UnhappyCoeliac

In the north east we have a resturant chain called "The 99". Now recently they came out with a gluten free menu. I went and talked to the manager, and she was very happy about it. "we had our head chefs go through our menu and select products that have no gluten ingredients!" she told me, "so its all safe for people with your allergy." I let the allergy comment slide, and looked the menu over. It looked ok, until I asked how things were prepared. "Well," my server began, "We only have one fryer, so the fries and breaded foods have to share. And our veggies are blanched in the pasta water, pretty basic resturant cooking methods. Will that be a probelm? We do put an allergin alert with your order, so you should be fine." Thats just the tip of the iceburg. I decided it was still worth a shot and ordered only a plain steak and mashed potatoes (no seasoning). Even then I still had a bad reaction. I went back the next day to talk to the general manager and explain that its not just the ingredients but how food is prepared and its insensative and fool hardy to print a gluten free menu without taking cross contamination into account. He offered a comp meal with his apologies. I declined and asked he talk to his superiors about the menu because I didn't want any other celiacs hurt. No clue if anything has happened, but I'll never trust a big chain resturant's "gluten-free" menu again.

Well done Ive never been to this pizza place before and never will again. The kitchen is out the back so this I think is whats happen while being made and cooked its been contaminated.

How can you even be a half seriously chef and not be aware of cross contamination is my thoughts... serious what retards.

The I dont go to restaurants often but I think Nandos is the only restaurant I know diligent and trustworthy with its marketing of gluten free. La prochetta also at least my local one.

And yeh dealing with ignorant people is sort of annoying not there fault but you cant help but be a little bit annoyed having to speak to like 5 people in the restaurant to find if something is safe to eat

I slept a rocking 13 hours last night admittedly I was up 18hrs the day before but still this is not normal. I accidentally got gluten from lollies I wasn't aware of yesterday and Im positive it is what made sleep longer.

The day before I was gluten free and slept 6hrs and felt a lil groggy but then refreshed. I notice i naturally simply wake up earlier and feel more refreshed when I am totally gluten free is this a usual occurrence for coeliacs out there?

Oversleeping causes me massive problems, parents b%$@#ing at me (dont understand coeliacs) and I have uni and work and commitments and if I miss something fun like going out with friends because I was sleeping I feel very depressed.

Ive become even a bigger drinker of these now most of my fav foods are gone. Im up to about 2litres a day, Only just having found out about glucose syrup I wonder now if these drinks are actually gluten free... I seem to remember them having some sort of syrup

Hi all I live in Australia. My child has gluten intolerance/celiac we don't know which and so do I. Over in this country we have great food labelling laws which mean companies have to state where their glucose syrup originates.

Sadly I have to say that 95 percent of candy in this country has glucose syrup in it that is derived from wheat and I am assuming that this would be pretty common in your country too??

It is a lot cheaper to process than corn. I would check with all your manufacturers if I were you

Good post I am a new coeliac but have been eating lollies alot without realizing. I always wondered why there were gluten free lollies... because I assumed they were gluteen free anyway I mean gluten come from a grain or something.... and these are manufactured lollies and freaking still have gluten its frustrating and annoying as hell thats for sure. So now no lollies either or flavored milk insert rest of the food Ive ever loved in this world

I just had one without checking. How the hell wheat gets in a chocolate easter egg is beyond me, living up to my user name now...perhaps it should be pissed off coeliac.

Several places on the net still list them as gluten free. Im located in Australia.

What exactly does trace amounts mean?

Here is the gluten free list for cadbury Australia. On the downside Ive just ate gluten on the good side there is alot more gluten free cadbury stuff than I suspected

Open Original Shared Link

"Note: Fun Filled Freddo – only units containing Tiny Freddo Heads are gluten free, units containing Magic Seeds, Mini Eggs or Bunties contain gluten."

I think this means cream eggs contain gluten, they are no actually specifically listed, and I through the wrapper in the bin and cant check for the wheat thing now

is there a definitive answer yet, got some lollies here and I want go eat

pascal sorta caramal chews

Ive had this too, it seems to set on when Im low on sleep or sleep deprived too so thats what I would recommend plenty of sleep to keep things functioning optimally.

I take

b12

fishoil

multi vite

vite d

everyday i never stoped to consider they might have gluten

I have a mass problem with this. The setbacks can last weeks. Its false advertising really... and it makes us sick.

