kdonov2

I am casein intolerant and I was told by a doctor that because their is 0 protein in butter, that it is ok to eat. I can't help feel that he is wrong, but why is he wrong? Can anybody help me out?

vietnamese, thai, indian and african food have a lot of options for us gluten and casein sensitive people. you would have to explore the cuisine to see what you might like, but i think you would have the more luck with these ethnic foods most other stuff you might find. vietnamese and thai food are quite similar, i have never seen them use dairy, and the only glutenous stuff they might use that i can think of is either soy sauce, fish/shrimp sauce, or some of the noodle dishes (rice noodles can be substituted for a gluten free version). in indian food, the only wheat they usually use is in the naan bread, but thats just an appetizer. some of the food contains cottage cheese, paneer(cheese?), or ghee, but there are still several other delicious choices. I havent had much african food, but i do know that wheat is not typically grown on the continent, nor are there many cows. they eat a lot of lentils, goat, vegetables, and spicy sauces. just stay away from injeria (sp?) which is a type of finger bread and also the fufu, which is mashed potatoe and flour dough. i know its not easy with these restrictions, but you become more creative and it gets a bit easier.

Thank you Ali,

That was a very informative reply. It bothers me that I seem to be receiving conflicting advice like needing to gain weight by eating avocado, coconut, other nuts, while also being told that I have a slow metabolism and should limit even healthy fats and starches as much as possible. What I do not understand is how my test results yielded that I have a slow metabolism, I am 72 lbs., how is that possible? Anyway, everything you said makes sense, I just wish I could have been given the same advice by my doctor and dietician.

So I think I have quite a problem.

I think that I have Candida issues but also have gluten/casein restrictions. I need to gain weight, but also need to heal my stomach. I have spoken with a holistic doctor who told me I needed to eat 6 mini meals because my stomach cannot handle much food at one time. Also, I received a hair analysis test that told me I have a slow metabolism and I should avoid fats and starches. In looking at the specific carbohydrate legal/illegal food list, I am again very limited to what I can eat. In addition to the SCD list, I cannot eat a variety of foods because of my metabolic type, so I am not sure how one could possibly gain weight eating tiny snacks that cannot include starches, sugar, or fats. I know that their are good fats and bad fats, but I was advised to stay away even from good fats such as avocado and nuts. Being in the predicament that I am, how am I to achieve optimal health and put on some weight? It is frustrating. Thank you for listening, and any advice would be appreciated.

Just thought I would share with the rest of you.

I went to Panera the other day to find out if their new barbeque chicken salad was gluten free. It turns out that I am also dairy free and I imagined that I would simply tell them to leave their ranch dressing off. As I explain my health concerns, the manager and cashier pull out their allergen booklet and assure me that the salad was gluten free. Of course, their ranch dressing still has dairy in it but upon inspection and to my surprise, they discovered that the cesar dressing did not contain any dairy, imagine that. So I had the gluten free salad and had the cesar on the side. I was not as impressed with the salad as I was with the service, but sometimes the factor that keeps customers coming back. The salad was nothing I couldn't make myself, but I was just pleased to be able to know that there is a safe item for me on the menu. My friends and family eat at Panera frequently and I can enjoy their company without going hungry or taking a risk in an unfamiliar restaurant. There are actually quite a few gluten free items here as long as you are not also casein intolerant like me. I recommend it.

im casein intolerant and i have stayed away from it for a few months. its really hard to keep it up and it is also very expensive. i have heard of a few people making their exceptions and putting a little bit of cream in their coffee or a bit of butter on their toast. im wondering if anyone else does this. also, im wondering if cooking with dairy products is different. does the chemical reaction in cooking/baking change the casein in any way? would it be silly of me to ask if i can use dairy in my cooked/baked goods? i would greatly appreciate your feedback. thanks.

from my enterolab results i have tried to analyze one particular piece but cannot decipher quite what it means.

