rosetapper23
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by rosetapper23
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This is very interesting information! It's believed that my mother's celiac was triggered when she was five months' pregnant with me after having an emergency appendectomy. She became extremely anemic, and I was born with Rickets. My three siblings clocked in at over nine pounds, but I weighed only 7 pounds 7 oz. As a child and adult,...
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This is exactly how DH presents on the fingers of my left hand! It hasn't occurred in a number of years, but, boy, that is just how it looked!
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At the conferences I've attended, it's been pointed out that the blood flow to the frontal lobes is reduced in celiacs who eat gluten. Also, plaques can form throughout the brain. Take a look in the articles section of this site, because there are some interesting articles on neurological damage to the brain.
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I buy most of my supplements at a specialty healthfood store, and I buy others online. As for the chelated forms of manganese and zinc, I believe I buy Bluebonnet brand, and I just take one capsule of each. Only take the zinc for a few weeks....but if you feel you're getting better by taking it, simply add a little copper to your list of supplements. Believe...
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It sounds as though you're a strong candidate for having celiac or gluten sensitivity. I should have mentioned that I had horrible joint pain from the time I was a young child--the doctors thought I probably had Juvenile Arthritis....but, of course, they were wrong. Mouth sores are very common with celiac, and my daughter (who refuses to get tested for...
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Oh, my--MANY of us have suffered from RA and general joint pain. Celiac and gluten sensitivity appears to cause it. I agree that you should try a gluten-free diet (but you have to be strict!), and you may be need to take magnesium, manganese, silicon, and collagen. Believe me, if you do, you should see a vast improvement in your joint health.
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Just would like to add that if you do take TOO MUCH Vitamin B complex, it could be a problem; however, taking a daily Vitamin B complex is safe--B vitamins are water soluble and are not stored by the body the way that fat-soluble vitamins are.
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Okay, now that I'm at home, I've had a chance to look up other possibilities for sore/geographic tongues, and it appears that a number of B vitamins could be responsible. These include folic acid, B-2 (riboflavin), and B-6 (pyridoxine). You might try taking a good Vitamin B complex in addition to sublingual Vitamin B-12.
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This symptom is common in cases of Vitamin B-12 deficiency, which is a deficiency common in people with celiac. You might request a lab test from your doctor; or, alternatively, you can begin taking sublingual methyl B-12 tablets (2,000 mg twice a day) to see if the tongue issue resolves. It should go away rather quickly since the B-12 taken sublingually...
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Okay...Dani helped me with a link that I can share with you. This photo is not for the weak of heart--it might even scare small children. My photo shows many scars from a glutening on my face and neck that occurred more than four months ago, but which have continued to re-erupt due to the iodine in my thyroid medication. I think the episode is reaching...
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Dani, I sent you a private e-mail (hope that was okay!), and in it I explained that I'm officially diagnosed with celiac, and my gastroenterologist told me that if he had seen my lesions even before diagnosing me with celiac, he would have told me that I had DH and was most certainly a celiac. My son gets these same lesions in the same locations when...
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I'd like to upload a photo of my current (and severe) DH outbreak on my face and neck to show what the scarring can look like, but I don't know how to upload photos. How is this done? The photo is on my iPhone and filed in my download file on my computer. Any help?
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Trans-Dermal Iron Supplements?
rosetapper23 replied to 123glldd's topic in Coping with Celiac Disease
Sorry, no transdermal iron--and don't try pulverizing the tablets and taking them sublingually. I tried that, and my teeth turned black! It took years for the teeth to turn gray and eventually turn a dingy cream color. If you seriously cannot take oral iron, you can request intravenous iron infusions. Many of us who are iron deficient and can't absorb... -
At celiac conferences, some experts claim that celiac is now considered a neurological disease and not simply a disease of the gut. Your brother's doctor didn't get the memo, I guess. Not only can the damage from celiac be evidenced from the white matter you describe....but also there's evidence that there can be reduced bloodflow to the frontal lobes of...
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Old Hag Syndrome / Sleep Paralysis
rosetapper23 replied to nb-canada's topic in Related Issues & Disorders
Yes, I've been plagued with "sleep paralysis" for all of my life, but--come to think of it--it got much worse when my celiac worsened 15 years ago....and, by golly, I hadn't noticed that it hasn't happened since I've gone gluten free. Imagine that! I wonder if it's yet another neurological problem caused by celiac. You bring up an interesting point. ... -
I would also recommend thyroid testing--when I read your post, that was the first thing to come to mind. Hashimoto's Thyroiditis is very common in people with celiac....and one of its principal features is fatigue and sleepiness.
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As for the amount of gluten they quoted to you, they are referring to the amount in the one ingredient, which is then probably diluted (a small amount add to a large amount of other ingredients); hence, the apparent "questionable" figure.
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Hip Pain
rosetapper23 replied to SAVANNAH21's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't think there have been very many--if any--studies on how celiac affects the tendons, ligaments, and muscles. However, I know that a LOT of people with celiac have problems with these body parts. I had to have physical therapy in my early 20's for both my knees and hips. Have you seen a doctor about a referral to a physical therapist? If you don... -
Mushroom, Was the type of zinc you were taking the chelated form? I had taken regular zinc for months after my foot fractures because I had numerous symptoms of zinc deficiency, but the symptoms didn't improve. Then I read that I should be taking chelated zinc and chelated manganese--and my feet stopped hurting after only a couple of days. The silicon...
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Mushroom, Your dad's description fits perfectly with my "floppy tendon syndrome" from deficiencies of zinc, manganese, and silicon. I kept telling people that it felt like the bones were floating in gelatin, and I kept getting stress fractures as a result. It took me way too long to put the pieces together. Sounds as though your dad was suffering from...
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Yes, to maintain tendon and ligament health, you have to be able to absorb certain minerals; hence, pain in the feet and/or joints.
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Could you be sensitive to iodine (as many of us are)?
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Silent Celiac Disease
rosetapper23 replied to Real1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You've received excellent information and advice above, and I also believe that it's in your best interest to go gluten free. At first, you'll grieve for some favorite foods, but then you'll begin to enjoy the diet (which is very healthful) and find it easy. I no longer miss any particular food, especially since gluten-free versions are available. I...
