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SLB5757

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Everything posted by SLB5757

  1. SLB5757
    I am glad you got an answer I know I cannot give up on figuring things out - for my little ones benefit. Sooner or later, something will pan out. It is just getting to that day! If it is just "IBS", I pity anyone who has to live with this on a daily basis It's truly a disease that they will not/can not treat, yet affects your life to an extreme extent on...
  2. SLB5757
    I had a scope done in 2006. At the time when my tummy upset symptoms all started. About 6 mos. After my son was born - everything went downhill for me. I had diarrhea that lasted for about 6 weeks. Lost 10 lbs - went down to 92 lbs...etc. That is when they did a scope. By the time they did it I was only really consuming the meal replacement drinks and occasionally...
  3. SLB5757
  4. SLB5757
    Hello All! I feel like I am forever going through this cycle of "could it be a gluten intolerance", or not. I have had bloodwork done a few different times, but have never really gotten a positive reading. The closest my numbers came to being positive was having a TTG Iga of 16 when it said that weak positive/reference range was 20-30. My total IGA at...
  5. SLB5757
    Well I don't really have a question - just a request for prayers. Please keep me in your thoughts tomorrow as I go for the Gastro appointment I have been waiting for three months now. I am praying this doctor can diagnose me - and hopefully give me a plan of action for the constant daily pain. If I do not get positive results this time...I really do not know...
  6. SLB5757
    I envy that you were able to eat Cayenne Pepper (As I sit here eating my cream of rice with a little butter and salt). That surely would have landed me in the hospital with severe pains. Was the halibut made at home or in a restaurant? Was it cooked properly? Did it have some sort of butter baste on it and you are lastose intolerant? Those are a few things...
  7. SLB5757
    I agree with someone else here - if you are very concerned about sandwiches in particular - then use Udi's bread. If you cannot find Udi's bread - look to their website online...they ship direct to you. If you have a local store your store can become a supplier. I live in a very small town, and have one health food store available to me. I persisted with...
  8. SLB5757
    Unfortunately you cannot gall a GI doc until you are an established patient. Until 5/18 I do not have a GI doc technically - so he would not be able to advise me on the gluten challenge. I am sure once he sees me as a patient for the first time he will advise me as to what I should try. I truly feel like my stomach has stopped digesting. I have had so much...
  9. SLB5757
    Morning is the worst for me. I do not know if it ties into what you are dealing with at all - but I absolutely dread mornings and how my tummy will react. It definitely gets better throughout the day but I feel nauseus and and dizzy before and sometimes after I eat in the AM as well.
  10. SLB5757
    I tried to do a "multi-quote" but couldn't figure it out. Sorry - I was trying to respond to all of the helpful responses I got. The description that was given about the digestive system was very helpful in understanding how people could have an immediate reaction. Thanks! Ravenwood I can and have gone to urgent care too many times to count. They always...
  11. SLB5757
    Ty Skygirl! I did call the gastro today but they cannot guide me as to what to do now since it will be my first appointment with them on 5/18.Technically they cannot advise until 5/18 I only knew to go back on gluten from these posts. This site has been very helpful. I will keep it up as long as I can but it seems like as the days progress my symptoms...
  12. SLB5757
    Thanks for your input Allison. Your timeline is correct. I have been eating gluten for 3 weeks now - and appointment is on 5/18. Prior to that was gluten-free for at least 5-6 months...maybe even back to October/Novemberish of last year so it could be closer to 7 months gluten-free. Thanks again for your explanation!
  13. SLB5757
    I definitely believe this is a possibility. I was always the smallest child at school, always went to the bathroom maybe 5 or more times a day and certainly every time I ate, was always catching every illness (mono at 15, hypoglycemia and severe allergies diagnosed at 17) - but it all seemed to go away for the most part until a few months after my son was...
  14. SLB5757
    Minimum of 3 months?? Are you serious? I thought a good 6 - 8 weeks of daily consumption would be enough to test. This is so frustrating! I am thinking I will go gluten-free again to get out of pain/fog - and just have to see what else the doc can offer me as far as diagnosis. Why is it that people have symptoms instantly ( I see posts on here ) if...
  15. SLB5757
    I have a Gastro appointment 5/18 with a local gastro that I have been waiting to see for 3 months. My hopes are that he can do Celiac testing and get me a firm diagnosis so I know what is going on with my tummy. I was gluten-free for about 5/6 months up until 3 weeks ago when I went back on gluten awaiting this appointment. I knew they couldn't test...
  16. SLB5757
    My little guy seems to have dental enamel that is just yellowing or wearing thin. Hard to explain really - but I brush his teeth so well so it doesn't make a lot of sense. I know it could just be genetic - but wondered if there was a link.
  17. SLB5757
    Just curious as to how many - if any - of your children have dental enamel defects. I think my 4 year old may have celiac disease and in addition to his short stature and pudgy belly and clay colored stools that he may have dental enamel defects as well. He has been to the dentist many times where they have used flouride treatments and varnishes, and I use...
  18. SLB5757
    I really do not see the need to say something like "if a highschool kid can do it, you can". You do not know my situation or list of 4++ allergens. Seriously, I would never try and make someone feel bad (who is already feeling horrible). I think that you must be in a bad spot in life if you need to make someone else feel bad to get through your day. These...
  19. SLB5757
    rdunbar - I will look for the himalayan salt - thank you! Reba posted that maybe it is my junk food diet that was the issue, and she may be correct. However, on a typical day I eat grilled chicken and rice/potatoes. I stay away from red meats, and eat steamed veggies quite often. I just get the uncontrollable urges when it is that time of the month. Also...
  20. SLB5757
    My goodness I do not even know if I am "replying correctly" on here. lol. I think I am messing it up. I am not replying to one person, but to the whole post I have had my iron checked maybe in November and at that time it wasn't very bad. Is that your Hemoglobin? I guess it was like one point away from the low end of normal. One doc wanted me to...
  21. SLB5757
  22. SLB5757
    Hello all! Still trying to figure out my symptoms and work my way through m different episodes on my own before my My 18th gastro appointment. I am always extremely cold...to the point of feeling like I am freezing, and also have extremely low blood pressure. Well I do not know if extremely low is the word but it runs 90 something over 60 something...
  23. SLB5757
    I used to have a bowel movement after every meal growing up. Literally some days it was much more often than three times. I was always 92 lbs. or less all the way until I was 22 and had my first child. After that I was 102 lbs. I still had bowel movements 4-6 times a day up until I was 28 and had my second child. Once I had him I had 6 weeks of constant diarreah...
  24. SLB5757
    Sounds like your symptoms are so similar to what I have been experiencing! I too (three weeks ago, then two months ago) have been to the ER and after numerous tests they let me know I was "full of stool". They showed me the xrays...it wasn't pretty. Of course this was after they swore it was ibs and gave me a shot of bentyl (which slows things down even more...
  25. SLB5757
    sandsurfgirl... Yes I carry two epi-pens. Unfortunately I have multiple RAST positive allergies. The best answer the allergist had for me was to "not eat the foods I am allergic too", but there are too many to really avoid - so I eliminated just the gluten grains so far. I tested at the highest allergy (4++) to potatoe, corn, soy, nuts, beans, tomato,...
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