Yes Ive just had a so called gluten free pizza and yes I have had diarrhea and im pretty pissed, I even payed more for it.

This sort of conduct by restaurants ruins my confidence in eating anything outside my home except fruit .

Ive also caught lots of uneducated shops and people who dont know what the disease is even after ive told them in coeliac trying to sell me things with gluten it

sorta sucks

rant over/ anyone else have to deal with this crap?

I have been dx" with multiple sclerosis since 6/99, I can look back now and see that I had gastro symptoms of celiac back then also, but have only been dx'd for about a year. Now I don't know 100% if the celiac caused my ms but they are both autoimmune. I can tell you that I can deal so much better with my celiac symptoms then my ms symptoms. I have some control of those I can control what I eat, but I have no control over how my ms acts up and from day to day it can be different. It has taken away my ability to drive by taking away a good deal of my vision, which I have not done for the last 8 years. So compared to not being able to have a dount or a pizza or right now because of electric shocks I get in my legs I can not stand more then 10 minutes. I will take having to control my diet anytime because I can not control my ms and if controlling my diet keeps me for getting anything else then I will do what it takes.

Thanks for this post Im very sorry to hear about your situation. Im printing this out now... I need reminders about the seriousness of this .

MS frankly scares the hell out of me and If im diagnosed I wont be living, and since I aint achieved much in 22yrs not even reproduced il pretty much be a ghost of the world.

thanks for the responses.

Tomorrow is the day I go gluten free. Thank you for the positive posts. Im simply not going to put anything in my mouth that may not be gluten free..

Ive also researched MS and I wont be living with that A/ financial problems B. No parents no one to look after C. no quality of life.

So if I develop that just because of wrong food choices my life is over and im only currently 22 :

Change the 80% cards to protein and you may be right.... Bber here

I dont have much to add, been to a special dietitian specializing in coelicas asked if birthday xmas etc i could cheat, she answered like most here.... never

its all about alternatives I think

Hi tall im in melbourne and Aussie too.

In regards to OP mate im in EXACTLY the same position asymptomatic cant see effects of what im doing wrong... living a little bit in denial.

Only we can change it my family friends or jerk and whinge at me to go gluten free but I really just cannot resist hungry jacks etc when im starving or drunk. And today I just had a burger LOL cos the store is to far away in the heart. Im 22 and to get this is a real pain I know im being a bit of a sook.... but I really dont know or care about 5 years away let alone 30!

Its hard to sacrifice for something that is... almost 1 and a half times my lifetime away.

That being said I try to motivate myself by. Infertility..... not good... I will eventually want a kid I have had unprotected sex a few times... and no one is pregggz.... so thats a bit discerning. Also more really negative things... teeth falling out.... anal leakage....

These sort of things are ABOSLUTE horrible and I imagine would take away ones pride so I try to keep them in mind, because.... they will possibly happen one day.

And frankly at that point the quality of life goes down so much that I probably would no longer wish to live! Uncontrollable bowl movements and bed ridden = loss of friends, family gluten-free, and finance = end of life.

It is serious stuff when you start looking at what some of these disease can actually mean to you. The whole effect of them. Im done ranting now, I know how you feel. Il also mention 21 days behavior comes habit, 21 days gluten free... and working on your looks or your body in the gym so your not always thinking about food.....

And quite frankly chrissys post scares the hell out of me... these people can only warn you sigh Im even motivating myself now I must go gluten free... I have a different mindset to most where if I have MS id probably want to die.... I do have depression though it is hard enough functioning in the world for me as normal.

There is a lady with MS that gets gluten free fish and chips at the shop near me and here uncontrollable arm movements... really make me feel sick... it hammers home the point going or trying to go gluten free is really serious business with serious consequences for failure

I read in the local paper the Herald Sun here in Australia about some sort of drug in the trial period which minimizes the damage done when a coeliac consumes gluten.

I have recently been ignoring this disease and denying I even have it so my knowledge is very little. If there is a cure in the works say 5 years away... I simply wont be changing my lifestyle at all and waiting for it. I am asymptomatic which almost makes things harder as my only repercussion for eating wrong is being a lil tired.

Been browsing the net and cant find anything other than Europe.... Europe's a big place.... There is suggestive statistics that it may be from Ireland.... but Guinness has gluten right? Who knows can someone replay or link me too a lil on where it came from>? Thanks

Did not even know I had any European ancestors till I was diagnosed 3mths ago!