"You have an autoimmune reaction to the human enzyme tissue

transglutaminase, secondary to dietary gluten sensitivity."

i realize i am gluten intolerant, but what is this "secondary" business? does that mean i have double the sensitivity? im confused about this. any help would be greatly appreciated.

my gluten intolerance is autoimmunal and i have been told that it damages the intestines. if i have an igA level of 17 (above normal/elevated antibodies)for cow's milk reaction (casein), does that mean that this 'immunal' activity causes damage to my intestinal villi? when i eat dairy, i get bloated and it usually goes away by the next day, but thats the only symptom i notice. could it be more severe than i think?

my chinese doctor doesnt even believe in food intolerances. he laughed at me when i told him that western medicine had diagnosed me with gluten and casein intolerance. he told me that it was the quality and quantity of the product (except for dairy products, he thinks it should be completely eliminated from the diet). he told me i should eat unprocessed 8 and 9 grain breads, but im still very wary. im not going to chance it.

it seems like a catch 22 for me. im 30 lbs underweight and struggling to gain, yet i am also attempting to heal my gut with a detox diet, which renders weight gain impossible. i am not sure which way to go to be healthy because i know im technically not even a qualified candidate for the diet because i am not being supervised by a physician and i also have a history of an eating disorder (not currently active but still triggering). my dilema is that my stomach reacts to ANYTHING and EVERYTHING unless i am on the elimination diet for several days, which in turn leads to more weight loss. at first, i had the idea to incorporate ensure into my diet to first gain weight before i return to detoxification, then i read that it contains casein. if i have this intolerance, is it so damaging to have casein even if might be able to help me put on weight? might taking ensure result in an overall health boost with temporary discomfort or are my bodily reactions to the protein actually causing harm? i was put on ensure when i was hospitalized for the eating disorder and rapidly gained weight. i was extraordinarily bloated and gassy though, which now makes a great deal of sense to me with my diagnosis and also makes me feel validated, as it was very frustrating to be in the hospital and have everyone tell you that all of your concerns are in your head or are normal. so far, i have found that i react terribly to protein and fats. i have great deal of difficulty digesting them despite all of the vitamins and digestive enzymes i take, which causes me to desire a normal, non bloated body that i only seem to acheive through what is probably an unhealthfully restrictive diet. as soon as i attempt to wean off of the regimen of pure fruit and vegetables, my body reacts. i am caught between two extremes and im losing hope. and i feel like just giving up because it seems that i will never attain a healthy body. i really dont know what to do anymore.

YES! this has happened to me and it now makes me very paranoid about being even remotely in the vicinity of glutenous foods. i am not celiac but have a rather intense gluten intolerance with autoimmunological reactions. before i realized i was so severe, i worked at panera bread and dismissed this as harmless as long as i did not consume any of the unsafe goods. well, just being inside caused my stomach to swell horribly and harden as well as cause me to feel like id been punched right between my ribs. additionally i was always so exhausted and fatigued even if i had only been there a few minutes. i think i may be as sensitive as you because there are rarely times when i have a normal, unglutened looking stomach (my roomates are constantly cooking pasta, possible culprit?). its strange too because this "faux" glutening seems to last almost as long as the real thing.

thanks everyone. im going to take more preventative actions now around the kitchen and also stop taking risks. hope i am able to start getting better.

my enterolab results said that i have sensitivity to gluten but also secondary to it, i have an autoimmune response to transglutiminase tissue.......i think i worded that properly. they told me that i do not posess the genes that predispose me to celiac but i have 2 of the alleles that predispose me to gluten sensitivity.

i have heard that people with celiac have such terrible reactions that they cant have any sort of sources of gluten in the house whatsoever. if i am not celiac, do i still need to be as cautious with my intolerance? i live with 3 non-gluten intolerant guys and all the silver and cook ware is shared. there are usually crumbs on the counter from them and they dont really take many precautions. i try not to use the teflon stuff or the plastic electric boiler (usually used for macaroni), but is it all necessary? should i be doing more? if i only have a gluten intolerance, is it quite possible that i can be around all of this and eat spices with minute cross contamination and kiss my boyfriend after he ate pasta? sorry if im really rambling, i just have so many questions and am confused. i dont know if im reacting still because my intestinal villi have not yet healed or because their is some unknown source of gluten poisoning me. up until recently, i never considered that my gluten sensitivity is as severe as a celiac's.

thanks for the replies. i certainly do have a lot to think about now. i might try out the spices individually to find what spices i can have instead of depriving myself of all of them. i really hope its not the curry powder though, i love curry.

