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brendab

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brendab last won the day on August 26 2010

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I am a stay at home mom of 6 awesome children! I have gluten issues and I suspect the rest of my family does too so here I am to learn about them!

  1. brendab
    I've already been to one GI doc and that was a flipping mess and I do not have a lot of time and I have even less money to mess around so getting it right the first time is imperative! I have every classic symptom of Celiacs disease with a few others on top of that and I do NOT want to be diagnosed with IBS again. I need the right diagnosis the first time...
  2. brendab
    I think it was the upper intestines. She said it wasn't Celiac's or Crohn's, not parasites either. She told me that it was damage done from food allergies. My confusion comes from going back to the allergist to find that he's outgrown his food allergies so how can the damage come from them? I've done the food journal and that is how I figured he...
  3. brendab
    We homeschool our children and for a variety of reasons, one being we have several food allergies with our children. It's rather easy, enjoyable and MANY, MANY, MANY homeschooling groups out there! OH my gosh, I wish people would STOP saying that we are not socialized! (gaaaaaaaaaaaaaaaah!) I have found that my kids have MORE social opportunities at home...
  4. brendab
    Ok, I have NO clue where to go with this and there isn't a Doctor out there that can figure this out for my little guy. Please help out a frustrated and worried mommy! I know I am not a member that posts a lot here so here is the short and skinny of our little guys history: * Allergy tested at 7 months-pos. for delayed allergies to wheat and dairy...
  5. brendab
    I'm in the exact same boat as you are except this is my 2 1/2 year old son! He has the intestinal damage and inflamation and physical symptoms with nasty GI outcomes that obviously points to gluten consumption but they won't give us the diagnosis! Gaah!
  6. brendab
    She said the blood test was negative (which I expected fully), inflamation and intestinal damage but not to the villi. I was about to post another update about going for a follow-up at the allergists office to see what foods we were missing that could be causing damage and the foods he tested positive for as a baby no longer exist; he grew out of them. Yay...
  7. brendab
    My little guy is almost 3 (In July) and he exhibited similar symptoms as a nursling so I went gluten-free for him. I again tried gluten in the form of barley baby cereal and got a HORRIBLE reaction from that. For him, so far he has not outgrown it if it is just a gluten sensitivity.
  8. brendab
    But that may cause irrepairable damage and that is what bugs me so much.
  9. brendab
    I just assumed she knew what she was talking about that it was not celiac since I know very little. He had a neg. blood test but I knew that was going to happen since we first purposefully introduced gluten only a few weeks prior to testing and the fact that most test neg. for it to begin with. She just said there was some damage due to food allergies....
  10. brendab
    Thank you for your opinion and thoughts, I just wish I had a diagnosis for sure.
  11. brendab
    We had him off of gluten for the most part since he was 7 months old. He had a positive allergy patch test to wheat so I was keeping him wheat free and shopping for groceries, if it said gluten free I knew it was also wheat free so I just went that route but didn't focus on the gluten free part. He still was having issues now and then and it hit me that...
  12. brendab
    I forgot about that, thanks for the reminder. Gotcha
  13. brendab
    He also cannot have dairy and when I weaned him at 13 months he started drinking coconut milk and then we switched to almond milk. He is 100% dairy free to this day. One of his tests were for parasites and that came up negative. He seems to not do well with soy and I am not hip on soy anyway so it's a non-issue. Anyway, he's dairy, gluten and banana...
  14. brendab
    She said is was food allergy related, not gluten. But isn't gluten a food too?
  15. brendab
    This is all true and damage is damage. I know that gluten is causing issues with him, he got into some this past week and he's had major GI issues for the past 3 days. ICK! He's gluten free MOST of the time when his siblings aren't leaving their remain around the kitchen.
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