since you've been gluten-free for three years I doubt that's the cause of the positive test. IMO, you would be smart to see a rheumatologist to check your sed rate (ESR), rheumatoid factor (RF), and look for more specific antibodies. In lupus, for...
  17. Mother of Jibril
    Hmmm... I have read that casein can cause "protocolitis," a temporary condition that damages the intestines causing projectile vomiting and bloody diarrhea (my son has this condition): Open Original Shared Link I'm not aware of this happening in adults. I'm also not aware of any scientific tests for intolerances that accurately predict your symptoms...
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