Googles
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I had a nightmare the other night that I ate Nacho Doritos accidentally. When I realized what I was doing I tried to take all of the chips out of my mouth (to try and reduce the gluten-don't know if this would actually do anything) and there just kept being more and more chips. I couldn't get rid of them all. It was so awful. Not to mention that in my dream it was graduation day and so I was going to miss graduation. Do other people have nightmares about this? I feel like when I first started wearing glasses and I started wearing them in my dreams. That somehow it has permeated enough to enter my dreams. AAAAAAAAAAHHHHHHHHH!!!!!!!!! I can't be free of gluten even when I sleep.
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An elephant ear with cinnamon and sugar. Powdered donuts. old fashioned donuts.
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I want a cinnabon. With extra frosting. I also want wheat spaghetti and toasted french bread with butter that I can dip in the pasta sauce.
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My situation is different because we pass a plate, and I'm in the choir so we have our own plate since we are in the loft. My church provides the gluten-free bread. One day the pastor forgot to bring it and someone else ran out and got it. Mine is put in a ziplock bag and then I have someone open the bag for me and fold back the plastic so I can just grab it out. I hadn't thought of the problem of cc from the music/hymnals. Hopefully that wont happen.
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I have had skin issues since I was a teenager, and never been able to find a solution. I ran out of milk a couple of days ago and haven't been to the store to pick any more up. And my face has cleared up. This might just be a coincidence, but maybe not. How long should I wait before I drink milk again. And does that mean I have to give up my mozzarella cheese too? And my hot chocolate and ice cream and...? I don't have any gut issues related to it, at least I don't think I do. Please someone help me.
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Can you list the ingredients?
Sometimes you can do a google search for "Scope - gluten free", and find a satisfactory answer.
I ended up having time to call them before class and they said it was gluten free (Big sigh of relief!)
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Does anyone know if scope is gluten free? Or did I just unintentionally gluten myself?
Thanks.
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I did the store locater to try and find it near me and it is 50 miles away.
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Thank you everyone for the support. I was feeling better about all this, and then the anniversary of the diagnosis came around along with a lot of other stress which just kind of sent me into a tailspin. As someone mentioned I do feel like my body has betrayed me. Like it plotted against me to make everything harder, as if it wasn't hard enough as it is. I'm terrified of getting sick. I'm terrified of traveling, something I used to do easily. I now feel like my life is controlled by food, something I never really liked in the first place.
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When people respond with "well it could be worse" it makes me angry. It makes me feel invalidated. It makes me feel that my feelings don't matter. I'm sorry that person X suffered from disease Y. That sucks. But that doesn't mean that my distress is any less. And this just comes on top of my other health issues. It just happens to be the newest one. The one I can't hide from others since so much stuff surrounds food. Or food surrounds so much stuff. I'm told I can vent and that people understand. But then I'm also told to just 'suck it up' because it could be worse. I try to reach out for support from people who have been there too. But I feel like I'm getting my hand slapped for asking for help. Yes some people are further along in the acceptance process. And I feel like I have back slid in that process. I was dealing with it really well for a while. Now I just want to hide from the world.
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Thank you everyone for listening to me scream. I know this could be worse. And I was doing quite well for a while. But this has all just popped up again. I even wen tout to eat at a restaurant with friends for the first time. But I think this conference is terrifying me. I don't want to end up sick in another country. Ugh.
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I feel like I'm stuck in the grief process. And I'm back to the anger stage. I really thought that I had accepted my diagnosis and that there was nothing that was going to make it go away. But I am just so angry. And there is no one for me to be angry at. Except myself. It's my stupid body that can't work right. It's my stupid body that causes me to be excluded from social activities that involve food (which is pretty much all of them). Even when I tell my friends to include me, even if I wont be able to eat anything. It's my stupid body that can't eat most of the food at the grocery store. I walked into the small store at school and was overwhelmed by a sense of depression knowing that I couldn't eat my favorite foods. And never will be able to again. Didn't I have enough problems in my life without this?
Every time I travel (which is hardly ever anymore) I'm terrified of getting sick. I'm terrified of going on a trip to a conference that is 11 hours away by car and not being able to get back because I've gotten sick.
I hate this!!!!!!!!!!!!!!!!!! I hate my life!!!!!!!!!!!!!!!!! I hate that I have to think about everything that could conceivably end up in my mouth.
I thought it would be easier knowing what was wrong the many months that I waited for all the testing to be done. Because then I wouldn't have to guess anymore. But now I just want to scream. But there is no one to hear me.
I have nightmares about accidentally ingesting the wrong food. Or more tantalizing dreams where some favorite food I can eat again. But then I wake up and am back to my reality.
