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mamaw

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mamaw last won the day on July 8 2015

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    Pennsylvania

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  1. Hello & Welcome..... I a little confused as  you said" I did  eat  something with flour" so  does  this  mean  you haven't been eating  gluten? Please  clarify.... also  has  anyone  ever  checked  your gallbladder?  Make  sure  you are consuming  gluten  for  the  endo & ask for  5-6  biopsies....Do you also  have  stomach  ulcers?

  2. Is  there a reason you can not  get  tested  for  celiac  first?It  is always  best  to be tested  when possible....Why are  you not  eating protein? yes, it is possible to feel  very weak  when not consuming  the  correct  balance  of  food  &  enough  food..even if  you get  dx'd  celiac  one  must  maintain  a balance  of  foods (  healthy foods) so  the  gut  can heal....When a person does not  consume  enough food their  blood  sugar  can  drop.....

     

  3. You are  still in the infant  stage  of  healing  celiac. some  people  have  found  they  are sensitive  to  many other  food  items... Doctors  sometimes  tell patients  to stay away from  any  type of  dairy for at  least 6 months... Dairy  is also broken down at the tips of the villi .....There  are  many  who react  to  soy products, I  for one  can not tolerate  any soy....or MSG which is another beast....

    I would  suggest  eating  only  grass fed  beef, organic  chicken, wild  caught  fish,  veggies &  fruits  until  your  gut  settles  down. It  does  sound  very limited but  it  works....When  your  gut  is  better  it  will tell you what it likes & dislikes. You maybe  surprised that  things  you never thought  were an issue  are  &  things  you thought  were  nasty  are  now  okay... plus  cravings  do  go away .....good luck

  4. bartfull....... it  is so  great  to hear  your news & wonderful  that  you are having  a  well deserved  respite  form  pain...My  hubby  did  this years  ago  & worked well for  a  period  of  time but  as he  said "  any time  minutes, hours  , days   or  month's  is  worth  it  ,not being  in  unbearable  pain.... I  pray  it  lasts  & lasts  for  you....

  5. one  great deed  deserves another.... when Eloise  older  sister  was killed  in an auto accident  her  parents  donated  her  heart  & organs  that  were not  damaged to another  child, well here it is four  years later  & they received  the gift  of organ transplant for Miss Eloise....Just proves  what  I believed all along  God always gives  back three fold.... so to all ; remember any good  deed  will come back to you...peace

  6. it  takes  time  for the gut to heal  no person is the  same....it  sounds  like  your  daughter  is making progress  in the right direction just  keep her 100%  gluten-free  24/7  &  don't look back....I agree  with  the others sure  sounds  like  celiac... for  your  son....if  you are not  happy  with the  results  take  your  medical copies  &  go  to another  doctor  for  another  opinion... not all doctors  knows or understands  celiac or  ncgs....

  7. You got  some great  advice.  have you  had a total blood  work done  in the past  year  to see  it  you are lacking  in  something? Have  you tried  B-12  injections.Gallbadder  scan?  I  found  those  things  helped  me get  answers to my health.

    hope  you  find  comfort soon.

  8. Congrats  on your  new  baby(big baby)!!!! Patches  knew  immediately who to  love  & hook onto.... they are so smart, he  wasn't  just  going to pick any old body  he knew  what he was looking  for!!!!! Glad  he  choose  you , he  will have a great  wonderful  life.....Sorry about  the death..... You & patches  will be a comfort  to each other..... :wub:

  9. I don't  know  much  about  the military  but  in the last  several months  I have  met  men  who have  been medically discharged  because of celiac. That  makes me  angry & them  too....it  seems  the  govt  doesn't  want to be  bothered  with  people  who have celiac  they just  toss  them out...that  is  so sad.  These  men & women  love  our  country  &  many  make the ultimate  sacrifice   & the  gov't  tosses  them like  they are  nothing.....SAD....

  10. very sad  celiac  is  still  not  known very well  but  the last   few  years  things  have been  moving in the right  direction....no human  wants to see another  human  in  such  pain &  anguish...try not  to dwell on the past  but  use  that  angry energy to  grow  with knowledge of  celiac  so  a few  years  down the road  you too  can be  guiding  someone  to a gluten-free  lifestyle...and  you  will be  a new  healthy happy  celiac ....for  future  years to come...

    If  you have  family  siblings  or  children please  have  them tested.....

     You are well on  your  way to  growing...  Kiddos  to you...

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