has anyone else ever had a reaction to McCormicks or Tone's (from Aldi) spices? the ones im specifically referring to are the ones i use in indian dishes such as curry powder, coriander, cardamom, turmeric, chili powder, paprika and cumin. i called the hotline for Tone's spices and they assured me that their spices were gluten free and i know that McCormicks were supposed to be safe as well, so im wondering what the reaction is all about. it feels like ive been punched in the stomach and i am very very bloated. i know indian spices have a tendency to make you retain water, but my stomach puffed up way too quickly and i just feel like ive been glutened. is it possible that im just intolerant to some spices? the other day i was accidentally glutened by what i stupidly assumed would be fine, some garlic pepper that contained wheat semolina. even though the spices i used today are "safe," i am having very similar stomach sensations to the ones i had from being glutened by the garlic pepper. would anybody be able to provide any insight? it would be greatly appreciated.

i didnt think lactaid would be a solution. well, im still curious as to what the consequences of consuming casein are. i do not have symptoms. what harm may be caused then? also, am i still able to have whey as long as casein is not present?

this is probably wishful thinking, but i was wondering if taking lactaid would help at all for casein intolerance. i have not noticed many symptoms, but my results came back positive. also, what are the consequences of ingesting casein if you dont have these symptoms? ah, i hate having so many sensitivities.

i have been very underweight my entire life. i have a BMI of 15 but I'm short so i don't look quite so emaciated. i do however, get a ridiculous bloated belly after eating certain foods, sometimes even from non-glutenous foods. usually by the morning the swelling has gone down and my stomach is flat again. i also have never been able to build up much muscle. i notice a difference in terms of strength, but visible definition is unnoticeable.

i bought the cereal bar form of it, but i think i would like the actual cereal with milk much better. the bars are far too sweet for my liking, probably because they are marketed more toward children. i must say, i did love reces peanut butter puffs.

i have heard that it takes a while for the vili to heal and for your system to be able to adjust to certain foods again. i have been having trouble with nuts and nut butters, which i suppose may be a result of malabsorption of fats. if this is the case, what else should i be avoiding? i have heard i should stay away from casein as well. am i supposed to be cleansing my body with a detox diet? if so, what precisely does that include? just fruits and vegetables? how long am i supposed to be on it? when can i go back to other foods? ive heard others mention a liquid fast, is this recommended? anything else i should know?i will be very thankful for any helpful comments.

thanks for the replies,

even though i dont take in much fat to begin with, ill keep limiting my amount and i will try to do the same for protein. i do have another question about that though, does it matter what source the fat comes from? say, from an avocado as opposed to ice cream? im really craving guacamole and i had thought it be a good way to incorporate something more substantial into my detox diet (pure fruits and veggies).

i started a gluten free diet and i noticed that a few days into it, i felt absolutely awful. im so fatigued, and whats worse is that my stomach hurts so bad, its insane. in between the ribs, i feel like ive been punched. lower down near the intestines, my tummy feels very sore and the intestines feel inflamed and irritated. i no longer get the immense swollen belly that i used to get, but it is still a bit puffy. ive heard a lot of people mention that they feel great after going gluten free and they have this abundance of energy and increased appetites and such. i cannot relate. i used to exercise everyday, but right now im so tired and my stomach hurts far too much to consider it. does anyone know why this is happening? are there any herbal supplements i should take? any input would be greatly appreciated.

sorry mushroom, i realize that it is completely unhealthy and i do not advocate that lifestyle in any way. just trying to make the point that yes, eating disorders are really darned and the person who has one has a very skewed thought process. adding gluten intolerance in the mix really exacerbates this terrible process and makes the afflicted person go to even more extreme measures to "get rid of the bloat." but once again, that is absolutely not something to strive for. health should be the ultimate goal.

i recently applied to all sorts of places for job opportunities and the only one i had any luck with is panera. i was hired three weeks ago, and just found out that i am sensitive to gluten. of course, i dont have to consume any of the glutenous foods, but i am constantly exposed to breads in the cafe as well as doughs and flour spores in the air all the time. will my health suffer from this type of exposure? this economy is terrible and my chances of finding another job soon is slim to none. i cant afford not to work. is it so terrible for me to try and tough it out at my job?