caek-is-a-lie
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by caek-is-a-lie
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Secondary Autoimmune Narcolepsy From Celiac
caek-is-a-lie replied to caek-is-a-lie's topic in Related Issues & Disorders
There are no official stats on it, which is something I'd like to do myself in grad school, but from what I've seen on forums and from an informal poll I did, there are a lot of people with Narcolepsy that could benefit. The Narcolepsy genes have also been found to be Celiac genes. IMHO it would be beneficial to screen all Narcolepsy patients for Celiac... -
I recently read that Celiac is known to cause secondary autoimmune disorders and allergies. I have Narcolepsy that is triggered by gluten, but I also have some lingering Narcolepsy symptoms on a gluten-free diet that seem to be from permanent damage. I found out I have a Celiac haplotype DRB1*07-DQB1*0202 and I also have a Narcolepsy/Celiac gene DQB...
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LOL that happened to me 2 nights ago. I had these giant slices of cheese pizza in my hand and I thought "no, I can't eat them" and then I was talking to someone and thought "screw it I'm hungry. I'm eating them" and ate them anyway, and then I was horrified "oh no I'm going to get sick!" Then I woke up and thought it was real for a minute or two. I thought...
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Oh this TOTALLY happens to me. If I eat gluten I wake up at 2am with panic attacks worrying about the stupidest things. My heart races before I'm even awake, and those ghost dreams are the worst! I wake up paralyzed and can't scream and it feels like they're in the room. Of course, I have Narcolepsy from eating gluten and this is called Sleep Paralysis...
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Oh man that sucks! No wonder the last turkey I cooked gave me problems. I never even thought they'd ever inject a raw bird with gluten. Those cads! Argh. Here I thought I was being good and gluten-free with any old frozen turkey from Safeway. I had no idea what to look for. I had 2 turkeys that I thought would feed us for awhile, but I guess my boyfriend...