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I have met other older generation folks who strongly believe that too--and there they are with their humped backs, digestive difficulties, flaking skin, joint problems, lack of clarity etc. etc.
Is flaking skin from Celiac? I have flaking skin. I hate it. I'm gluten free (for about a year) but my flaking skin hasn't changed. Is there something to treat it?
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I went to the store today to get some cookies that are gluten-free and they did not have any left. I asked a person working at the store (which I think ended up talking to a manager. He looked at what I wanted and said that he couldn't help me because his "natural foods" orders didn't come in until Friday. Does that mean that all of his other food he has on his shelves are not natural? LOL
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Thank you for your input. It makes me a lot more relaxed.
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I just got a job babysitting. I was wondering if people have tips for cooking gluten containing food. I haven't cooked any since I went gluten free last year. I will be cooking dinner for the kids. I know to wash my hands really well when I am done cooking and not to taste any of the food to see if it is done (I'll have to use the kids for this one) but I was wondering if there are other tips people have. I can't just not take the job because I need it, so that isn't an option.
Thanks.
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The problem was that it wasn't written up specifically as a food issue, but when I asked what they were referring to in one section, that was what they said they were referring to. Yes I was anxious when I was talking to them about it. It was the first time I had to ask about food. So I was nervous about asking. Every time it comes up it makes me angry all over again. I feel like I should be able to get over it, but I can't seem to. They did eventually tell me what and where they were ordering from, but they asked like I was being ridiculous to ask.
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I am angry. So angry. This happened a little more than a year ago now (about two months after I was diagnosed). I moved to graduate school and they had a welcoming lunch for the new students. I asked them where they were getting their food from and what they were getting making it clear that I just wanted to check and see if any of the food would be safe for me to eat. But all I got was the run around on that they couldn't give me the information and it was too complicated for them to figure this out. I was then later told by my adviser that it was too hard for them to "figure out everyone's dietary needs." I really don't think that my request of where and what they were ordering was too much. I wasn't asking them to change anything they were ordering. Just to let me know. I didn't know how hard to push the issue as I didn't want to stand out as the one who wanted special treatment. I didn't register for disability services because I didn't want to piss off people in the department. Where then they would have to provide me food I could eat at department functions. But their response that I was acting inappropriately by asking these questions makes me furious. That they felt it was necessary to reference my anxiety about the whole 'food issue' in my yearly review and put it in my permanent record makes me even angrier.
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I am traveling to Montreal for a conference in November. I am dreading traveling. I don't know how many days I'm going to be there. Can anyone help me with information about where I can eat? I don't know where I am staying yet. Any information will be helpful. This is the first time I've traveled except for my grandfather's funeral since I was diagnosed so it is still new. Thanks.
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Thanks. That really helps giving me a place to start.
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I drink vodka mixed with water- which is not a very common "favorite" but it's what I like. You can try it with a lime.
Also, (correct me if I'm wrong!) but wine is safe too!
The one time I tried wine (and yes it was obviously only one type) I almost spit it out. I was with some older friends (30-50) who had opened a bottle of wine at a retreat. They offered me some by saying that it was okay if I drank some (obviously they didn't think I was old enough to drink). Too bad I was already 22. Being that they were offering it around it took me a second to realize why they thought they had to give me permission. I haven't touched it since. I always have trouble buying new things that I don't know if I'm going to like because I don't want them to go to waste and I don't go out hardly at all.
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I was wondering what types of alcohol I can drink. I don't really like very many types of alcohol I had tried before becoming diagnosed and I know nothing about what things are made of. I was wondering if people could let me know so when I go to parties or out to a bar with friends. The only thing I really liked that I found was an almoreto(sp) sour. Can I still drink that? If I can't what can I drink that doesn't taste like alcohol (the thing I like about that drink?) Thanks.
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I guess I shouldn't have been as surprised as I was when I went to the grocery store. The cashier (maybe 16 or 17) asked me what I was buying since she didn't recognize the gluten free food. I told her that I was getting gluten free food because I couldn't eat wheat. She looked at me really confused. I said that I couldn't eat flour. She then said. Oh I've never heard of that (meaning that flour was made out of wheat.) This somewhat surprised me since the store is good and has a complete freezer case that is just gluten free food with a nice big sign over it. The best place to get it anywhere around.
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Thank you so much for your reply! I'm really nervous about going out to eat. I don't feel like I should be this nervous but I am. Yikes.
Gluten Eating Nightmare
in Coping with Celiac Disease
Posted
Too bad those kidnappers couldn't be nice enough to provide you with gluten free food while they were keeping you captive. So inconsiderate of them.